Neuropathy

jean b
jean b Member Posts: 77
edited March 2014 in Ovarian Cancer #1
Finished 6 rounds of Gemzar/cysplatin followed by 2 treatments of Gemzar/carboplatin. The neuropathy in my fingers, toes and part of my feet is awful. Taking a medication to help but so far has done nothing. I see the doctor next week and hope we can increase my med.
Also have a CT scan this Friday to see how I have fared. Wishe me luck!!!

Comments

  • LPack
    LPack Member Posts: 645
    #2
    Jean
    Good to hear from you. I am now on Gem/carbo for at least 3 more treatments. Praying no evidence.

    Love,
    Libby
  • MK_4Dani
    MK_4Dani Member Posts: 314
    #3
    8 rounds!
    Congrats for getting thru 8 rounds. I wish you good luck for your scans. I also hope the neuropathy gets better. I have a little in my fingers but mostly in my ankles and feet. The most annoying is the discloration and sensitive fingernails/toenails. Do you have this?
    MK
  • LPack
    LPack Member Posts: 645
    #4
    MK_4Dani said:

    8 rounds!
    Congrats for getting thru 8 rounds. I wish you good luck for your scans. I also hope the neuropathy gets better. I have a little in my fingers but mostly in my ankles and feet. The most annoying is the discloration and sensitive fingernails/toenails. Do you have this?
    MK

    MK
    I actually lost both my big toe nails during chemo first time around - go figure!!

    Libby ☺
  • lebacks1
    lebacks1 Member Posts: 2
    #5
    neuropathy
    I had neuropathy with Gemzar/cysplatin. While on those chemo drugs and ever since then my doctor told me to take vitamin B-6. My neuropathy is gone. Just give it time if you start the B-6. It took over a year for it to get better. I am in my 3 time of different chemo drugs and I still continue to take B-6 for primary peritoneal cancer.
  • Mwee
    Mwee Member Posts: 1,338
    #6
    Friday's CT
    Best of luck with your CT and congrats for getting through your all your treatment. I have neuropathy in my feet and toes with the carbo/taxol. I had it the last time I went through chemo and it mostly disappeared, but it takes time.
    (((HUGS))) Maria
  • azgrandma
    azgrandma Member Posts: 609 Member
    #7
    Mwee said:

    Friday's CT
    Best of luck with your CT and congrats for getting through your all your treatment. I have neuropathy in my feet and toes with the carbo/taxol. I had it the last time I went through chemo and it mostly disappeared, but it takes time.
    (((HUGS))) Maria

    Me too
    I take taxol and charboplatin or something like that and the neuropothy is very bad.
    the pads of my feet , it goes all the way up my leg with the tingle

    The tingle and numbness and stifness is in hands

    I hate this feeling, they are cutting my chemo back some as they said if they didn't it may stay permenetally.
  • jean b
    jean b Member Posts: 77
    #8
    MK_4Dani said:

    8 rounds!
    Congrats for getting thru 8 rounds. I wish you good luck for your scans. I also hope the neuropathy gets better. I have a little in my fingers but mostly in my ankles and feet. The most annoying is the discloration and sensitive fingernails/toenails. Do you have this?
    MK

    Hi MK: I don't have the
    Hi MK: I don't have the discoloration but my feet, ankles and fingers are really bad. They put me on something called neurontin. I don't thinkj it is really ding anything to help. I hope in time these symptoms will disappear.
    Jean
  • jean b
    jean b Member Posts: 77
    #9
    lebacks1 said:

    neuropathy
    I had neuropathy with Gemzar/cysplatin. While on those chemo drugs and ever since then my doctor told me to take vitamin B-6. My neuropathy is gone. Just give it time if you start the B-6. It took over a year for it to get better. I am in my 3 time of different chemo drugs and I still continue to take B-6 for primary peritoneal cancer.

    Thanks for your reply. I
    Thanks for your reply. I had neuropathy ablut 3 years ago, but it was nothing like this time. I get out of bed in the morning and feel like a cripple. I teach preschool and it is difficult at times, especially when trying to do something with my fingers. I took B6 for a short time and then they put me on neurontin. I haven't really seen any change.
    Jean
  • jean b
    jean b Member Posts: 77
    #10
    azgrandma said:

    Me too
    I take taxol and charboplatin or something like that and the neuropothy is very bad.
    the pads of my feet , it goes all the way up my leg with the tingle

    The tingle and numbness and stifness is in hands

    I hate this feeling, they are cutting my chemo back some as they said if they didn't it may stay permenetally.

    Sounds like your neuropathy
    Sounds like your neuropathy is about the same level as mine. I cannot believe how it radiates up my legs too. A very weird feeling. How long have you been like this?
    Jean

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