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Amifostine

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Comments

  • Skiffin16
    Skiffin16 CSN Member Posts: 8,307 Member
    #22
    staceya said:

    Lets talk about amofostine again
    Any new thoughts on Amofostine?

    I'm A Believer...
    Monkees....

    But I also am a believer, in that it helped me in various ways.

    I did get my saliva back after losing both taste and saliva, saliva is still little while sleeping though.

    But, I think what it helped me most with was not having the thick mucositis and choking phlegm that I read so much about.

    Actually, that was the main intent of my chemo MD prescribing it, more so than saliva retention...the saliva was just a possible added bonus.

    Although in my reading, kind of the opposite of Hal's findings, although his expereince and reaction was pretty fast.

    Most what I have read states the most people can't finish the entire regime', though some do of course.

    I ended up giving them up at around 30 of 35... I was getting extreme fever swings, temps as high as 102.7 twice.

    JG
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  • phrannie51
    phrannie51 CSN Member Posts: 4,716 Member
    #23
    staceya said:

    Lets talk about amofostine again
    Any new thoughts on Amofostine?

    Thanks Stacey...
    for bumping this up...
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