So what about HIFU????

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Comments

  • mrshisname
    mrshisname Member Posts: 186
    the.wife said:

    Hi again,
    He stayed home

    Hi again,

    He stayed home today as today is pee day, he was told to clamp off his catheter and wait to use his own plumbing, well, it worked! He had to run to the toilet the first time, but he has peed twice now so he is back using the catheter and going to work after lunch.

    My relief has no bounds.

    Mrshisname, Thank you for the well wishes, and Steve, thanks for your two cents, this HIFU is the best invention! I just wish everyone was able to get it.

    My sweetie says he is sure that he doesnt have ED, but with all the junk around his waist, we'll wait to let him prove it!

    Mrshisname, I hope your guy is doing good, I just don't have the time to read the other threads, but I feel certain he must be as I only see a thread asking where to get Cialis and we've been told it's a good idea to start taking that just for constant blood flow.

    Well wishes to all, and check into HIFU

    the wife
    Hi, so glad that all is going well. My guy is doing well too! Nearly dry, just a few dribbles here and there(getting up out of chair), only one nighttime accident and that was about 3 days after catheter removal, which was 2-1/2 weeks ago. ED is improving slowly but surely - and we are rediscovering each other if you know what I mean! He is happy to be cancer free and we are going on with life.
    Next stop is the first PSA (June 9).
    Is your local urologist going to do the serial PSA's for you? Hope they are all zero!
    Will be interested in continuing to follow his story. God bless.
  • pontiac
    pontiac Member Posts: 2
    HIFU PROCEDURE
    During late June 2008, I had a PSA test locally in Palm Beach, Fl. As the PSA was high, I was referred to a local urologist who did a DRE and said that I should have radiation before even scheduling a biopsy.

    During early July 2008, I researched HIFU extensively online, mainly using the Google search engine. I already knew that I had BPH so it was great timing to discover that a doctor in my area had both GreenLight and HIFU experience. I read everything I could find regarding both procedures and decided to contact this doctor, who answered most of my questions over the phone and via email.

    I eventually met with Dr. Lotenfoe in Orlando and he performed my biopsy on July 21, 2008. I learned within 22 hours that I had high-risk PC and BPH. My PSA was 18, Gleason score was 9 and all 12 of my cores were cancerous. He immediately prescribed oral Casodex for prostate cancer. If was informed that it stops the cancer "dead in it's tracks".

    I had lost 20 pounds and was down to 140 pounds and was very concerned that radiation treatment would be especially hard on me as I have gastritis. I asked hundreds of questions, particularly regarding my concern if HIFU would be successful considering my high Gleason score. I was informed that they had treated previous high-risk patients who had high Gleason scores with the Sonablate 500. I decided in August to undergo the GreenLight laser procedure to reduce the size of my enlarged prostate and scheduled it for September 3. The GreenLight procedure was at 1:30 p.m. and I was in my motel at 5:00 p.m.

    After discussing other options with local surgeons, oncologists and radiologists and undergoing nuclear pet-scans and MRIs, which showed no metastasis, I decided that I wanted to have the HIFU treatment in Cancun, Mexico. On September 14, just 11 days following the GreenLight procedure, I had my HIFU procedure in Cancun, again performed by Dr. Lotenfoe. I went into the OR at 6:30 a.m.; the total procedure time was approximately four hours and 10 minutes. I enjoyed a wonderful meal that evening in the hotel restaurant with a friend. I returned home to the U.S. 36 hours later; one of the patients returned home the day after his procedure.

    I already had written instructions on how to train my bladder over the next few weeks, and was also assisted by multiple phone calls with USHIFU in Charlotte, N.C. whenever I needed additional information. A particular RN who was extremly knowledgeable assisted me throught the bladder training period and I think she was probably my guardian angel. She was very thoughtful, patient with a wonderful, and warm personality with a positive attitude regarding every aspect throughout the training.
    I have been completely pain-free throughout both of these procedures (GreenLight and HIFU) with no side effects whatsoever and would highly recommend this treatment to anyone who chooses a minimally invasive treatment versus the recovery time and what seems to me to be the obvious suffering and pain involved in comparison to post-prostatectomy and/or radiation therapy. I was on hormone therapy for more than 18 months. My PSA has remained at 0.1 (as of this writing on June 2, 2010).

    I fully acknowledge and realize that there will be proponents and critics during the next months and years regarding the effectiveness of HIFU versus more invasive procedures, including surgery and radiation therapy. Knowing my overall health situation from the get-go gave me a determined conviction that I made the right decision for me. I believe it's extremely important to find a doctor you have total confidence in and that was certainly the case for me. God Bless to all cancer patient's.
  • marge
    marge Member Posts: 8
    pontiac said:

    HIFU PROCEDURE
    During late June 2008, I had a PSA test locally in Palm Beach, Fl. As the PSA was high, I was referred to a local urologist who did a DRE and said that I should have radiation before even scheduling a biopsy.

    During early July 2008, I researched HIFU extensively online, mainly using the Google search engine. I already knew that I had BPH so it was great timing to discover that a doctor in my area had both GreenLight and HIFU experience. I read everything I could find regarding both procedures and decided to contact this doctor, who answered most of my questions over the phone and via email.

    I eventually met with Dr. Lotenfoe in Orlando and he performed my biopsy on July 21, 2008. I learned within 22 hours that I had high-risk PC and BPH. My PSA was 18, Gleason score was 9 and all 12 of my cores were cancerous. He immediately prescribed oral Casodex for prostate cancer. If was informed that it stops the cancer "dead in it's tracks".

    I had lost 20 pounds and was down to 140 pounds and was very concerned that radiation treatment would be especially hard on me as I have gastritis. I asked hundreds of questions, particularly regarding my concern if HIFU would be successful considering my high Gleason score. I was informed that they had treated previous high-risk patients who had high Gleason scores with the Sonablate 500. I decided in August to undergo the GreenLight laser procedure to reduce the size of my enlarged prostate and scheduled it for September 3. The GreenLight procedure was at 1:30 p.m. and I was in my motel at 5:00 p.m.

    After discussing other options with local surgeons, oncologists and radiologists and undergoing nuclear pet-scans and MRIs, which showed no metastasis, I decided that I wanted to have the HIFU treatment in Cancun, Mexico. On September 14, just 11 days following the GreenLight procedure, I had my HIFU procedure in Cancun, again performed by Dr. Lotenfoe. I went into the OR at 6:30 a.m.; the total procedure time was approximately four hours and 10 minutes. I enjoyed a wonderful meal that evening in the hotel restaurant with a friend. I returned home to the U.S. 36 hours later; one of the patients returned home the day after his procedure.

    I already had written instructions on how to train my bladder over the next few weeks, and was also assisted by multiple phone calls with USHIFU in Charlotte, N.C. whenever I needed additional information. A particular RN who was extremly knowledgeable assisted me throught the bladder training period and I think she was probably my guardian angel. She was very thoughtful, patient with a wonderful, and warm personality with a positive attitude regarding every aspect throughout the training.
    I have been completely pain-free throughout both of these procedures (GreenLight and HIFU) with no side effects whatsoever and would highly recommend this treatment to anyone who chooses a minimally invasive treatment versus the recovery time and what seems to me to be the obvious suffering and pain involved in comparison to post-prostatectomy and/or radiation therapy. I was on hormone therapy for more than 18 months. My PSA has remained at 0.1 (as of this writing on June 2, 2010).

    I fully acknowledge and realize that there will be proponents and critics during the next months and years regarding the effectiveness of HIFU versus more invasive procedures, including surgery and radiation therapy. Knowing my overall health situation from the get-go gave me a determined conviction that I made the right decision for me. I believe it's extremely important to find a doctor you have total confidence in and that was certainly the case for me. God Bless to all cancer patient's.

    Thank you for your story,
    Thank you for your story, it's too late for me, but I am sure others will appreciate the information. I wish someone had told me about this, but they wrangled me into surgery before I could discover their were other options available.