breast angiosarcoma

survivor9yrs
survivor9yrs Member Posts: 57
edited March 2014 in Breast Cancer #1
i am a 9 yr. survivor of breast cancer. but in march i found a sm. lump with a blue bruise. i went to my surgeon and oncologist and was told it was a hematoma. here it is oct. and i have a secondary angiosarcoma. misdiagnosed..... this cancer is caused by radiation therapy. usually around 8-10 yrs. later... i have had a pet and ct scan, which were clear, except for the cancer on my breast. tues i see my oncologist to find out where i go fron here. this is a rare cancer, but with the increasing radiation for breast cancer, it will become less rare in time. for all of you going through BC and survivors, be aware of this. talk to your drs.

Comments

  • mlmjt1
    mlmjt1 Member Posts: 537
    #2
    Hi survivor9yrs
    Just never stops does it? I just finished my chemo and still have herceptin to do for a year as well as reconstruction. I hope to be done with this stuff one day, but as I learned just know from a 9 year survivor you will have to be vigilent the rest of your life!! Sounds a little overwelming, but hey, we are surviving,right?

    Hang in there

    Linda T
  • survivor9yrs
    survivor9yrs Member Posts: 57
    #3
    mlmjt1 said:

    Hi survivor9yrs
    Just never stops does it? I just finished my chemo and still have herceptin to do for a year as well as reconstruction. I hope to be done with this stuff one day, but as I learned just know from a 9 year survivor you will have to be vigilent the rest of your life!! Sounds a little overwelming, but hey, we are surviving,right?

    Hang in there

    Linda T

    thanks.. just want everyone
    thanks.. just want everyone to know about angiosarcoma. had someone labeled this when i had BC i would have opted for a double mastectomy... never would have had radiation. my BC was stage 1, had a lumpectomy and radiation. no chemo. this won't be the case now.. i have survived for 9 yrs. and i will be a survivor again..
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #4
    survivor9yrs said:

    thanks.. just want everyone
    thanks.. just want everyone to know about angiosarcoma. had someone labeled this when i had BC i would have opted for a double mastectomy... never would have had radiation. my BC was stage 1, had a lumpectomy and radiation. no chemo. this won't be the case now.. i have survived for 9 yrs. and i will be a survivor again..

    Thank you for the posting .. I have elected the bi-lateral
    my surgeron has been trying to talk me out of my discussion. I knew in my heart that I was making the right decisioin.

    I am so sorry about your second bc diagnosis. You are a strong women, and will get thru this latest fiasco. We are here for you, and I will be praying for you every step of the way.

    VickiSam
  • survivor9yrs
    survivor9yrs Member Posts: 57
    #5
    mlmjt1 said:

    Hi survivor9yrs
    Just never stops does it? I just finished my chemo and still have herceptin to do for a year as well as reconstruction. I hope to be done with this stuff one day, but as I learned just know from a 9 year survivor you will have to be vigilent the rest of your life!! Sounds a little overwelming, but hey, we are surviving,right?

    Hang in there

    Linda T

    thank you linda t
    i don't know where my head is at, but i wish you all the best in your fight against BC. Glad to know you have made it through chemo. that is something i am not looking forward to, but has to be with this cancer. good luck and prayers are sent your way.
  • survivor9yrs
    survivor9yrs Member Posts: 57
    #6
    VickiSam said:

    Thank you for the posting .. I have elected the bi-lateral
    my surgeron has been trying to talk me out of my discussion. I knew in my heart that I was making the right decisioin.

    I am so sorry about your second bc diagnosis. You are a strong women, and will get thru this latest fiasco. We are here for you, and I will be praying for you every step of the way.

    VickiSam

    good decision
    vickisam
    i wish i had gone the extra mile. i wouldn't be in this situation today. ask your dr. abt. angiosarcoma of the breast. it is a cancer of the blood vessels. caused by my radiation. i just had to post to all site i can find and let others know of this. thank you for your prayers. and i do hope all goes well with you.
  • BELIEVEx3
    BELIEVEx3 Member Posts: 24
    #7
    Angiosarcoma
    Hi I am a breast cancer, now angiosarcoma and thyroid cancer survivor........If you want to talk I am 3 years out from bilateral mastectomies for the angiosarcoma. I was given the gift of low grade AS and although I have had many surgeries I have not had a recurrence. I think the most difficult part for me was the lack of a support system. I felt to tell someone who was surviving breast cancer that I had this secondary cancer possibly from the treatment was too much for someone to bare..........I hope you are ok and if you want to talk, I am here.
  • mimivac
    mimivac Member Posts: 2,143 Member
    #8
    Hello survivor,
    So sorry to hear of your secondary cancer diagnosis. It just isn't fair that the treatment for breast cancer causes... cancer in the breast. It shouldn't be that way. I opted for a lumpectomy and radiation and hope I will not have to deal with the same. I wish you luck in your second journey with this beast.

    Mimi
  • MAJW
    MAJW Member Posts: 2,510 Member
    #9
    So sorry....
    To hear your news....but this may help......My sister in law is a 20 year survivor of angiosarcoma..I remember her being told it was a rare, rare breast cancer....and she had never had any type of radiation.......it came "out of the blue" They first removed the tumor and it took 3 months for a pathology report to "identify" it....remember this was 20 years ago.....She then had a mastectomy and no further treatment at all.....no chemo, no radiation. She's never had any kind of reccurence....

    I know there are late term side effects of radiation especially leukemia, but I haven't heard about angiosarcoma being one of them.......yikes!
    I am so very sorry you are having to go through this yet again....
    I wish you the best.......
  • BELIEVEx3
    BELIEVEx3 Member Posts: 24
    #10
    MAJW said:

    So sorry....
    To hear your news....but this may help......My sister in law is a 20 year survivor of angiosarcoma..I remember her being told it was a rare, rare breast cancer....and she had never had any type of radiation.......it came "out of the blue" They first removed the tumor and it took 3 months for a pathology report to "identify" it....remember this was 20 years ago.....She then had a mastectomy and no further treatment at all.....no chemo, no radiation. She's never had any kind of reccurence....

    I know there are late term side effects of radiation especially leukemia, but I haven't heard about angiosarcoma being one of them.......yikes!
    I am so very sorry you are having to go through this yet again....
    I wish you the best.......

    Breast Angiosarcoma
    Good to know someone is 20 years out from angiosarcoma..........I am doing well, and I hope to provide support to anyone out there who might experience this as well......
  • Tux
    Tux Member Posts: 544
    #11
    BELIEVEx3 said:

    Breast Angiosarcoma
    Good to know someone is 20 years out from angiosarcoma..........I am doing well, and I hope to provide support to anyone out there who might experience this as well......

    Thanks for the info--yet
    Thanks for the info--yet another side effect to keep watching for. I am sorry that you are having to go through this again. Hugs & prayers sent your way....
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #12
    Tux said:

    Thanks for the info--yet
    Thanks for the info--yet another side effect to keep watching for. I am sorry that you are having to go through this again. Hugs & prayers sent your way....

    I have never heard of this,
    I have never heard of this, but obviously, rads don't always cause it, if at all?
  • BELIEVEx3
    BELIEVEx3 Member Posts: 24
    #13
    survivorbc09 said:

    I have never heard of this,
    I have never heard of this, but obviously, rads don't always cause it, if at all?

    Breast Angiosarcoma
    Hi I tried to post earlier...........AS can be a primary or secondary cancer, although very rare. Current literature does show a correlation between a previously irradiated field, the dose of radiation received and the rare occurrence of AS, is it the cause, maybe in some cases. AS is one of the secondary cancers the doctors speak of as a risk of our treatment....Remember very rare!!!!!!!Please do not worry, the key is to know your body, keep vigilant with your follow-up and if something persists speak with your oncologist.
  • BELIEVEx3
    BELIEVEx3 Member Posts: 24
    #14
    survivorbc09 said:

    I have never heard of this,
    I have never heard of this, but obviously, rads don't always cause it, if at all?

    Breast Angiosarcoma
    Sorry about the duplicate.
  • survivor9yrs
    survivor9yrs Member Posts: 57
    #15
    BELIEVEx3 said:

    Angiosarcoma
    Hi I am a breast cancer, now angiosarcoma and thyroid cancer survivor........If you want to talk I am 3 years out from bilateral mastectomies for the angiosarcoma. I was given the gift of low grade AS and although I have had many surgeries I have not had a recurrence. I think the most difficult part for me was the lack of a support system. I felt to tell someone who was surviving breast cancer that I had this secondary cancer possibly from the treatment was too much for someone to bare..........I hope you are ok and if you want to talk, I am here.

    angiosarcoma of breast
    well, in the past month i have been diagnosed, scaned (all clear) and had surgery. It's been a ride... had mastectomy and now will start chemo. taxotere and gemcidabine. surgery went well with great tumor to chest wall margins. just hope this will be it for this horrible cancer. so little information on it, makes it harder to know just what to expect. hanging in there. wonderful news, knowing some others have beat this cancer. I have heard of others too. stay well
  • yolanda revilla
    yolanda revilla Member Posts: 4
    #16
    BELIEVEx3 said:

    Angiosarcoma
    Hi I am a breast cancer, now angiosarcoma and thyroid cancer survivor........If you want to talk I am 3 years out from bilateral mastectomies for the angiosarcoma. I was given the gift of low grade AS and although I have had many surgeries I have not had a recurrence. I think the most difficult part for me was the lack of a support system. I felt to tell someone who was surviving breast cancer that I had this secondary cancer possibly from the treatment was too much for someone to bare..........I hope you are ok and if you want to talk, I am here.

    que quimio recives tu???
    te invito a entrar a facebook group angiosarcoma

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