i feel like im dieing and no one wants to talk about it

mandm2
mandm2 Member Posts: 2
edited March 2014 in Lung Cancer #1
I have just been dx with sclc after surviving squamous 3b lc .Now doing chemo again with vp16
and this makes me feel like i'm going to die. I have already done radiation and the new cancer
is just below the field. You don't hear of anyone surviving small cell. If your out there I need to hear how long I have. I look healthy but feel like **** and very scared chased with depression.

Comments

  • medi_2
    medi_2 Member Posts: 505 Member
    #2
    surviving
    Hi! There are plenty of people here who have survived small cell! Me included ;) Just keep reading histories and Don't give up!
    Medi
  • cobra1122
    cobra1122 Member Posts: 244
    #3
    I was diagnosised with stage 4 lung cancer in both lungs with mets to the lymphs in 2008, I had SCLC in the right lung and NSCLC in the left lung and lymphs.
    I did 8 sections of chemo, Carboplatin, Taxol, and Avastin, mine was more pallative care to keep in in check and possible shrink it. Well, although I had to stop because of complications it bought me more time and I am thankful for that.
    I wasnt a canidate for surgery because of the number of tumors and their sizes, but the chemo helped. If you read my bio you will see I have a very complicated health status. As of Jan/Feb 09 I was put on Hospice because of my heart and the advancment of the cancer, but I am still going, 2+yrs and I am still doing ok.
    NO ONE can tell you how long you have, because no one knows forsure. I have outlived every Prognosis I have been given. If you throw in the towel then your chances of survival are very low, but if you fight and keep a positive attitude you have a better chance. But no one can say forsure, but I would rather think positive and enjoy the live I have than wasted it on worring about things I cant control.
    You cant live in the future, so live for today, the future will be here soon enough. I hope that you will give yourself some positive imput and cherish the time you do have. I know of several people who I hung out with that have passed away suddenly, not do to cancer, but without warning, we are all sick or not in the same boat. No One promised any of us tomorrow, thats while you cherish today...

    Prayers and Best Wishes to You, and Your family..
    Dan (cobra1122) and Margi Harmon
  • pkaz53
    pkaz53 Member Posts: 84
    #4
    cobra1122 said:

    I was diagnosised with stage 4 lung cancer in both lungs with mets to the lymphs in 2008, I had SCLC in the right lung and NSCLC in the left lung and lymphs.
    I did 8 sections of chemo, Carboplatin, Taxol, and Avastin, mine was more pallative care to keep in in check and possible shrink it. Well, although I had to stop because of complications it bought me more time and I am thankful for that.
    I wasnt a canidate for surgery because of the number of tumors and their sizes, but the chemo helped. If you read my bio you will see I have a very complicated health status. As of Jan/Feb 09 I was put on Hospice because of my heart and the advancment of the cancer, but I am still going, 2+yrs and I am still doing ok.
    NO ONE can tell you how long you have, because no one knows forsure. I have outlived every Prognosis I have been given. If you throw in the towel then your chances of survival are very low, but if you fight and keep a positive attitude you have a better chance. But no one can say forsure, but I would rather think positive and enjoy the live I have than wasted it on worring about things I cant control.
    You cant live in the future, so live for today, the future will be here soon enough. I hope that you will give yourself some positive imput and cherish the time you do have. I know of several people who I hung out with that have passed away suddenly, not do to cancer, but without warning, we are all sick or not in the same boat. No One promised any of us tomorrow, thats while you cherish today...

    Prayers and Best Wishes to You, and Your family..
    Dan (cobra1122) and Margi Harmon

    Survivor
    We're here I'm a 6 year survivor of small cell lung cancer
  • cobra1122
    cobra1122 Member Posts: 244
    #5
    cobra1122 said:

    I was diagnosised with stage 4 lung cancer in both lungs with mets to the lymphs in 2008, I had SCLC in the right lung and NSCLC in the left lung and lymphs.
    I did 8 sections of chemo, Carboplatin, Taxol, and Avastin, mine was more pallative care to keep in in check and possible shrink it. Well, although I had to stop because of complications it bought me more time and I am thankful for that.
    I wasnt a canidate for surgery because of the number of tumors and their sizes, but the chemo helped. If you read my bio you will see I have a very complicated health status. As of Jan/Feb 09 I was put on Hospice because of my heart and the advancment of the cancer, but I am still going, 2+yrs and I am still doing ok.
    NO ONE can tell you how long you have, because no one knows forsure. I have outlived every Prognosis I have been given. If you throw in the towel then your chances of survival are very low, but if you fight and keep a positive attitude you have a better chance. But no one can say forsure, but I would rather think positive and enjoy the live I have than wasted it on worring about things I cant control.
    You cant live in the future, so live for today, the future will be here soon enough. I hope that you will give yourself some positive imput and cherish the time you do have. I know of several people who I hung out with that have passed away suddenly, not do to cancer, but without warning, we are all sick or not in the same boat. No One promised any of us tomorrow, thats while you cherish today...

    Prayers and Best Wishes to You, and Your family..
    Dan (cobra1122) and Margi Harmon

    OOPs
    I was diagnosis with NSCLC in the right lung and lymphs and SCLC in the left lung. I had at that time multiple tumors in each lung and the lymphs so they decided, as did several other Docs that my only course of treatment was pallative care, but it did help so I cant say they didnt do their best.


    Pryaers to Everyone,
    Dan(cobra1122) Harmon
  • mandm2
    mandm2 Member Posts: 2
    #6
    cobra1122 said:

    OOPs
    I was diagnosis with NSCLC in the right lung and lymphs and SCLC in the left lung. I had at that time multiple tumors in each lung and the lymphs so they decided, as did several other Docs that my only course of treatment was pallative care, but it did help so I cant say they didnt do their best.


    Pryaers to Everyone,
    Dan(cobra1122) Harmon

    thanks for your reply
    what is pallative care?
  • cobra1122
    cobra1122 Member Posts: 244
    #7
    mandm2 said:

    thanks for your reply
    what is pallative care?

    Pallative care
    Basicly, it is to try to make things stay at the current level or slow the disease down while keeping the person as comfortable as possible. It is mainly for those of us that nothing else can be done. For me it bought me more time with my family, unfortunatly I am on Hospice for the last year and it appears to be getting worse quite quickly.But I havent given up yet.
    Our Prayers and Best Wishes,
    Dan (cobra1122) and Margi Harmon
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
    #8
    mandm2 said:

    thanks for your reply
    what is pallative care?

    palliative care
    I looked up some online definitions of 'palliative care' so that you might get a, well, a definitive answer to your question, but they were lacking. The ones I found suggested, in a nutshell, that palliative care is care that does not treat the disease but instead seeks to accommodate the body, mind and spirit of the patient as he or she approaches the end of life.

    This is not quite accurate, in my opinion. Palliative care INCLUDES treatment of the disease, by its very nature. As such, it offers hope for extended life, both qualitatively and quantitatively: live longer AND (perhaps) live with a level of pain and discomfort that is more or less tolerable while retaining the ability to enjoy aspects of life.

    It is a fine balance, to be sure, one that doctors and survivors have to wrestle with weekly, if not daily. How to deal with it is probably the most personal decision that we ever have to make.

    Take care,

    Joe
  • augigi
    augigi Member Posts: 89
    #9
    soccerfreaks said:

    palliative care
    I looked up some online definitions of 'palliative care' so that you might get a, well, a definitive answer to your question, but they were lacking. The ones I found suggested, in a nutshell, that palliative care is care that does not treat the disease but instead seeks to accommodate the body, mind and spirit of the patient as he or she approaches the end of life.

    This is not quite accurate, in my opinion. Palliative care INCLUDES treatment of the disease, by its very nature. As such, it offers hope for extended life, both qualitatively and quantitatively: live longer AND (perhaps) live with a level of pain and discomfort that is more or less tolerable while retaining the ability to enjoy aspects of life.

    It is a fine balance, to be sure, one that doctors and survivors have to wrestle with weekly, if not daily. How to deal with it is probably the most personal decision that we ever have to make.

    Take care,

    Joe

    Palliative care = treating
    Palliative care = treating the symptoms to make the patient have the best quality (rather than quantity) of life. In and of itself, that sometime involves treating disease to reduce symptoms, and may as a side bonus extend life. But the goal is comfort, or palliation of symptoms.

    My mother is under palliative care treatment with mesothelioma, and it's not going to be curative but they are doing chemo to reduce her shortness of breath and pain, which has also extended her life.

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