All Sisters please read and coment... It's all about us!!!
The voice of the Patient:
Every step of our Journey is so frightening!! I cannot express enough how emotional it is and how easy it is to go from laughing to crying in a split second. Our bodies have betrayed us and we have no idea in the beginning of what lies ahead. I have gathered info from not only my experiences but from my Sisters in pink all across the US and Canada. This is our voice and I am honored to be chosen to represent my Fellow Sister Warriors. From personal experience I know our Future Sisters in Pink will have a tough road ahead and anything I can do to make their journey more comforting will make my Heart and Journey complete.
1- Remember our Names
2- Treat us with compassion, dignity, respect, and a lot of sensitivity
3- Complete Honesty. Don’t spare the details unless we can’t handle them
4- Be very patient with us until we have asked every question we can think of and we completely understand.
5- Sit in a chair across from us and look us in the eye. Especially on all first time visits with the various Doctors
6- Inquire if we are going to need financial assistance and direct us on how to go about it.
7- Create a Sister program for newly DX Brest Cancer patients. Pair them with one of us or hire a full time Sister in Pink to be there every step of the way.
8- Create a folder with information about our particular cancer and suggested reading material ie. The Breast Book by Dr. Susan Love. Different drugs and side effects, local support groups, suggested web sites, when you should call the doctor.
9- HUGS.. Can’t seem to get enough
1- Explain every step. What the medicine is and what all possible side effects might be
2- Have suggestions for what to take for possible side effects
3- Suggestions for foods to stay away from and those which may be tolerated more easily.
4- Have volunteers to sit with those who have no one to be there for them.
5- Warm blankets, pillows, snacks, movies, cards, puzzles, books.
6- Little gifts for milestones met.
7- Free emila cream and tagaderms to put on ports to numb before they get there
8- Offer meals for the guest with patient.
10- From 1st visit to last remember us. And not like we are just a number
11- Make a calendar with dates of treatment.
12- Offer prayer
13- Celebrate with us on our last visit!!!
1- Play music the patient likes
2- Toasty Warm blankets.
3- One Sister told me the rad team embroidered her name on a blanket and gave it to her. Made all the difference in her mood and experience.
4- Offer a variety of refreshments
5- Offer prayer
6- Let loved ones sit outside room
8- One Sister said the rad team sang to her in a moment of terror.
9- Have volunteers in waiting room available to visit with patients
10- Offer different creams/ lotions. One Sister had good results from a combo of aquaPhor and aloe
11- Celebrate with us on last visit!!
1- Be patient. We are very very terrified
2- Tell us in advance what is going to happen and if blood will be drawn etc.
3- Caring staff. I was prayed for by a nurse before she stuck me and I’ll never forget how comforting that was!!!
4- All possible side effects from contrast material used. what is in the contrast
5- Don’t give us any unnecessary tests. Wait to see if chemo is going to be needed before the heart test etc.
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