Stage IV Hope
I thought this might encourage others. I have been at it for 2 1/2 years. The discovered a recurrence 14 months ago which we treated aggressively with CRS and HIPEC and I am still NED. Quick knock on wood!
I had an MRI and a CT and those radiologists are unable to detect any cancer. I know there are lots of you struggling so I post this as an encouragement to you all to seek out the best therapies to remove the beast.
If it wasn't for the sites like these, I would never have discovered HIPEC or my big city doc.
As some of you can attest, even the best docs don't remember to tell you or know about the best treatments for you. You often have to bring it to them.
There is so much HOPE for stage IV cancer. Hoping to spread some here.
Nedhopesprays
Comments
-
thank you
Thank you for sharing your great news and for giving encouragement.
Many of us need to hear messages like this on down days. I know there are still options, but it does get tiring. Then your message today made me smile and get ready to start "kicking some cancer butt!"
Thank you and God bless with many more NED years ahead of you!
Lisa0 -
Hi Jen,
Thanks for posting
Hi Jen,
Thanks for posting your great story; it offers hope to me, (+ others I am sure) still hoping to be NED. Congratulations on getting to NED. Your story reminds me of my surgeon's words early on, "you have to be patient". Take good care!0 -
NED is a wonderful thing
Jen,
I think/hope I have already told you that you have inspired me in so many ways. Although my treatment has been unending, you provide light for the tunnel. You make it sound so easy, even after "the MOTHER of all surgeries". I know it hasn't been easy. I know you still struggle. Please know how many lives you've touched along the way. YOU are an inspiration.
Thank you for all that you do. Know that you are loved.
Outwit. Outplay. Outlast.
Kimby0 -
We all need to hear this
Even those of us stage 4 folks that are NED need to here this. You make us even more confident that we can continue to beat it.
When I first was DX. I read that for us stage 4 people “the doctors will make you comfortable, but there is no cure.” That web site does not say that anymore. There are too damn many of us stubborn folks out there that just will not consider ourselves the walking dead.
Kerry0 -
You got a lot to fight for!!
I love youre pic and I see you have a lot to fight for. I'm so happy you won this fight and your story gives others strength to fight on. Keep up the good work..
"Million Cancer Survivors Walk" is on Facebook
Brooks0 -
Thanks for sharing.Wish you
Thanks for sharing.Wish you all the best.0 -
HOPE
Hi Jen, thanks for your encouraging words. I have an onc here in our small town and appreciate him for many reasons, one being he has told me he has done all he can do and that he knows what doc at UCSF he wants to see me now. As my son said, I'm moving on up to the big leagues! It is scary, yet I am excited to see what is ahead! I have never been NED but have been in a long holding pattern. Time to move on! You are an inspiration. Thank you. Jean0 -
UCSFchicoturner said:HOPE
Hi Jen, thanks for your encouraging words. I have an onc here in our small town and appreciate him for many reasons, one being he has told me he has done all he can do and that he knows what doc at UCSF he wants to see me now. As my son said, I'm moving on up to the big leagues! It is scary, yet I am excited to see what is ahead! I have never been NED but have been in a long holding pattern. Time to move on! You are an inspiration. Thank you. Jean
Thanks Jean,
We just keep on keeping on.
I hear great things about UCSF. They are one of the best in the West.
I have a friend with metastatic disease who has been in a "holding pattern for 12 years". There is nothing wrong with that. New drugs come out all the time and maybe our silver bullet is just around the corner.
You wouldn't live in Chico would you? I have a sister there.
Wishing you the best!0 -
Beth,dorookie said:WONDERFUL
Thank you for sharing, and congradulations!! I just got an ALL CLEAR myself, stage 4 too. Its truly a blessing to be apart of this board..
Did you do the NED naked dance??
Beth
Congrats yourself!
I
Beth,
Congrats yourself!
I did the nekid dance and the goofy, spontaneous giggles all day.0 -
Guess What?robinvan said:Thanks Jen
Inspiration like this is always appreciated!
Hoping and praying too! Rob; in Vancouver
A friend passed your blog to me a long time ago.
You have been encouraging me too!
So how is that for coincidence.....
Jen0 -
Love you to Sweetie!kimby said:NED is a wonderful thing
Jen,
I think/hope I have already told you that you have inspired me in so many ways. Although my treatment has been unending, you provide light for the tunnel. You make it sound so easy, even after "the MOTHER of all surgeries". I know it hasn't been easy. I know you still struggle. Please know how many lives you've touched along the way. YOU are an inspiration.
Thank you for all that you do. Know that you are loved.
Outwit. Outplay. Outlast.
Kimby
Love you to Sweetie!0 -
Jen, I think you and i have
Jen, I think you and i have talked via email before. I am so glad to hear that you are still NED. You give me so much hope and I will go into a beautiful Saturday morning tomorrow and think about your story and just have an awesome day.Thank you so much, Patti0 -
Lovely Lisalisa42 said:thank you
Thank you for sharing your great news and for giving encouragement.
Many of us need to hear messages like this on down days. I know there are still options, but it does get tiring. Then your message today made me smile and get ready to start "kicking some cancer butt!"
Thank you and God bless with many more NED years ahead of you!
Lisa
Dr Lenz is one of my docs. If you want to chat. Email me at Jenfightscancer@gmail.c*o*m (take the *'s out of the link)
((((big hugs))))
Jennifer0 -
Hey Jen. Thanks for the
Hey Jen. Thanks for the post. Love the picture. My surgeon here at Wake Forest believes that I may be a candidate for cytoreductive surgery with HPIC. At this point he believes he can resect my liver, perform the debulking and HPIC, and resect my primary tumor in one surgery. I'd love to hear more about your experience with the cytoreductive surgery,
Roger0 -
Hi Jen
Hi Jen,
That is great that you are NED! My husband saw Dr. Lenz when he had surgery in LA a year ago. His onc in Hawaii now consults with Dr. Lenz. I was wondering if he recommended HIPEC? We like him very much but I did not know if he tended toward the things he was researching or if he recommends other institutions if their approach would benefit the person.
Thanks.
Aloha,
Kathleen0 -
CP8 Survivorsjust4Brooks said:You got a lot to fight for!!
I love youre pic and I see you have a lot to fight for. I'm so happy you won this fight and your story gives others strength to fight on. Keep up the good work..
"Million Cancer Survivors Walk" is on Facebook
Brooks
Come help us hold up our Survivors sign at CP8 in Fort Worth Oct.13-16, probably Thursday night we will gather for dinner and picture.
Jo Ann0
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