No Remission....Which you all knew

Lisa13Q
Lisa13Q Member Posts: 677
edited March 2014 in Ovarian Cancer #1
ok, so bad new,, CA-125 is up...NO remission....cancer growing back fast...sucko...All this fighting for what? Sorry..I'm sad.....Updates later...

Comments

  • Barbara53
    Barbara53 Member Posts: 652
    #2
    not fighting for nothing
    I understand your disappointment, but I must point out that, thanks to you and your sister, your mother has been able to fight the battle with all her might. She gave it her best shot, so she should not be bothered as much by the "if only I had..." questions that keep us up at night. Maybe when she feels better you can talk about it.

    The one thing I constantly must remind myself of, as a caregiver, is that I am not in charge and this is not about me. I may not agree with my mother's treatment decisions, but they are hers to make and mine to support.
  • saundra
    saundra Member Posts: 1,370 Member
    #3
    Sorry
    Dear Lisa, I am so sorry that you got this news. I don't know why the chemo just does not do the job for some of us from the first. At lease the first round. I have a friend whose sister in law is acting the same.
    It just points to the fact that we are all wonderfully different in our complex bodies. I know that you are sad and disappointed and that is certainly just how you should be feeling. We all would, in your shoes at this time. You have done everything a daughter can do. Sometimes we just have to cry. (((Hugs to you and your family))) Saundra
  • Linn1
    Linn1 Member Posts: 47
    #4
    Thinking of you
    it sounds like you have guided your mom to get the best possible care out east, as you said, her doctor is the "go to" guy in ny. Maybe her body just needs some rest after this latest round of treatment. At least you are with her, your sister can take a break, and as a family you can make some decisions that make sense for all of you. I am sorry your holiday from work won't be a vacation...this disease doesn't seem to let any of us relax too long.
    I just heard of a chemical cocktail they are using at Rush University in Chgo and seeing some success. A combination of Avastin,w/methotrex w/cytoxan. Something to pass on if it hasn't been tried yet. Good luck, try to rest. Thinking of you.
    Lynn
  • dorion
    dorion Member Posts: 183
    #5
    Oh Sweetie.....
    I am so sorry Lisa, this is devestating news, but we have to keep our chin up and try try to stay focused and possitive. I know it's hard at times but we have to take one baby step at a time. I know your sadness, I know the fear, that's all I've been feeling lately too, with my cancer showing signs of progression and all I can think is will I make it to the summer, but then I have to stuff that negativity and still remain calm.

    I have an 11 year old beautiful daughter who absolutely needs me and loves me to no end, the thought of leaving her is just so not a possibility !!! I will fight and fight and fight, you do the same Woman!!!!! You and me, we are in the right place right here with the rest of these wonderful ladies, we are hear for stregnth and support. I love you and I like the rest of the ladies are here for you, always. Keep coming back here ok????
    Linda
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #6
    dorion said:

    Oh Sweetie.....
    I am so sorry Lisa, this is devestating news, but we have to keep our chin up and try try to stay focused and possitive. I know it's hard at times but we have to take one baby step at a time. I know your sadness, I know the fear, that's all I've been feeling lately too, with my cancer showing signs of progression and all I can think is will I make it to the summer, but then I have to stuff that negativity and still remain calm.

    I have an 11 year old beautiful daughter who absolutely needs me and loves me to no end, the thought of leaving her is just so not a possibility !!! I will fight and fight and fight, you do the same Woman!!!!! You and me, we are in the right place right here with the rest of these wonderful ladies, we are hear for stregnth and support. I love you and I like the rest of the ladies are here for you, always. Keep coming back here ok????
    Linda

    Thank You all for your encouragement
    Thank you Thank you Thank You all for your encouragement. Yes, we cannot give up fighting. A friend of my sister who was diagnosed with stage 4 cancer in January is dancing with NED. She called my mother this am, when we got news that she had to stay in hospital yet another night. Beth was sooo encouraging.....NEVER EVER GIVE UP she said....I go back to a post Saundra wrote earlier (who knows when). Only GOD knows what will happen........No one else can say. Mom's blood counts are so low today. WBC .1 and she still cannot maintain her sodium. Dialysis team coming in to see why. We're not concerned with kidney failure as they are filtering the toxins, they are just not holding her sodium. Given that her blood counts dropped so much last night, I have decided to interpret that as God's way of letting us all know he is there. Low counts mean that the chemo is killing all cells....so maybe after yesterday's bad news, he got in there and told the chemo to start working more because look today...this is probably crazy but....who knows.........None of us can give up hope....none of us!!! Mom cannot take one more sodium, magnesium, or potassium pill, they are so big and she feels so small. So I am off to Haagen Daaz and getting a coffee milkshake (her favorite) and mixing up an electrolyte special!!! Love to you all....There is always hope....
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #7
    dorion said:

    Oh Sweetie.....
    I am so sorry Lisa, this is devestating news, but we have to keep our chin up and try try to stay focused and possitive. I know it's hard at times but we have to take one baby step at a time. I know your sadness, I know the fear, that's all I've been feeling lately too, with my cancer showing signs of progression and all I can think is will I make it to the summer, but then I have to stuff that negativity and still remain calm.

    I have an 11 year old beautiful daughter who absolutely needs me and loves me to no end, the thought of leaving her is just so not a possibility !!! I will fight and fight and fight, you do the same Woman!!!!! You and me, we are in the right place right here with the rest of these wonderful ladies, we are hear for stregnth and support. I love you and I like the rest of the ladies are here for you, always. Keep coming back here ok????
    Linda

    Dear Linda
    Thank you so much and NO YOU CANNOT LEAVE YOUR DAUGHTER. I will pray and pray and pray that does not happen. I am not going anywhere either. I am committed to fighting this dreaded disease. It's ugly and has to be stopped...Praying for you AND your daughter...God Bless!
  • BrittanyC
    BrittanyC Member Posts: 100
    #8
    Lisa13Q said:

    Dear Linda
    Thank you so much and NO YOU CANNOT LEAVE YOUR DAUGHTER. I will pray and pray and pray that does not happen. I am not going anywhere either. I am committed to fighting this dreaded disease. It's ugly and has to be stopped...Praying for you AND your daughter...God Bless!

    Lisa, your mom takes
    Lisa, your mom takes nutrients through a pill? My mom was on TPN, which gives her nutrients. I am not sure if you have heard of this.

    My mom's gyno/oncologist had put her on carbo/taxol for 7 rounds and after that, the CA went up again. My mom kept on having one bowel obstruction after another until she went back into the hospital in November. She received Gemzar, but that completely knocked her out, and her blood platelets went very low.

    I am very sorry to hear about your mom. She sounds like a strong woman and will not give up. Please keep us all posted.
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #9
    Hugs
    Dear Lisa, this news is always such a hard blow.. so sending lots of hugs ♥ prayers from another survivor that has not heard remission. Hugs Bonnie

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