Diet with one Kidney

rosesbloom

Diet for One kidney

 

Does anyone know the current recommendations for the one kidney diet?  What should we eat and what should we avoid. What medications should we avoid?  I heard that all sodas diet or regular should be eliminated;  water is best.

I had a cyst that became malignant 5.9cm tumor in 2006. Now have cysts on the right kidney. Please email me the plan rosesbloom@hotmail.com

Phyllis

rosesbloom

PiperPilot said:

Vegan diet and additional supplements are both essential
Two years ago (May 2010) I had a left kidney nephrectomy due to a tumor, "the size of a grapefruit" being discovered inside it. The biopsy showed I had chromophobe cells. At that time there was no other cancer found in me. Subsequent CT scans done every 4 months were clear until this past July - when mets were found at the base of my spine (sacrum) and on my left femur (thigh).

At that point I immediately went "mostly" vegan - that is, absolutely no meat (with the exception of some fish) and no diary products. I also began a regime of taking over 16 natural nutritional/anti-inflammatory/anti-cancer/hormonal supplements. Details of this approach are outlined in the book: "Life Over Cancer" by Dr. Keith I. Block. I highly recommend reading it. I also recommend looking into what the Block Integrative Cancer Center in Skokie, IL is doing. [No, I am not on their payroll. Nor do I sell any supplements, etc.]

However, I can tell you my own anecdotal testimonial about using supplements and changing my diet. Before I started taking these supplements I was in almost constant pain. I was walking with a slight limp and I could not walk up the stairs "normally" (I could only manage one step at a time). I could only control a constant dull, throbbing pain in my left thigh by taking the maximum dosage of Ibuprofen (400mg) every 6 hours. And even that would fail occasionally. However, a few days after I began following this supplement regime the pain started to recede. Soon I was able to stop taking any Ibuprofen at all. I became completely pain-free and have been ever since. That was over 2 months ago.

I also began taking Sutent (Sunitinib) over four weeks ago (50mg/day - 4wks on/2wk off). I had only one side effect from it. In the 3rd week I lost my sense of taste. But I attribute the fact that this was the only side effect I suffered both to taking supplements daily and to the (mostly) vegan diet that I adopted. BTW, the folks at the Block Integrative Cancer Center also suggested a supplement to take for this: 20-30grams of L-Glutamine mixed in water 2X/day. In a few days I got about 90% of my normal taste back. Right now I am in the middle of my 2wk break from Sutent so all taste is totally back to normal.

Just read the book: http://www.lifeovercancer.com/

I am happy to share the actual supplements I am taking. I am also taking a natural anti-angiogenic extract called TBL-12/Sea Cucumber. Go here and download the angiogenic research article about it: http://sea-cucumber.com/. It is now in a Phase II Clinical trial. [No, I am not on the payroll of these folks either.]

Piper shared

Thank you Piper for sharing. How are you today?

Please keep in touch:  rosesbloom@hotmail.com

Phyllis in California

NanoSecond

rosesbloom said:

Piper shared

Thank you Piper for sharing. How are you today?

Please keep in touch:  rosesbloom@hotmail.com

Phyllis in California

Update

Hi Phyllis,

Thank you for asking.  I have now been taking Sutent @50mg/day for just over one year.  My latest scans show either shrinkage or stability in all the 3 areas I have bone lesions.  The lesions on my left femur (of most concern since it is weight-bearing) are also showing only new bone growth.

In all of this time I have still not suffered any significant side effects.  That, I feel, is mostly due to my diet and certain supplements that I take.  I will be directly emailing you a detailed explanation of the science and rationale behind what I have been doing and my experimental clinical trial of n=1.

BTW, I initially registered here under the pseudonym "PiperPilot".  But for some reason I was blocked. So I then re-registered as "NanoSecond".

Best wishes,

 

-Neil (how everyone else knows me).

 

NanoSecond

rosesbloom said:

Piper shared

Thank you Piper for sharing. How are you today?

Please keep in touch:  rosesbloom@hotmail.com

Phyllis in California

Addendum

I forgot to add.  My diet has changed since I first posted back then.  I am no longer a "vegan fishnavore".  I have no major issues eating meat (if it is grass fed). I have made several changes to my diet as I have done further research and experimenting (on myself).

These changes, and others, are fully explained in the document I just sent to you.

 

Nothingtolose

ejneary said:

Dietician and Nephrologist Suggestions
In February, I had a radical right nephrecotmy to remove am 8CM RCC.

Since then, I have seen a dietician and a nephrologist. The following is a list of things that I was told through these visits:

The primary things to be concerned with as far as kidney health are

1. Blood pressure (Should be as low as possible) so reduce sodium (2-3G/day max)
2. Protein 1G/KG/day OR 1G/2.2lbs/day

So, if you are 165lbs, you can have a max of 75 grams of protein FROM ALL SOURCES

3. AVOID NSAI's (Ibuprofen, Motrin, Alieve)

Those were the big three from the Nephrologist.


The Nutritionist had the following advice:


In addition to lowering sodium and protein, you have to add high calorie foods to retain your weight. These include fats/oils, fruit juices and dried fruits. These will help replace the intake of calories from the elimination of protein and meats.

Foods to choose from the guide:

Milk: Fresh Whole or lowfat, 1/2 cup has 4 grams of protein

Meat: All types, Lean 7 grams of protein per ounce

Eggs: 1 egg equivalent to 1 ounce of lean meat 7 grams protein

Cheese: Same as meats, 1 ounce cheese has 7 grams protein

Beans: 1/2 Cup

Nuts: 1/4 Cup

other foods to eat...


Fruits (from 0 to 5 grams per 1/2 cup serving depening on fruit)

Other sources of protein are in breads as follows:

the following are worth 2 grams of protein each:

1 slice of bread
1/2 bagel
1/2 hamburger bun
1/2 english muffin
4 medium bread sticks
5 low sodium crackers
and the list goes on. This can be found online...

Vegtables contain some protein but they are generally low in protein which is a great reason to start eating more of them as they have lots of benefit, health wise, and you can eat more without going over the protein limit. Same with fruit.

The bottom line is stated above in the list of things to avoid, salt, lot of protein and NSAID drugs.

I have a pamphlet that talks about dietary needs if anyone would like a copy, i can scan it in and email...

Good luck!!!

John

I Want a copy of your phamplet..

hello Sir John,

Good day to you,

i was newly registered here in CSN,and i found your message interesting i was a newly operated in left kidney because they found that a i have stage 2 cancer and im just finish my follow up check up my doctor advise to lessen to eat the protein salt and sugar because my uric acid is high but i teally dont know what food is that..so i tried to search in the internet then i found this page and when i read your message i feel grateful especially when you said that you can scan the copy of the phamplet that you..please sir if you can give me too..thank you very much and God bless you..

 

nothing to lose,

Footstomper

Food

Im very fond of steak and kidney pie

MattInVa

Deaconsdc said:

Increased Appetite Anyone?
I had my radical nephrectomy 3 weeks ago and had 8.5cm tumor that was Papillary RCC. My appetite since has nearly doubled what it was before. Has anyone else experienced this? I literally feel hungry all the time. I realize some of this could be boredom hunger as I've been home sick, but was wondering what others experienced? Thanks and best wishes to you all!

Weight Loss

In the months before my discovery of my stage IV Grade IV Toomy, I had lost about 15-20 pounds through not eating as much. Not much apetite. Since my surgery my appetite is back along with the lost 15 pounds.

 

Ree_Maryland

ejneary said:

Dietician and Nephrologist Suggestions
In February, I had a radical right nephrecotmy to remove am 8CM RCC.

Since then, I have seen a dietician and a nephrologist. The following is a list of things that I was told through these visits:

The primary things to be concerned with as far as kidney health are

1. Blood pressure (Should be as low as possible) so reduce sodium (2-3G/day max)
2. Protein 1G/KG/day OR 1G/2.2lbs/day

So, if you are 165lbs, you can have a max of 75 grams of protein FROM ALL SOURCES

3. AVOID NSAI's (Ibuprofen, Motrin, Alieve)

Those were the big three from the Nephrologist.


The Nutritionist had the following advice:


In addition to lowering sodium and protein, you have to add high calorie foods to retain your weight. These include fats/oils, fruit juices and dried fruits. These will help replace the intake of calories from the elimination of protein and meats.

Foods to choose from the guide:

Milk: Fresh Whole or lowfat, 1/2 cup has 4 grams of protein

Meat: All types, Lean 7 grams of protein per ounce

Eggs: 1 egg equivalent to 1 ounce of lean meat 7 grams protein

Cheese: Same as meats, 1 ounce cheese has 7 grams protein

Beans: 1/2 Cup

Nuts: 1/4 Cup

other foods to eat...


Fruits (from 0 to 5 grams per 1/2 cup serving depening on fruit)

Other sources of protein are in breads as follows:

the following are worth 2 grams of protein each:

1 slice of bread
1/2 bagel
1/2 hamburger bun
1/2 english muffin
4 medium bread sticks
5 low sodium crackers
and the list goes on. This can be found online...

Vegtables contain some protein but they are generally low in protein which is a great reason to start eating more of them as they have lots of benefit, health wise, and you can eat more without going over the protein limit. Same with fruit.

The bottom line is stated above in the list of things to avoid, salt, lot of protein and NSAID drugs.

I have a pamphlet that talks about dietary needs if anyone would like a copy, i can scan it in and email...

Good luck!!!

John

kidney diet

Could I please have a copy of the diet?I had rcc in April 2014, had right kidney removed. thanks ,if not that is ok too   paqrats@msn.com

Footstomper

Deaconsdc said:

Increased Appetite Anyone?
I had my radical nephrectomy 3 weeks ago and had 8.5cm tumor that was Papillary RCC. My appetite since has nearly doubled what it was before. Has anyone else experienced this? I literally feel hungry all the time. I realize some of this could be boredom hunger as I've been home sick, but was wondering what others experienced? Thanks and best wishes to you all!

The Hunger Games

I was on steroids after my op and ate myself to fitness (fatness post op). Found a great recipre for steak and oyster pie.

samidive

bladder cancer

Firstly,let me wish all members the best of health for the new year and onward. In 6/2017 i had left kidney removed due to tcc.In 10/2017 i had cystostomy in office and dr, removed small tissue from bladder. Result came back as tcc,papillary . Presently awaiting results of hospital removal of 5 small bladder tumors. It is 10 days since procedure and urgency is improved though still have discomfort at start of urination.Does anyone know if this is common after this procedure? Was given perithrin but only took it once since i feel it could cause acute damage to remaining kidney.