New .. Husband has CLL Leukemia

lucybuddy
lucybuddy Member Posts: 1
edited March 2014 in Caregivers #1
Hi..
My husband has stage 2 CLL.. Right now he is tired alot.. he can not be around alot of people because of his immune system.. we have a daughter in special ed.. I am worried about my future with my daughter.. paying the bills,paying the bills.. I am afraid .. I work part time at a school. It does not pay the bills..
I know only I can help myself.. I feel alone.. I know no-one who has a spouse with cancer..
I am lucky because my husband is in good health right now..Thanks for letting me share..

Comments

  • Barbara53
    Barbara53 Member Posts: 652
    #2
    so much to deal with
    Luce, you're in a terrible fix, and you know it. I know nothing about your husband's type of cancer, but you can learn much in the appropriate forum. Meanwhile, you are in the right place for YOU and your daughter.

    The time to start looking for help is now, before things spiral out of control completely due to your husband's treatment. Don't quit your part time job, even if the money is modest. It will help keep you sane, and part time is really all a parent with a special needs child can handle.

    Is your husband able to work, or are you already missing paychecks? Do you have any family resources? Just put it out there, honey. There are people here who know where to go for help, and people should only have to bear so much.
  • wifeforlife
    wifeforlife Member Posts: 189
    #3
    Barbara53 said:

    so much to deal with
    Luce, you're in a terrible fix, and you know it. I know nothing about your husband's type of cancer, but you can learn much in the appropriate forum. Meanwhile, you are in the right place for YOU and your daughter.

    The time to start looking for help is now, before things spiral out of control completely due to your husband's treatment. Don't quit your part time job, even if the money is modest. It will help keep you sane, and part time is really all a parent with a special needs child can handle.

    Is your husband able to work, or are you already missing paychecks? Do you have any family resources? Just put it out there, honey. There are people here who know where to go for help, and people should only have to bear so much.

    you're not alone.
    Don't feel alone... a lot of us have to worry about finances. My husband is also the "Bread winner" ... and it makes me feel quilty when I think of money and how his cancer affects me and our future.
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    #4
    Benefits
    You don't say how your special ed daughter is classified as special ed. As a retired special ed teacher, I know that some students qualify for benefits under social security. You might want to check that out. Also, the school should have a school psychologist who might be able to help your daughter through this time. There is nothing selfish about being concerned about finances. You are simply trying to do some planning. Cancer forces us to realize that we are all mortal and that disease can change both our present and our future. Don't be afraid to ask for help either. When people offer, they really do want to help. When I finally asked for help with some transportation for my husband, I actually had people thank me for letting them help. Take care of yourself. Fay

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