Pancreatic cancer and liver lesions

mr steve

SF_2_EP said:

First they found a mass on my liver
I know that for most the pancreatic discussions are dormant, maybe one or two people talking to cyber space, sadly all postings are old, posted by other individuals that maybe are no longer with us.I just want to say that I feel that there are doctors out there that really dont know much about this disease seriously they say things like, Islet Cell Tumors are slow growing and that they rarely give off any symtoms since they hardly release any hormones into the blood flow.I had three different onocologist tell me three different findings about my pancreatic cancer, then to add insult to injury the Social security Administration has a Compasionate list of diseases that qualify for disability and pancreatic cancer is on the list.Then they have another page called the compasionate qualifications where they dont explain any knowledge or have any evidence how they determine how serious pancreatic cancer is or how they break it down to determine the seriousness of the disease.I dont know what kind of information the American Cancer Society has kept them up dated with but it all ends with the dicision of someone called the Adjudicator,gladly for our sake this person dont work in the OR but seems he has the title as the hang man, so we must drop to our knees and plead for mercy.

SF
My wife has been getting treatment for over 3 years now for islet cell with mets to liver ovaries lymph nodes on who knows where else at this point. but with the 2 big flare up of tumors afinitor and avastin seem to be shrinling most of the tumors.

Steve

catz111

SF_2_EP said:

First they found a mass on my liver
I know that for most the pancreatic discussions are dormant, maybe one or two people talking to cyber space, sadly all postings are old, posted by other individuals that maybe are no longer with us.I just want to say that I feel that there are doctors out there that really dont know much about this disease seriously they say things like, Islet Cell Tumors are slow growing and that they rarely give off any symtoms since they hardly release any hormones into the blood flow.I had three different onocologist tell me three different findings about my pancreatic cancer, then to add insult to injury the Social security Administration has a Compasionate list of diseases that qualify for disability and pancreatic cancer is on the list.Then they have another page called the compasionate qualifications where they dont explain any knowledge or have any evidence how they determine how serious pancreatic cancer is or how they break it down to determine the seriousness of the disease.I dont know what kind of information the American Cancer Society has kept them up dated with but it all ends with the dicision of someone called the Adjudicator,gladly for our sake this person dont work in the OR but seems he has the title as the hang man, so we must drop to our knees and plead for mercy.

No treatment
Apologies, computer playing up...same post 3 times so I'm editing.

catz111

SF_2_EP said:

First they found a mass on my liver
I know that for most the pancreatic discussions are dormant, maybe one or two people talking to cyber space, sadly all postings are old, posted by other individuals that maybe are no longer with us.I just want to say that I feel that there are doctors out there that really dont know much about this disease seriously they say things like, Islet Cell Tumors are slow growing and that they rarely give off any symtoms since they hardly release any hormones into the blood flow.I had three different onocologist tell me three different findings about my pancreatic cancer, then to add insult to injury the Social security Administration has a Compasionate list of diseases that qualify for disability and pancreatic cancer is on the list.Then they have another page called the compasionate qualifications where they dont explain any knowledge or have any evidence how they determine how serious pancreatic cancer is or how they break it down to determine the seriousness of the disease.I dont know what kind of information the American Cancer Society has kept them up dated with but it all ends with the dicision of someone called the Adjudicator,gladly for our sake this person dont work in the OR but seems he has the title as the hang man, so we must drop to our knees and plead for mercy.

No treatment
Edited...again.:)

catz111

SF_2_EP said:

First they found a mass on my liver
I know that for most the pancreatic discussions are dormant, maybe one or two people talking to cyber space, sadly all postings are old, posted by other individuals that maybe are no longer with us.I just want to say that I feel that there are doctors out there that really dont know much about this disease seriously they say things like, Islet Cell Tumors are slow growing and that they rarely give off any symtoms since they hardly release any hormones into the blood flow.I had three different onocologist tell me three different findings about my pancreatic cancer, then to add insult to injury the Social security Administration has a Compasionate list of diseases that qualify for disability and pancreatic cancer is on the list.Then they have another page called the compasionate qualifications where they dont explain any knowledge or have any evidence how they determine how serious pancreatic cancer is or how they break it down to determine the seriousness of the disease.I dont know what kind of information the American Cancer Society has kept them up dated with but it all ends with the dicision of someone called the Adjudicator,gladly for our sake this person dont work in the OR but seems he has the title as the hang man, so we must drop to our knees and plead for mercy.

No treatment
I don't know how this works so I've just latched on to your post. I was diagnosed with inoperable pancreatic cancer in April 2011. Two years ago I had horrific pain in my abdomen, duly went to the Dr's and was told I had an inflamed stomach lining and was prescribed Omeprazole. I don't like taking medicine and hadn't been to the Dr's for over 15 years but the pain was so bad at this point (on a scale of 1 - 10 it was a 20! - I finally went. The Omeprazole did nothing and, looking at the side effects I decided not to take it.

I went to a homoeopath and she treated me for the diagnosis given. The pain never really went away, but it was manageable. I never took any kind of painkiller.

Mid March, my skin and eyes started to turn yellow - the dreaded jaundice. I went back to the Dr's in April and was sent to have an ultrasound. They found a mass on my pancreas which was blocking the common bile duct. I was booked in to have a plastic stent fitted as an outpatient and had weekly blood tests done. I also researched alternative treatments and the homoeopath altered my remedies.

In June, the jaundice had still not cleared and I started to feel unwell, I knew the stent wasn't working. Finally, I got the shakes and a temperature. I called the Dr out and was admitted to hospital the same day. On the 8th day, the stent was replaced with a metal one and the following day I was sent home. I was told I had a cystic mass on the head of my pancreas and a further mass in the neck which was pushing into the head and squashing the bile duct. When in hospital the Dr's wanted me to book in for chemo/radiation. I refused point blank. I had researched enough to know that there was very little hope with that treatment. Why spend the next 6 months or so being violently sick with no quality of life, that was my interpretation. I informed them that I was sticking with my alternative treatments....they weren't too happy with me. In addition, I changed my diet completely. Out went the coke, chocolate, sweets of any kind, desserts...well, you get the picture. In came water, dark fruits - grapes, plums, raspberries, blackberries etc. Certain nuts, though other things remained in moderation, butter, whole milk, bread (brown, always) cereals, a little meat.

At the time of writing this, I am in perfect health, I have very little pain and the only medication I take for that is ONE 500mg paracetomol tablet a day - if it's needed. I am taking homoeopathy remedies and dandelion root - dug them up from the garden.

I eat between 6 - 9 small meals a day. Typically. hemp seeds first thing, followed by 2 shredded wheat with milk and half a teaspoon of sugar, 2 hours later I may have either one slice of bacon with fried tomatoes (in extra virgin olive oil) fried bread and a glass of orange juice an hour later a banana or yoghurt, dinner, well whatever I fancy, usually a small plate of vegetables with either fish or chicken. An hour after that I get peckish and have cheese on toast - one slice, inbetween I munch on fruit and nuts. Finally, I'll have a cup of coffee on milk. I walk my dogs every day and keep up with the housework.

Regardless of the outcome, I am enjoying life, it's just that I may know more than most how much time I have which leaves me to get my affairs in order - just in case. However, I feel that this 'problem' can be faced with a positive attitude and a belief in the body's power of self healing - with the right fuel to help it along.

My way isn't everybody's way but, it works for me. I am constantly researching alternative treatments and the latest I am hoping to try is a programme based on Royal Rife's machine.

I sincerely hope everybody here finds their own way to deal with this illness and whatever course of treatment you take, whether it be traditional or alternative, if you believe, it will work for you.

God bless and peace to all.