Iliostomy and Disneyland rides??
Brooks
Comments
-
Just don't open bag while in motion........
Good question.....Haven't been to Coney Island in a while and they're supposed to be adding rides this year (tho it'll never be like it was when Iwas a kid)Be funny if one of the faster rides pulls bag off due to gravity...Have fun when you go...Steve0 -
Just don't open bag while in motion........
Good question.....Haven't been to Coney Island in a while and they're supposed to be adding rides this year (tho it'll never be like it was when Iwas a kid)Be funny if one of the faster rides pulls bag off due to gravity...Have fun when you go...Steve0 -
Just don't open bag while in motion........
Good question.....Haven't been to Coney Island in a while and they're supposed to be adding rides this year (tho it'll never be like it was when Iwas a kid)Be funny if one of the faster rides pulls bag off due to gravity...Have fun when you go...Steve0 -
Why not?If you have
Why not?If you have concerns,I understand.My husband has been wearing colostomy belt for a couple of months,he feels very good with it,because it covers the whole bag and tights the bag closed to the body,and makes the whole thing invisible.I am sure if you google iliostomy belt,you are going to have many links about it.My husband bought two on ebay.Maybe later you can give a try.It really works and it is comfortable.Enjoy yourself and have a great time at Disneyland.0 -
Hey Brooks - I guess there
Hey Brooks - I guess there may be an issue of how the safety belt or shoulder harness comes down. If it were me I'd give it a shot. The last time I rode a roller coster I totally crapped my pants, so having a colostomy would be a plus for me.
Stewie says go for it.
Have a great time.
Roger0 -
Ups and downs may make you Goofy
Make sure the safety devices won't rest on top of the stoma
or appliance. Bring a small pillow, if possible, or check regarding
"handicap" accommodations.
The bigger problem will be the appliance filling up while you wait in line.
I have days (or months) that the stupid thing will have to be emptied every
15 minutes. It's due to what's called the "dumping syndrome", and not
too much we can do about it.
Keep in mind, that the pouch should be emptied when it's no more
than 1/3 full ! Bring spares, and a number of everything you'll need,
in case of a failure. If you manage to dislodge the appliance and
have to change it, you don't want to be caught without supplies!
Don't get sick worrying about what "might happen", just be prepared,
so -if- it does, you'll be able to get back to having fun quicker.
Oh... As an ostomate, you are entitled to "handicap" privileges
if/when you desire them. Exemption from jury duty, access to
bathroom facilities, etc., are available to you if you require them.
It's no shame to ask, since the "disability" isn't obvious.
If they refuse, hit them with a full bag.
Bottom line: Have fun.
(And don't molest Minnie).
John0 -
Well thenJohn23 said:Ups and downs may make you Goofy
Make sure the safety devices won't rest on top of the stoma
or appliance. Bring a small pillow, if possible, or check regarding
"handicap" accommodations.
The bigger problem will be the appliance filling up while you wait in line.
I have days (or months) that the stupid thing will have to be emptied every
15 minutes. It's due to what's called the "dumping syndrome", and not
too much we can do about it.
Keep in mind, that the pouch should be emptied when it's no more
than 1/3 full ! Bring spares, and a number of everything you'll need,
in case of a failure. If you manage to dislodge the appliance and
have to change it, you don't want to be caught without supplies!
Don't get sick worrying about what "might happen", just be prepared,
so -if- it does, you'll be able to get back to having fun quicker.
Oh... As an ostomate, you are entitled to "handicap" privileges
if/when you desire them. Exemption from jury duty, access to
bathroom facilities, etc., are available to you if you require them.
It's no shame to ask, since the "disability" isn't obvious.
If they refuse, hit them with a full bag.
Bottom line: Have fun.
(And don't molest Minnie).
John
BRING EM ON!!!0 -
try it
Hi Brooks,
At least Disneyland doesn't have the real extreme rides likes Knotts or Six Flags has. There's only one or two at Disneyland. Maybe try a colostomy belt to hold the bag close to your body like someone above who's husband wears one recommended. I don't have a bag myself, but I imagine it would be wise to make sure it's empty or close to it right before you get in line for that particular ride. Also note (having been to Disneyland not too long ago) that it seems like the line for Space Mountain is the best at night than in the daytime. That's probably the case for most of the "good' rides- the last couple of hours before closing are the best for shorter lines, if you can last that long. (lines are subject to change and the writer cannot be held responsible- lol!Also, if you do happen to have an accident, it will be dark and close to going-home time, lol!)
Hope you have a great time!
Lisa0 -
let us know...
Brooks, I am having the same thoughts and am in the same situation. I am waiting to book our trip until after I meet with my surgeon on March 8th. Not sure when my reversal will be and if before or after would be better! The thought of either sends me into a panic. Let us know how things work out and especially how rides like Thunder Mountain, Splash Mountain and Space Mountain work out. I hope you have a great time and don't have any unexpected splashes of your own to contribute to the rides.
Rick0 -
Don't see why not
My dad had a colostomy bag for almost thirty year and did lots of stuff including mining. I don't see why it should really slow you down unless you are uncomfortable with it. Most people that have this procedure now a days are lucky in that it is a temporary thing whesas with my dad it was permanent so he just had to learn to live with it.
Go For it and Have Fun!!0 -
Colostomy vs Ileostomylmchils57 said:Don't see why not
My dad had a colostomy bag for almost thirty year and did lots of stuff including mining. I don't see why it should really slow you down unless you are uncomfortable with it. Most people that have this procedure now a days are lucky in that it is a temporary thing whesas with my dad it was permanent so he just had to learn to live with it.
Go For it and Have Fun!!
Brooks has an Ileostomy (so do I).
A colostomy is part of the colon, and the waste is just about
the same as what you would normally expel from your anus.
They disconnect a section of the colon from the rectum, and
push the intestine out of a hole they make in the body, and
an "appliance" (bag) is worn to catch the waste. Since the
frequency of output and consistency isn't changed too much,
it's "business as usual", only into a pouch instead of the toilet.
An Ileostomy is when they disconnect the small (upper) intestine
from the large (lower/colon) intestine. They also remove what
is called the Ileocecal valve, which is part of the colon.
That valve keeps waste from the colon from backing up into
the small intestines, and also is used to regulate the flow of
digested food into the colon. So without that valve, the stuff
just moves straight through and out into the pouch without
any regulation.
The output of digested food into the pouch, is mostly liquid,
since the now missing colon isn't there to absorb the remaining
liquid from the digested food. It's like having diarrhea 24/7/365.
The output is also extremely acidic, and leakages can cause
severe skin reactions. Having any sore near the area of the
stoma can prevent the appliance from sticking the way it should
(if it sticks at all).
With an ileostomy, the frequency of expelling the digested food
can be between four hours or 15 minutes, as any ileostomate
will tell you; a far cry from the 4+ hours or more, from a colostomy.
It's for that reason, that an ileostomate has more to be concerned
with, when travelling into unfamiliar territory, or anyplace......
Life's not impossible, it's just a pain in what used to be a butt.0 -
Wow did not know the differenceJohn23 said:Colostomy vs Ileostomy
Brooks has an Ileostomy (so do I).
A colostomy is part of the colon, and the waste is just about
the same as what you would normally expel from your anus.
They disconnect a section of the colon from the rectum, and
push the intestine out of a hole they make in the body, and
an "appliance" (bag) is worn to catch the waste. Since the
frequency of output and consistency isn't changed too much,
it's "business as usual", only into a pouch instead of the toilet.
An Ileostomy is when they disconnect the small (upper) intestine
from the large (lower/colon) intestine. They also remove what
is called the Ileocecal valve, which is part of the colon.
That valve keeps waste from the colon from backing up into
the small intestines, and also is used to regulate the flow of
digested food into the colon. So without that valve, the stuff
just moves straight through and out into the pouch without
any regulation.
The output of digested food into the pouch, is mostly liquid,
since the now missing colon isn't there to absorb the remaining
liquid from the digested food. It's like having diarrhea 24/7/365.
The output is also extremely acidic, and leakages can cause
severe skin reactions. Having any sore near the area of the
stoma can prevent the appliance from sticking the way it should
(if it sticks at all).
With an ileostomy, the frequency of expelling the digested food
can be between four hours or 15 minutes, as any ileostomate
will tell you; a far cry from the 4+ hours or more, from a colostomy.
It's for that reason, that an ileostomate has more to be concerned
with, when travelling into unfamiliar territory, or anyplace......
Life's not impossible, it's just a pain in what used to be a butt.
Wow did not know the difference, thanks for telling me. My dad went through his colon cancer when I was only 13 and I was not really in the loop about things and that was long before the internet and research on the subeject was so readily available. I hate to say it I am not sure I would have totally investigated it then as with a lot of 13 yr olds I was pretty self involved I would like to think that if my mom and dad had really sat me down and talked to me about it I would have gotten more involved in it but that is neither here nor there. It is good to know what the difference is since we have no idea what our son is now going to be facing as he travels this new road life has sent him on. Since surgery on the colon has not been ruled out it is hard to say what he may end up with so getting the facts on all of it is so very important for us.
I have read many of your posts and you are an inspirations to many with your positive attitude. I have loved reading the things you have posted. Thanks!!!0 -
If my guts pop out?
Well.. The way I look at it. If my guts pop out on a cool ride it sure beats them poping out while sitting at home!! LOL
Bring it on BABY!!!
Brooks0
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