Intamal Sarcoma

Thomson Member Posts: 8
edited March 2014 in Sarcoma #1
My husband was diagnosed with Intamal Sarcoma - which is a soft tissue sarcoma of the blood vessels surrounding the lungs, 2 years ago. This is a very rare form of sarcoma and I was wondering if there is anyone who knows about this kind of sarcoma or who unfortunaely is going through it. Plus, due to the radition and chemotherapy my husband has also now been diagnosed with MAC which is a bacteria on the lungs.
Grateful for any kind of advice, knowledge.
Patricia Thomson