For Micktissue

Kent Cass

delnative said:

Oh, Mick ...
... As PK says, we've been there. Man, it does suck, and I feel for you -- but this too shall pass.
Now, 17 months out, the only problem I have is in the morning. I still have to hack and gack some stuff out of the deep recesses of my throat, but most of that is due to the fluoride treatment I do before bedtime. The Prevident seems to sink to the bottom of my throat overnight, but once I get it out in the morning, I have no trouble for 24 hours.
You will get better. Don't forget that fact, and keep your eyes on the prize.

--Jim in Delaware

Jim's Right
Eye on the prize, Mick. Spit and get-out as much as you can, as often as you can. Only 16-months for me, Jim. Not sure what-all you're doing, Mick, but I used to carry a little pail I bought at Lowe's for a couple bucks to spit into- and carried it whenever I left the house. Only one I saw who did that at Chemo and Rad, but nobody said anything to me. Lost the need to carry it around week #7, after the hospital stay and I turned the corner. Keep in mind, with Chemo- don't think what you spit-up and blow-out is the kinda stuff you wanna treat as being anything other than toxic.

Yes, Mick- you're well into it, now, as the days are counting-down until it is over. We've all made it, Mick, and so will you.

Believe

kcass

Hondo

micktissue said:

thanks everybody
It is pretty rough around here. I'm doing ok eating but still losing about a pound a day for about a week after chemo then it levels and then starts to go up. It's making my Dr crazy, but he also says "you're doing great!"

The major problem right now is not pain as much as it is mucous. I have so much stringy stuff in my mouth that (TMI WARNING) it tends to stick inside my throat and cause a gag reflex and today upchucked about 300 calories that I worked damn hard to get down. I'm taking anti-emetics (adavan or zophron) to help, but am wondering if anyone has any ideas about reducing the mucous.

13 more rad treatments and 1 more chemo round to go.

Thanks.

mick

All most home Mick
A lot of friends here for one purpose and that is to help you cross the finish line, You are now passed the half way mark and headed for home stretch. In a few weeks you will be thinking back on the days when you were taking treatment because it will all be in the passed.

Take care my friend

sweetblood22

Kent Cass said:

Jim's Right
Eye on the prize, Mick. Spit and get-out as much as you can, as often as you can. Only 16-months for me, Jim. Not sure what-all you're doing, Mick, but I used to carry a little pail I bought at Lowe's for a couple bucks to spit into- and carried it whenever I left the house. Only one I saw who did that at Chemo and Rad, but nobody said anything to me. Lost the need to carry it around week #7, after the hospital stay and I turned the corner. Keep in mind, with Chemo- don't think what you spit-up and blow-out is the kinda stuff you wanna treat as being anything other than toxic.

Yes, Mick- you're well into it, now, as the days are counting-down until it is over. We've all made it, Mick, and so will you.

Believe

kcass

mick hang in there
you are doing great. i know that mucous is horrible. i am so amazed that you are still eating and drinking. you are amazing. only a little while to go until the treatments are over, then a couple of weeks of continuing to fry after they cooked you, and you will start mending. keep up the nutrition. get good sleep if you can. you can do it. sending good vibes your way.

dennis318

micktissue said:

Stilll here
Hi Hondo. I just answered a PM from my buddy and amazingly brave man Steve and I'll just post that. But before that I want to go on more about Steve after rreading a few of his posts. Dude, mowing the lawn? Going fishing? I can't even get out of bed to eat a smoothie at the moment. Damn man you are made of tough stuff! I'm taking major inspiration from your story and applying it to my own.

It's been pretty tough and I'm blogging it on my personal website www.justwrite.us. I just blogged today and came here to give an update too.

The roughest right now is food. I don't have a lot of pain from swallowing, but the taste. Ugh. Nothing taste good and everything makes me want to barf. Yes I have meds to help me through this but they don't help much. Claire (my Superwoman girlfriend/wife) has figured out a way for me to get 2000 calories/day in a way I can tolerate so that is awesome and started today.

The 2nd chemo round really knocked me on my ****. I slept for 2 days. Today was better and tomorrow will be better. 15 more rad treatments and 1 more chemo treatment and it will be over (forever I hope).

Best to all,

Mick

Hang in There Mick
Your at the rought part, Hang in There Mick, it's tough going, and good luck in getting something down, food seems the last thing you want to deal with...we are pulling for you. Dennis

dennis318

micktissue said:

Stilll here
Hi Hondo. I just answered a PM from my buddy and amazingly brave man Steve and I'll just post that. But before that I want to go on more about Steve after rreading a few of his posts. Dude, mowing the lawn? Going fishing? I can't even get out of bed to eat a smoothie at the moment. Damn man you are made of tough stuff! I'm taking major inspiration from your story and applying it to my own.

It's been pretty tough and I'm blogging it on my personal website www.justwrite.us. I just blogged today and came here to give an update too.

The roughest right now is food. I don't have a lot of pain from swallowing, but the taste. Ugh. Nothing taste good and everything makes me want to barf. Yes I have meds to help me through this but they don't help much. Claire (my Superwoman girlfriend/wife) has figured out a way for me to get 2000 calories/day in a way I can tolerate so that is awesome and started today.

The 2nd chemo round really knocked me on my ****. I slept for 2 days. Today was better and tomorrow will be better. 15 more rad treatments and 1 more chemo treatment and it will be over (forever I hope).

Best to all,

Mick

Hang in There Mick
Your at the rought part, Hang in There Mick, it's tough going, and good luck in getting something down, food seems the last thing you want to deal with...we are pulling for you. Dennis

dennis318

micktissue said:

Stilll here
Hi Hondo. I just answered a PM from my buddy and amazingly brave man Steve and I'll just post that. But before that I want to go on more about Steve after rreading a few of his posts. Dude, mowing the lawn? Going fishing? I can't even get out of bed to eat a smoothie at the moment. Damn man you are made of tough stuff! I'm taking major inspiration from your story and applying it to my own.

It's been pretty tough and I'm blogging it on my personal website www.justwrite.us. I just blogged today and came here to give an update too.

The roughest right now is food. I don't have a lot of pain from swallowing, but the taste. Ugh. Nothing taste good and everything makes me want to barf. Yes I have meds to help me through this but they don't help much. Claire (my Superwoman girlfriend/wife) has figured out a way for me to get 2000 calories/day in a way I can tolerate so that is awesome and started today.

The 2nd chemo round really knocked me on my ****. I slept for 2 days. Today was better and tomorrow will be better. 15 more rad treatments and 1 more chemo treatment and it will be over (forever I hope).

Best to all,

Mick

Hang in There Mick
Your at the rought part, Hang in There Mick, it's tough going, and good luck in getting something down, food seems the last thing you want to deal with...we are pulling for you. Dennis

micktissue

dennis318 said:

Hang in There Mick
Your at the rought part, Hang in There Mick, it's tough going, and good luck in getting something down, food seems the last thing you want to deal with...we are pulling for you. Dennis

lol Dennis
Thank you, thank, you, thank you.

Best,

Mick

MaryRC

micktissue said:

lol Dennis
Thank you, thank, you, thank you.

Best,

Mick

Hang in there Mick
I am glad you are almost finished with your treatments and you are doing so good. You and Steve and Deb. I read all the posts. All of you on here have gotten me so I am not afraid anymore.
I got a book yesterday from Amazon.com. Called "Life Over Cancer".Just started it, but there is an article on Mucositis. It said they recommend mixing water with 20 grams of glutamine and carry it around in a bottle. Swish around in mouth and swallow it. Says to use it every hour. I dont know this is what your doctor would want you to use or not, I am going to look into it.
10 more days until my neck disection.
Mary

stevenl

MaryRC said:

Hang in there Mick
I am glad you are almost finished with your treatments and you are doing so good. You and Steve and Deb. I read all the posts. All of you on here have gotten me so I am not afraid anymore.
I got a book yesterday from Amazon.com. Called "Life Over Cancer".Just started it, but there is an article on Mucositis. It said they recommend mixing water with 20 grams of glutamine and carry it around in a bottle. Swish around in mouth and swallow it. Says to use it every hour. I dont know this is what your doctor would want you to use or not, I am going to look into it.
10 more days until my neck disection.
Mary

Glutamine
Hi Mary,
I am using L-Glutamine powder and it seems to help with the burning sensation when I eat and I believe it helps some with the mucosa. It also has a small amount of calories and helps build muscle mass. It can't hurt, I don't think. And as for my courageous friend Mick, keep on keepin on man. My thoughts are always with you. Even though it is a real battle, looks like you are gonna make it. Now how is that for tough, EH?

Talk at ya later,
Steve

Hondo

Hi Mick
Hope everything is going OK Mick I know the rad and chemo if ruff on you about now but don’t give up my friend. I did look at your blog that is nice to have a running personal log.

All the best to you Mick
Hondo