Bluerose

jane65
jane65 Member Posts: 277
edited March 2014 in Ovarian Cancer #1
Hi Bluerose,
I haven't seen you post here for a while and i was wondering how you're doing?
Jane

Comments

  • bluerose
    bluerose Member Posts: 1,104
    Hey Jane
    Thank you for your interest. I have meant to post a hundred times but it's such a long story as to what has happened that I never seem to have enough time.

    The bottomline is that I am going to take the wait and see position right now for a bunch of reasons. That decision shocked me as I have wanted nothing but to get this stupid cyst and node biopsied but after meeting with the best gyne/onc in the city (at least I achieved getting in to him) he agreed to take me on as his patient and will 'follow me like a hawk' if I do the wait and see or if I don't. He said he would do the surgery if I wanted him too as all my reasons were sound but he brought up 2 new points I had never been made aware of before in all of this.

    One point is that from all the cancers he has seen and handled and diagnosed mine is a less than 5 per cent chance of being a cancer to begin with. Then he said that there were absolutely no signs of blood supply to the cyst or node and of course a cancer needs that to grow and thrive so that really got me thinking. He said that if I wanted to wait he would do follow up ultrasounds every 3 months to see what this thing was doing as it is growing but slowly and not by much, and at the first sign of anything even remotely strange into the O.R. I go.

    The reason for the hesitation by the docs and me is that my health is fragile with heart damage from chemo drugs of the past plus I have respiratory issues too. General anaesthetic is more dangerous for me than most and this was only confirmed when I saw the Internal Specialst this gyne/onc sent me to to clear me for surgery as they weren't sure I could even get through general anaesthesia. The Internal Specialist said NO to the general anaesthetic, too dangerous for me, that freaked me out - but said I could have surgery like that but with a spinal anaesthetic instead - like an epidural. So you see, the situation wasnt only about a cancer for me. I knew this but didn't realize it is as bad as it is. Of course there is always that possibility, even less than 5 percent, that it turns into a cancer but I trust this doctor and he has given me good added info that makes me feel as comfortable as I can be that I am okay and monitored for now. He said that if I even change my mind and dont feel comfortable waiting he will do the surgery anywho so he sees where I am coming from and that's so important.

    So that's it. At least I have my specialist now who I know will watch me and be diligent in getting me treatment if God forbid it is needed. He has an amazing nurse who spent alot of time with me too and felt that, at this point, this is the totally right decision given all I deal with.

    Thanks for asking about me, I appreciate it. How have you been doing by the way Jane?
    Hope to hear from you soon. Hugs, Bluerose
  • jane65
    jane65 Member Posts: 277
    bluerose said:

    Hey Jane
    Thank you for your interest. I have meant to post a hundred times but it's such a long story as to what has happened that I never seem to have enough time.

    The bottomline is that I am going to take the wait and see position right now for a bunch of reasons. That decision shocked me as I have wanted nothing but to get this stupid cyst and node biopsied but after meeting with the best gyne/onc in the city (at least I achieved getting in to him) he agreed to take me on as his patient and will 'follow me like a hawk' if I do the wait and see or if I don't. He said he would do the surgery if I wanted him too as all my reasons were sound but he brought up 2 new points I had never been made aware of before in all of this.

    One point is that from all the cancers he has seen and handled and diagnosed mine is a less than 5 per cent chance of being a cancer to begin with. Then he said that there were absolutely no signs of blood supply to the cyst or node and of course a cancer needs that to grow and thrive so that really got me thinking. He said that if I wanted to wait he would do follow up ultrasounds every 3 months to see what this thing was doing as it is growing but slowly and not by much, and at the first sign of anything even remotely strange into the O.R. I go.

    The reason for the hesitation by the docs and me is that my health is fragile with heart damage from chemo drugs of the past plus I have respiratory issues too. General anaesthetic is more dangerous for me than most and this was only confirmed when I saw the Internal Specialst this gyne/onc sent me to to clear me for surgery as they weren't sure I could even get through general anaesthesia. The Internal Specialist said NO to the general anaesthetic, too dangerous for me, that freaked me out - but said I could have surgery like that but with a spinal anaesthetic instead - like an epidural. So you see, the situation wasnt only about a cancer for me. I knew this but didn't realize it is as bad as it is. Of course there is always that possibility, even less than 5 percent, that it turns into a cancer but I trust this doctor and he has given me good added info that makes me feel as comfortable as I can be that I am okay and monitored for now. He said that if I even change my mind and dont feel comfortable waiting he will do the surgery anywho so he sees where I am coming from and that's so important.

    So that's it. At least I have my specialist now who I know will watch me and be diligent in getting me treatment if God forbid it is needed. He has an amazing nurse who spent alot of time with me too and felt that, at this point, this is the totally right decision given all I deal with.

    Thanks for asking about me, I appreciate it. How have you been doing by the way Jane?
    Hope to hear from you soon. Hugs, Bluerose

    Hi,
    Good to hear from you, I'm rarely on the board due to my recent surgery.
    I'm glad that you have things well in hand and that you have a very competent medical team working with you.

    Good luck and let me know how you're doing. It's been a rough time for you, I wish you good health.
    Jane
  • bluerose
    bluerose Member Posts: 1,104
    jane65 said:

    Hi,
    Good to hear from you, I'm rarely on the board due to my recent surgery.
    I'm glad that you have things well in hand and that you have a very competent medical team working with you.

    Good luck and let me know how you're doing. It's been a rough time for you, I wish you good health.
    Jane

    A speedy recovery Jane
    Hope you are feeling better after your surgery and so nice of you to think of me when you had so much on your mind with your health issues, especially at this time with surgery and all. You are in my prayers.

    Don't worry about posting, post when you feel up to it and I look forward to chatting with you at some point in the not too distant future. Blessings, Bluerose