Large cell lymphoma
Comments
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LGL Lymphoma
I'm so sorry to hear about your Dad. I'm 48 and was recently diagnosed this last Monday with chronic LGL leukemia. From what I understand, it's also known as LGL Leukemia, so you might want to visit the Leukemia discussion board, enter LGL in the search field and you'll find it. How was this linked to shingles? Dr Tom Loughran at Penn State Cancer Center is one of the leaders in research. Chempath is a drug that seems to be helping some people with this disease. As you know the information on this type of cancer is not very abundant, hopefully you can find some answers. Prayers, LC0 -
Large Cell Lymphoma
Hi,
I have anaplastic large cell lymphoma, and have been thru surgery (while it was cutaneous), chemo, and a full allogeneic SCT (matched sibling donor). I've never heard of it mutating as you say. Usually systemic aggressive lymphoma requires more than surgery as a tx.
I am on the NHLcyberfamily yahoo elist, and there are a few of us there with aggressive large cell lymphoma. The group owner is very knowledgeable and I think you'd get a lot of support there.
Hope you have more answers by now!0 -
anaplastic large cell lymphomaSusanFedorka said:Large Cell Lymphoma
Hi,
I have anaplastic large cell lymphoma, and have been thru surgery (while it was cutaneous), chemo, and a full allogeneic SCT (matched sibling donor). I've never heard of it mutating as you say. Usually systemic aggressive lymphoma requires more than surgery as a tx.
I am on the NHLcyberfamily yahoo elist, and there are a few of us there with aggressive large cell lymphoma. The group owner is very knowledgeable and I think you'd get a lot of support there.
Hope you have more answers by now!
Hi SusanFedorka~~
was wondering if you have alk negative or alk positive ALCL. I have ALCL alk neg. Was diagnosed Jan. 2009, underwent CHOEP (chop with addition of etoposide) and radiation. Cancer relapsed 2 months later. Went on the SGN-35 study which put the cancer into remission after just 4 treatments. Recently underwent an autologous stem cell transplant...am only day 20, but doing well. I am interested in your treatments. Did you undergo an auto transplant before the allo transplant? They wanted to do an auto transplant in tandem with my auto SCT but my brother was not a match.
Take Care and God bless,
Carrie0
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