Kick-off Monday the 15th - 0800 Hours

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Comments

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #22
    stevenl said:

    You be nice
    Sorry Deb,

    You be nice to me. You know I am sick and can't take criticism right now. I am very sensitive. Toenails are serious. I need them to continue kicking this craps butt. Hey, I see you made it through the introductory session!!!
    Way to go girl!!!.

    Steve

    Long toes?
    Hey, Steve,

    You may need to try loose shoes, at least for the interim.

    Snerk.

    Deb

    p.s. I'm gonna cut-and-paste your answer and save it for later, when I get whiney. I like your way with words.
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #23
    Skiffin16 said:

    Humility
    Hi Deb (D Lewis), if you haven't lost any of your humility by now, you more than likely will by the time you've finished treatment LOL....

    I've been poked, probed, examined and stared at either by medical professionals or just common people whom seem to be disgusted by no hair, fuzzy hair, discolored, peeling and raw skin....all while having a fanny pack strapped to you pumping poison into you through a tube stuck into your chest.

    If they could ever walk a mile in our shoes....

    God Bless and Good Luck,
    John

    I'm going to use that remark Chefdaddy Mike used...
    John,

    You recall the remark made by Chefdaddy Mike in the crowded elevator, don't you? If they don't treat you with respect, imply that you are contagious.

    Yep, all modesty is already gone. In the interests of irradiating the lowermost reaches of all my neck lymph nodes, my rather elongated mask lacks about three key inches at the bottom to serve as a "Nefertiti Mask" rather than a "King Tut Mask" if you get my drift, which places my nifty little triangulation tattoo about half way down to my navel. So, while I am allowed the use of a gown during radiation treatments, I am not allowed to use it for very long.

    Deb
  • Pam M
    Pam M Member Posts: 2,196
    #24
    MaryRC said:

    Toenails
    I was reading about the toenail loss. I wouldnt mind that at all, I have toenail fungus in all my toenails so if they drop out I wont miss them! Though they would probably grow back with the fungus!
    Keep up with the eating Deb. I havent had surgery yet, but I have been eating soy icecream and have gained 4 lbs.
    I have 14 days till surgery! Cant believe I am looking forward to it. I want to get all this over with.
    Mary in Northern California

    Goodbye, Nails
    Mary,

    Hate to say it, but if you have toenail fungus, it would work well for you if you did lose the nails - easier to treat the fungus that way, I read. I didn't lose any nails, but just a few weeks ago, my fingernails started splitting from the base - so they're fine at the tips, but flaking, splitting near the bases.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #25
    D Lewis said:

    I'm going to use that remark Chefdaddy Mike used...
    John,

    You recall the remark made by Chefdaddy Mike in the crowded elevator, don't you? If they don't treat you with respect, imply that you are contagious.

    Yep, all modesty is already gone. In the interests of irradiating the lowermost reaches of all my neck lymph nodes, my rather elongated mask lacks about three key inches at the bottom to serve as a "Nefertiti Mask" rather than a "King Tut Mask" if you get my drift, which places my nifty little triangulation tattoo about half way down to my navel. So, while I am allowed the use of a gown during radiation treatments, I am not allowed to use it for very long.

    Deb

    Humor
    Deb,

    LOL, glad you also can find humor in all of this.... I think it serves us well. Usually no one can appreciate my humor as much as I do... ;)

    John
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #26
    D Lewis said:

    Treatment locally
    Kent;

    The travel/distance complication was solved to my satisfaction.

    At my Tumor Board Meeting at Stanford, they were pretty clear that my cancer, base of tongue with mets to lymph nodes on both sides, was in an uncomplicated location (ha, relatively speaking) and the treatment was very standardized. It was not necessary to travel to Stanford for treatment. Stanford is calling the shots, and spoke extensively with the Radiolgist and Oncologist at the new Regional Cancer Center in my home town. Apparently this group has a very well known dosimetrist and physicist, and the team has had excellent results with the ten head/neck cancers that have come through in the last year. So, Stanford was satisfied to delegate the treatment to my local cancer center, which is 15 minutes away. Big relief.

    Deb

    And the more encouraging
    So very happy for you, Deb, with the logistics working-out as they are for you and the 15 minutes, and that you've got the Folks at Stanford overseeing it all= the best of both worlds. Everything, therefore, is in place, girl- all systems go.

    Of note- where I was treated is the Regional Cancer Center of the Quad Cities, located in Bettendorf, Iowa. Could they be part of the same network of C centers? Does make me wonder:
    www.rccqc.com/ gives you their website, if you look on Google. All of the people there, in the QCA, were great to me- awesome. Just did a quick Google search, and Regional Cancer Center brings-up sites all over America. If they are the same- would be cool if you give the names of Chitneni and Rajput to your people, with my praise. I was on the ropes for awhile in my fight, but they were all there with me, Deb. I trust your people will give their best effort for you, as you must. As I have won the battle, Deb, so shall you.

    Believe

    kcass
  • staceya
    staceya Member Posts: 720
    #27
    Good Luck!
    Good Luck to you!!
    I will be keeping you in my prayers. I just finished 35 rads last Thursday and Amifostine course (I accidentally first typed curse, which is probably more appropriate)as well as severe neck burns and the joys of home debridement..you, some Lortab, bright lights and a good magnifying mirror.
    After getting down to 90 lbs, yesterday I was able to eat a bit of hot dog (I know bad nutritional choice) and it tasted like a hot dog..brought tears to my eyes.
    You will get through this. This site is so helpful..
    Wishing you well,
    Stacey
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #28
    staceya said:

    Good Luck!
    Good Luck to you!!
    I will be keeping you in my prayers. I just finished 35 rads last Thursday and Amifostine course (I accidentally first typed curse, which is probably more appropriate)as well as severe neck burns and the joys of home debridement..you, some Lortab, bright lights and a good magnifying mirror.
    After getting down to 90 lbs, yesterday I was able to eat a bit of hot dog (I know bad nutritional choice) and it tasted like a hot dog..brought tears to my eyes.
    You will get through this. This site is so helpful..
    Wishing you well,
    Stacey

    deb
    very best of luck to you. stay strong! we are all pulling for you. here's praying for mild side effects.
  • ratface
    ratface Member Posts: 1,337 Member
    #29
    sweetblood22 said:

    deb
    very best of luck to you. stay strong! we are all pulling for you. here's praying for mild side effects.

    Not all bad
    "it's going to change you in bad ways for the rest of your life" Please rethink this philosopy.Yes you have been hit by the perverbial bus but there are some positives. Lets not dwell on those right now. You will find them in due time and they will be personal to you. So pick yourself up and ride that damn bus into treatment and your mind will carry you far.

    May you prevail through treatment on the wings of angels and far from reach of that damn bus!
  • ballonk
    ballonk Member Posts: 39
    #30
    Good Luck, Deb!
    Sending warmest wishes and hugs your way and you continue on your journey to wellness. I love the saying "Shut up and get to work"! I will remember those words for myself!
  • Fire34
    Fire34 Member Posts: 365
    #31
    ballonk said:

    Good Luck, Deb!
    Sending warmest wishes and hugs your way and you continue on your journey to wellness. I love the saying "Shut up and get to work"! I will remember those words for myself!

    Best Wishes
    Deb
    Best wishes and hope things go well>
    Dave

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