Just radiation

Kent Cass

Pam M said:

PEG Queasies
Brad,

Did the nurse "push" the water in for your flush (with the plunger)? I found that (when I was in the hospital) I didn't feel queasy when one nurse just let gravity do its thing, and poured the water in the syringe, and let it flow in, but sometimes did get queasy when another nurse pushed the water in. I've also heard that water less than room temp gave some people problems. Also felt off when it was done on a full stomach.

It takes time to get used to. You'll get there. Do well.

Tube
Pam M- never tried the gravity. I always flushed it with the plunger thing on the big syrine. Do it gradually. Not sure what it'd be like to have another put something into the tube, Pam- that might be the problem. I'm the only one who ever put anything into it- even when I was showed the ropes, it was for me to do. And that includes the 4 days at the start of week #6 in the hospital. Nurses did ask me, but I was in a very bad way, then, and told them to just get my formula. Might help if you just take charge and do it yourself. My tube was outpatient a couple weeks before I needed to use it, so that probably explains things.

Brad- just takes getting used-to, and it will. Had mine over a year, now, and will need to flush it tomorrow AM before work, due to my 3-month meeting with the Rad Dr. Last used in early-April/09. Your body also has to get used-to, so be on the lookout for signs of a problem, like infection. I had no such problem, but met someone in treatment who did.

Of note: when my Suppliers showed me the ropes on how to use the tube, I was told by them that if it ever gets clogged/stopped-up, then I should pour Coke (the Coca-Cola variety) into it. Only happened once, and the stuff works. FYI.

kcass

Pam M

sweetblood22 said:

feeding tube
Brad, what you said sounds normal. Mine hurt like heck the first day. The first doctor had it so tight I thought I would die. I spoke to the second doctor and he losened it and I felt a little better. My abs hurt too. It really hurt when I had to get out of the car after having it done. I walked a little bent over for a couple of days, but then I was okay.

If you get nauseus when flushing, or when and if you have to use it for nutrition, just remember to go slowly. If you have any problem with nausea, and it is not the formula,I would recommend getting a pump for overnight while sleeping. I wish that they would have done that for me before I lost 40 lbs. I had my doctors appointment yesterday and I went from 88 to 94 lbs! yay!

I hope that you won't need to use it, but it will certainly be a life saver if you do. I will have mine for a year coming up on march 15th. You will become accustomed to it quickly.

Way to Go, Sweetblood
6 pounds - keep up the good work. I know it was quite an effort for you; here's hoping you continue to put some on (for a while).

sweetblood22

Pam M said:

Way to Go, Sweetblood
6 pounds - keep up the good work. I know it was quite an effort for you; here's hoping you continue to put some on (for a while).

thanks pam
this pump has really helped me out. i am hoping for the day i don't need it, but meanwhile maybe putting on some weight will make it easier for my body to heal, and eventually i will actually be able to eat all the calories that i need. and hopefully taste them.

being that i had such severe side effects i always worry for people that opt to go thru treatment without a peg. most i spoke to during my treatment did get them in the beginning. the three that didn't two had them placed during treatment because they lost too much weight.

hoping for 6 more pounds this month. i am filling out my size 0 old navy diva jeans now. lol

rmkbrad

sweetblood22 said:

thanks pam
this pump has really helped me out. i am hoping for the day i don't need it, but meanwhile maybe putting on some weight will make it easier for my body to heal, and eventually i will actually be able to eat all the calories that i need. and hopefully taste them.

being that i had such severe side effects i always worry for people that opt to go thru treatment without a peg. most i spoke to during my treatment did get them in the beginning. the three that didn't two had them placed during treatment because they lost too much weight.

hoping for 6 more pounds this month. i am filling out my size 0 old navy diva jeans now. lol

Thanks
I flushed it myself today, I did it slower and did not have as much problem. The gross part is when I do the suckback and pull some of my stomach content out and then push in the water. Does everyone do this, I was told by the nurse to do so. I drive down to San Francisco tommorrow for the mask fitting and trial run, fun stuff 240 mile. Usually takes me 4.5 hours but last time I left on a Sunday evening and it took over 8 hours. I really hate traffic and I guess that is why I live in the country. Anyway thanks for the input. Has anyone heard or tried Graviola, I was reading on it today. Thoughts?

sweetblood22

rmkbrad said:

Thanks
I flushed it myself today, I did it slower and did not have as much problem. The gross part is when I do the suckback and pull some of my stomach content out and then push in the water. Does everyone do this, I was told by the nurse to do so. I drive down to San Francisco tommorrow for the mask fitting and trial run, fun stuff 240 mile. Usually takes me 4.5 hours but last time I left on a Sunday evening and it took over 8 hours. I really hate traffic and I guess that is why I live in the country. Anyway thanks for the input. Has anyone heard or tried Graviola, I was reading on it today. Thoughts?

i don't know about the
i don't know about the suckback thing, no one told me to do that. but i really was never shown what to do.

as far as graviola, i would not consider it. someone mentioned it to me when i first heard of my cancer. i looked it up through sloan - kettering.

http://www.mskcc.org/mskcc/html/69245.cfm

if that link doesn't come up, try googling or bing sloan-kettering - graviola. i understand it might have severe neurological side effects if i recall correctly.

blessings,
d