stage 4 in one year

kenbaker329
kenbaker329 Member Posts: 2
edited March 2014 in Kidney Cancer #1
My first indication that I had Kidney Cancer was blood in my urine, this was in Sept. 2008, which led to test that showed a tumor on my right kidney. Then in October 2008 I had a radical nephrectomy of the right kidney. After surgery they informed me that they felt it had not metastasized at that time. 3 mts later cscan test were clear no tumors. Then in May 2009 my cscan showed mets to the right lung, with3 small tumors. I had surgery and the tumors were in June 2009. Then in November 2009 my cscan showed 4 new small tumors, 2 in the right lung and 2 in the left lung. I will start sutent 11/15/09.

Comments

  • naniz
    naniz Member Posts: 12
    #2
    Your story is so much like mine I began to cry.
    I had blood in urine on Sept 26, 2008. I had my right kidney removed on Oct 13, 2008. Found 4 tumors in lungs. Started on Velban and Nexavar ( simular to Sutent) 3 tumors were slowing down and shrank a little bit. One tumor was stubborn and kept growing, nothing was stopping it.

    On my own I began an all Natural treatment. I started on first week of April 2009. On June 28th 2009 I had a CT scan and a PET Scan. On June 29,2009 the doctor said that all 4 tumors had disappeared. We stopped all Chemo. I have another CT and Pet scan on December 15, 2009, but I am confident that all will be OK since I continue taking the natual products. I know this is hard to believe but this is all true. Please, please contact me.

    lucy.andres@sbcglobal.net
  • tm
    tm Member Posts: 3
    #3
    naniz said:

    Your story is so much like mine I began to cry.
    I had blood in urine on Sept 26, 2008. I had my right kidney removed on Oct 13, 2008. Found 4 tumors in lungs. Started on Velban and Nexavar ( simular to Sutent) 3 tumors were slowing down and shrank a little bit. One tumor was stubborn and kept growing, nothing was stopping it.

    On my own I began an all Natural treatment. I started on first week of April 2009. On June 28th 2009 I had a CT scan and a PET Scan. On June 29,2009 the doctor said that all 4 tumors had disappeared. We stopped all Chemo. I have another CT and Pet scan on December 15, 2009, but I am confident that all will be OK since I continue taking the natual products. I know this is hard to believe but this is all true. Please, please contact me.

    lucy.andres@sbcglobal.net

    I'm sorry to hear your story
    What grade and stage are you? My husband had a partial nephrectomy a month ago, there was a positive margin left. He is stage 1 grade 2. Our surgeon said that he has a 98 percent of survival. How does he know this? He has a chronic cough, been loosing half pound a day, extremely tired, when will he start to feel better? It was a clear cell carcinoma on the superior pole, right kidney.
  • lauramaze
    lauramaze Member Posts: 4
    #4
    naniz said:

    Your story is so much like mine I began to cry.
    I had blood in urine on Sept 26, 2008. I had my right kidney removed on Oct 13, 2008. Found 4 tumors in lungs. Started on Velban and Nexavar ( simular to Sutent) 3 tumors were slowing down and shrank a little bit. One tumor was stubborn and kept growing, nothing was stopping it.

    On my own I began an all Natural treatment. I started on first week of April 2009. On June 28th 2009 I had a CT scan and a PET Scan. On June 29,2009 the doctor said that all 4 tumors had disappeared. We stopped all Chemo. I have another CT and Pet scan on December 15, 2009, but I am confident that all will be OK since I continue taking the natual products. I know this is hard to believe but this is all true. Please, please contact me.

    lucy.andres@sbcglobal.net

    need ur help
    HI could you please tell me more about Velban and Nexavar? My husband has stage 4 collecting duct carcinoma- a very, very, rare kidney cancer. He has had no luck with cheemo and sutent. He is 28 and needs a miracle..........Thank you, Laura
  • lauramaze
    lauramaze Member Posts: 4
    #5
    naniz said:

    Your story is so much like mine I began to cry.
    I had blood in urine on Sept 26, 2008. I had my right kidney removed on Oct 13, 2008. Found 4 tumors in lungs. Started on Velban and Nexavar ( simular to Sutent) 3 tumors were slowing down and shrank a little bit. One tumor was stubborn and kept growing, nothing was stopping it.

    On my own I began an all Natural treatment. I started on first week of April 2009. On June 28th 2009 I had a CT scan and a PET Scan. On June 29,2009 the doctor said that all 4 tumors had disappeared. We stopped all Chemo. I have another CT and Pet scan on December 15, 2009, but I am confident that all will be OK since I continue taking the natual products. I know this is hard to believe but this is all true. Please, please contact me.

    lucy.andres@sbcglobal.net

    need ur help
    HI could you please tell me more about Velban and Nexavar? My husband has stage 4 collecting duct carcinoma- a very, very, rare kidney cancer. He has had no luck with cheemo and sutent. He is 28 and needs a miracle..........Thank you, Laura
  • lyyams
    lyyams Member Posts: 9
    #6
    kidney cancer
    I am sorry to hear your cancer has spread. My husband was diagnosed with k. cancer in dec.09 and had his right kidney removed 1/2010. All of the kidney was removed and said that there were no lymph nodes affected. Did they tell you about your pathology report? did you have positive margins? did they say why they think it has spread? hope you are doing well.....what an awful disease.

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