Any book recommendations???

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aisling8
aisling8 Member Posts: 1,627 Member
edited March 2014 in Breast Cancer #1
Hello,

I had my lumpectomy last week, waiting for pathology report and eventually rads. I'm wondering what books you have read and found helpful for things like diet, living with and after treatment, etc.

Thanks for your help,

Victoria

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  • susanleeann
    susanleeann Member Posts: 58
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    actually just being here
    actually just being here helps me. had my surgery, waiting to start chemo. hanging out is my best therapy. just found out someone i used to work with was diagnosed just a month before me. we are going to have lunch later this week. keeping connected is my best therapy while i await treatment. the only book that peaked my interest was Elizabeth Edward's book "Resilience" but i really like her as a person before and despite all the stuff she has gone through in the tabloids,
  • Mimi Allen
    Mimi Allen Member Posts: 2
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    The American Cancer Society
    The American Cancer Society can give you some wonderful information on diet, treatment, and other recommendations. There are several on-line organizations that can help, one that I have joined is the triple negative breast cancer foundation, you can find them on facebook. Personally, I tried much of the recommendations but found that each person is different. The most important is to keep hydrated, lots of fruits -- watermelon was a saving grace because it provided liquid, sweetness and could eat bite size chunks when was feeling sick to my stomach. A good book I just picked up is "Just Get Me Through This!: The Practical Guide to Breast Cancer" by Deborah Cohen, very motivating. I would also suggest to keep a day planner, which you can document how you feel, any symptoms, and any questions to ask your doctor. At first I would go in to the doctor's office and was asked how I was doing and my pat reply was good, then realize I forgot to mention this or than or ask a question, after the planner it was really helpful. I also recommend keeping a business card for each test, scan or procedure done. On the back of the card you can write the type of procedure and date, the front acts as a point of contact, a lot of times, the oncologist would send me for tests and then forget to let me know specific results or outcomes because of the delay from order to procedure to the date the results arrived into the office. The best piece of advice I can give you is to find a friend and allow them to be your sounding board to express all the bad feelings and frustrations to vent and let go.
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
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    Probably
    not so much about diet,but I found the best book when I was first diagnosed was Dr. Susan Love's Breast Book-very good and helpful!!
  • jnl
    jnl Member Posts: 3,869 Member
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    Probably
    not so much about diet,but I found the best book when I was first diagnosed was Dr. Susan Love's Breast Book-very good and helpful!!

    The American Cancer Society
    The American Cancer Society has information on diet and health. Look at their website.

    Leeza
  • KayNYC
    KayNYC Member Posts: 495 Member
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    lumpectomy next week
    I read "Be a Survivor: Your Guide to Breast Cancer Treatment" by V. Lange, MD it was easy reading and very helpful. I read it on Monday when I returned home from my meeting with the surgeon who is doing my procedure next Wednesday.
    Have you received your results yet? How was the first week post op?
    Hugs,
    K
  • meena1
    meena1 Member Posts: 1,003
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    KayNYC said:

    lumpectomy next week
    I read "Be a Survivor: Your Guide to Breast Cancer Treatment" by V. Lange, MD it was easy reading and very helpful. I read it on Monday when I returned home from my meeting with the surgeon who is doing my procedure next Wednesday.
    Have you received your results yet? How was the first week post op?
    Hugs,
    K

    I would have to recommend,
    I would have to recommend, "Anti-Cancer, a new way of Life." This book is the bible of cancer. There are several other posts about this book on this board and several other boards. It explains so much, you will be speechless. Take care and good luck on your journey.
  • aisling8
    aisling8 Member Posts: 1,627 Member
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    KayNYC said:

    lumpectomy next week
    I read "Be a Survivor: Your Guide to Breast Cancer Treatment" by V. Lange, MD it was easy reading and very helpful. I read it on Monday when I returned home from my meeting with the surgeon who is doing my procedure next Wednesday.
    Have you received your results yet? How was the first week post op?
    Hugs,
    K

    Hi KayNYC
    I hope you read this before your surgery. My sentinel node dye injection, the radioactive dye part, was painless. Literally, painless. I went to the hospital the day before, they injected it, I read my book for an hour, went to nuclear medicine and a machine did its thing and poof, the technician said "There's your sentinel node."

    The next day, I had the wire locater thing, didn't hurt at all. The blue dye stuff was done during surgery. I woke up, they took seven nodes, all negative, and no drain.

    Day after surgery I walked two miles on the beach. There's been no pain. I'm shocked. I have a little bit of fluid at the node incision site, yesterday they aspirated fluid, and I return to the surgeon Tuesday for a post-op check and to check on this fluid situation which they say is normal.

    Just waiting now for OncDX test to see if I need chemo before rads (I had multifocal cancer, two tumors next to each other, otherwise they wouldn't consider chemo.)

    I've been walking three miles every morning, doing all my normal stuff. You'll be just fine.

    Keep us abreast (ha ha).

    Victoria
  • laurissa
    laurissa Member Posts: 773
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    Hi Victoria
    Hope you're doing well after your lumpectomy. Mine was last week, too. My path report was done in 2 days, all clear. Got my staples out today. Rad is next and tamoxifen pill. I went to the library and found lots of books and my sister gave me some too. "What to Eat When You Have Cancer" is good.
  • lynn1950
    lynn1950 Member Posts: 2,570
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    Anti-Cancer, written by a
    Anti-Cancer, written by a doctor who is a brain cancer survivor, helped me when I was ready. Most helpful during treatment was a set of booklets I received from the Susan B. Komen Foundation. The pamphlets contained questions to ask every step of the way. My best to you. xoxoxoxo Lynn
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
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    lynn1950 said:

    Anti-Cancer, written by a
    Anti-Cancer, written by a doctor who is a brain cancer survivor, helped me when I was ready. Most helpful during treatment was a set of booklets I received from the Susan B. Komen Foundation. The pamphlets contained questions to ask every step of the way. My best to you. xoxoxoxo Lynn

    Victoria,
    If you haven't already, be sure to call the American Cancer Society's 800 number and request any and all of their free booklets. I called them several times during my treatment -- I always found their Cancer Information Specialists to be so helpful and compassionate, and they sent me SO much helpful information, all completely free of charge.

    As I was finishing treatment, I also read After Breast Cancer: A Common-Sense Guide to Life After Treatment, by Hester Hill Schnipper LICSW and After Cancer Treatment: Heal Faster, Better Stronger by Julie K. Silver, MD. The first focuses more on emotional recovery, the second on physical recovery, and both are written by medical professionals who are also themselves breast cancer survivors -- I highly recommend them.

    And, as others have said, my oncologist has also recommended Anti-Cancer: A New Way of Life, by David Servan-Schreiber. That's next up for me.

    Traci
  • KayNYC
    KayNYC Member Posts: 495 Member
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    aisling8 said:

    Hi KayNYC
    I hope you read this before your surgery. My sentinel node dye injection, the radioactive dye part, was painless. Literally, painless. I went to the hospital the day before, they injected it, I read my book for an hour, went to nuclear medicine and a machine did its thing and poof, the technician said "There's your sentinel node."

    The next day, I had the wire locater thing, didn't hurt at all. The blue dye stuff was done during surgery. I woke up, they took seven nodes, all negative, and no drain.

    Day after surgery I walked two miles on the beach. There's been no pain. I'm shocked. I have a little bit of fluid at the node incision site, yesterday they aspirated fluid, and I return to the surgeon Tuesday for a post-op check and to check on this fluid situation which they say is normal.

    Just waiting now for OncDX test to see if I need chemo before rads (I had multifocal cancer, two tumors next to each other, otherwise they wouldn't consider chemo.)

    I've been walking three miles every morning, doing all my normal stuff. You'll be just fine.

    Keep us abreast (ha ha).

    Victoria

    thanks Victoria
    Thanks for the encouragement and good news about your recuperation. I am looking forward to "getting on with life" I will be off for two weeks from work and I have a stack of books, movie tickets and magazines to keep me occupied if the weather does not cooperate.Walking on the beach sounds fabulous...
    Keep me posted.
    Hugs, K
  • aisling8
    aisling8 Member Posts: 1,627 Member
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    TraciInLA said:

    Victoria,
    If you haven't already, be sure to call the American Cancer Society's 800 number and request any and all of their free booklets. I called them several times during my treatment -- I always found their Cancer Information Specialists to be so helpful and compassionate, and they sent me SO much helpful information, all completely free of charge.

    As I was finishing treatment, I also read After Breast Cancer: A Common-Sense Guide to Life After Treatment, by Hester Hill Schnipper LICSW and After Cancer Treatment: Heal Faster, Better Stronger by Julie K. Silver, MD. The first focuses more on emotional recovery, the second on physical recovery, and both are written by medical professionals who are also themselves breast cancer survivors -- I highly recommend them.

    And, as others have said, my oncologist has also recommended Anti-Cancer: A New Way of Life, by David Servan-Schreiber. That's next up for me.

    Traci

    Thank you all
    for the wonderful help. I checked out every book the library has on the library shelf.

    My pathology report was good, Stage I, grade 1, no nodes BUT (why oh why is there always a but), there were two tumors next to each other and even though together they don't add up to one centimeter, the oncologist ordered the OncDx test and we're waiting on those results to determine if I need chemo (yuk).

    Meanwhile, things are good, but (another but...) I've got fluid buildup under my arm which is irritating. I had it aspirated once and I'm going to see the surgeon tomorrow anyway so I'm sure she'll do it again. Hoping she doesn't decide to put in a drain -- hard to go to work with a drain. (I'm a court reporter and it would bug the crap out of me).

    Happy to hear you're doing well, Laurissa. And KayNYC, please please let us know how things go for you.

    I appreciate each and every one of you.

    Victoria
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
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    aisling8 said:

    Thank you all
    for the wonderful help. I checked out every book the library has on the library shelf.

    My pathology report was good, Stage I, grade 1, no nodes BUT (why oh why is there always a but), there were two tumors next to each other and even though together they don't add up to one centimeter, the oncologist ordered the OncDx test and we're waiting on those results to determine if I need chemo (yuk).

    Meanwhile, things are good, but (another but...) I've got fluid buildup under my arm which is irritating. I had it aspirated once and I'm going to see the surgeon tomorrow anyway so I'm sure she'll do it again. Hoping she doesn't decide to put in a drain -- hard to go to work with a drain. (I'm a court reporter and it would bug the crap out of me).

    Happy to hear you're doing well, Laurissa. And KayNYC, please please let us know how things go for you.

    I appreciate each and every one of you.

    Victoria

    Library books
    Victoria,

    I just wanted to throw out something that both my surgeon and oncologist warned me about when I was looking for resources during my treatment: What is known about breast cancer and treatment protocols have changed so rapidly over the years, that they both cautioned me about reading anything with outdated information.

    Since libraries often have older books, I would just suggest that you check publication dates on anything you read. I checked the publication date first on any book I picked up -- my own (completely unscientific) rule for myself was that, if the publication date didn't start with a "2" (as in, published after 2000), I put the book back.

    Just something to be careful of,

    Traci
  • KayNYC
    KayNYC Member Posts: 495 Member
    Options
    aisling8 said:

    Thank you all
    for the wonderful help. I checked out every book the library has on the library shelf.

    My pathology report was good, Stage I, grade 1, no nodes BUT (why oh why is there always a but), there were two tumors next to each other and even though together they don't add up to one centimeter, the oncologist ordered the OncDx test and we're waiting on those results to determine if I need chemo (yuk).

    Meanwhile, things are good, but (another but...) I've got fluid buildup under my arm which is irritating. I had it aspirated once and I'm going to see the surgeon tomorrow anyway so I'm sure she'll do it again. Hoping she doesn't decide to put in a drain -- hard to go to work with a drain. (I'm a court reporter and it would bug the crap out of me).

    Happy to hear you're doing well, Laurissa. And KayNYC, please please let us know how things go for you.

    I appreciate each and every one of you.

    Victoria

    Day two post operative
    Dear Victoria,
    I am sore, numb and still somewhat swollen under my arm (node removal) but otherwise feeling pretty good today. I am of course, awaiting the pathology report. My surgeon took four nodes during the lumpectomy. The path done in the OR of the sentinel node was clear of cancer. I haven't needed as much analgesic as they have prescribed. I have been cutting the pill in half and taking it with a Tylenol. It seems effective and lasts about 6-8 hours. It was recommended that I remove the outer dressings today which I did. Taking a shower and washing my hair felt great. I only have the little strips left at both incision sites. They say that they will fall off on their own. The surgical site looks really good with no redness or pain. The swelling and numbness under the armpit are the only areas of discomfort. I just finished reading "Anti Cancer: A new way of life" I am a little tired but with such beautiful Spring-like weather, I may take a short walk with my husband this afternoon.I won't return to work until the week of 3/30. I have a visit with the surgeon on 3/29.
    Did you get results on the OnxDx test? How is the fluid build up under the arm? Have you returned to work?
    Hugs.
    K
  • aisling8
    aisling8 Member Posts: 1,627 Member
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    KayNYC said:

    Day two post operative
    Dear Victoria,
    I am sore, numb and still somewhat swollen under my arm (node removal) but otherwise feeling pretty good today. I am of course, awaiting the pathology report. My surgeon took four nodes during the lumpectomy. The path done in the OR of the sentinel node was clear of cancer. I haven't needed as much analgesic as they have prescribed. I have been cutting the pill in half and taking it with a Tylenol. It seems effective and lasts about 6-8 hours. It was recommended that I remove the outer dressings today which I did. Taking a shower and washing my hair felt great. I only have the little strips left at both incision sites. They say that they will fall off on their own. The surgical site looks really good with no redness or pain. The swelling and numbness under the armpit are the only areas of discomfort. I just finished reading "Anti Cancer: A new way of life" I am a little tired but with such beautiful Spring-like weather, I may take a short walk with my husband this afternoon.I won't return to work until the week of 3/30. I have a visit with the surgeon on 3/29.
    Did you get results on the OnxDx test? How is the fluid build up under the arm? Have you returned to work?
    Hugs.
    K

    Hi KayNYC
    Glad you're doing well. I am too. I went for my surgeon post-op visit and she aspirated 85 cc's from under my arm. That was Tuesday and fluid has returned. I don't want to complain too much because I really don't want a drain put in. Just waiting on the OncDx test. Have that appointment this coming Thursday assuming the results are back.

    I decided not to go back to work till I know about chemo -- I'm simply too distracted. So in the meantime, it's lovely Southern California weather and I'm having a nice vacation!!

    Hugs back to you,
    Victoria

    And I thank you Traci, that's a very good point about library books, checking to make sure I'm not reading outdated information. Thanks!!
  • KayNYC
    KayNYC Member Posts: 495 Member
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    aisling8 said:

    Hi KayNYC
    Glad you're doing well. I am too. I went for my surgeon post-op visit and she aspirated 85 cc's from under my arm. That was Tuesday and fluid has returned. I don't want to complain too much because I really don't want a drain put in. Just waiting on the OncDx test. Have that appointment this coming Thursday assuming the results are back.

    I decided not to go back to work till I know about chemo -- I'm simply too distracted. So in the meantime, it's lovely Southern California weather and I'm having a nice vacation!!

    Hugs back to you,
    Victoria

    And I thank you Traci, that's a very good point about library books, checking to make sure I'm not reading outdated information. Thanks!!

    Sounds like a good plan
    Dear Victoria,
    I return to the surgeon two days before I return to work. I am anxiously waiting for the path reports. My underarm area is still swollen but I don't feel like there is a "ball" under my arm, something my doctor warned me about. Sensation is beginning to return under my arm and I haven't needed an analgesic all day. I went for a lovely walk with my husband through the park on this first day of Spring. Good luck on the OncDX test. Enjoy the beautiful weather.
    K