I'm starting Fluorouracil and Oxaliplatin this week. Any personal storys on these?

just4Brooks
just4Brooks Member Posts: 980 Member
edited March 2014 in Colorectal Cancer #1
I'm starting Fluorouracil and Oxaliplatin this week. Any personal storys on these? Please let me know. Try not to scare me too much. LOL

Comments

  • Patteee
    Patteee Member Posts: 945
    #2
    just trying to remember from
    just trying to remember from past posts of yours- you aren't going to be on it for long before surgery, correct?
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    #3
    Patteee said:

    just trying to remember from
    just trying to remember from past posts of yours- you aren't going to be on it for long before surgery, correct?

    Surgery is done
    Had my surgery Aug 13th after my first round of Chemo and radation for 6 1/2 weeks was over. I'll be on my next round of chemo for 18 to 20 weeks
  • Patteee
    Patteee Member Posts: 945
    #4
    just4Brooks said:

    Surgery is done
    Had my surgery Aug 13th after my first round of Chemo and radation for 6 1/2 weeks was over. I'll be on my next round of chemo for 18 to 20 weeks

    well oxil is the one to kick
    well oxil is the one to kick butt
    whole range of side affects that will probably hit you to some degree
    they build up over treatments- perhaps your first one will be fine
    my issues were with mouth sores (so bad at one point I was hospitalized, my mouth so swollen I couldn't get my teeth apart let alone talk)
    neuropathy- in my hands and feet
    fried taste buds- everything tasted like crap, even water
    At about treatment 4 my onc started to reduce the oxil- and finally after my last hospitalization due to dehydration, he sttopped it all together. I believe that was treatment #8
    I just got sicker and sicker with each treatment- really weak, sweaty, dizzy- took me longet to kick the affects, I really started to look and feel like a cancer patient.
    When my onc came to see me in the hospital the last time his only comment was, "you are done with oxil".
    It is a vile drug.
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    #5
    Patteee said:

    well oxil is the one to kick
    well oxil is the one to kick butt
    whole range of side affects that will probably hit you to some degree
    they build up over treatments- perhaps your first one will be fine
    my issues were with mouth sores (so bad at one point I was hospitalized, my mouth so swollen I couldn't get my teeth apart let alone talk)
    neuropathy- in my hands and feet
    fried taste buds- everything tasted like crap, even water
    At about treatment 4 my onc started to reduce the oxil- and finally after my last hospitalization due to dehydration, he sttopped it all together. I believe that was treatment #8
    I just got sicker and sicker with each treatment- really weak, sweaty, dizzy- took me longet to kick the affects, I really started to look and feel like a cancer patient.
    When my onc came to see me in the hospital the last time his only comment was, "you are done with oxil".
    It is a vile drug.

    oh great
    can I run away now?
  • Patteee
    Patteee Member Posts: 945
    #6
    just4Brooks said:

    oh great
    can I run away now?

    now wait- cause there are
    now wait- cause there are many more to post that will tell you it wasn't that bad. Just take mine as one of many.
  • lizzydavis
    lizzydavis Member Posts: 893
    #7
    Patteee said:

    now wait- cause there are
    now wait- cause there are many more to post that will tell you it wasn't that bad. Just take mine as one of many.

    My story is different.
    Yes, I had 5 rounds of Folfox (Oxaliplatin & 5 FU & Leuvcovrin). While I did have some side effects, they were manageable and did not seem to be lasting. I took Ginger Capsules to prevent Nausea (some take the ginger root). I took Vitamin B6. I take Alpha Lipoic Acid which is from a study but can be purchased at Walmart. It is touted for preventing neuropathy. I drank a lot of water, juice, tea, juiced every other day, and took a complete multi-vitamin daily. I also took Ativan which helped the nausea and helped me sleep. My side effects were sensitivity to coldness (refrigerated foods), thinning of my hair, rash (I believe from the Leucovrin). I went to sleep when I was too tired to stay awake. Sleep helps the body. Everyone is different so you should let your doctor or nurses know right away if you have any symptoms. They will change your medication or lower your dose. Good luck and let us know how it goes for you.

    Lizzydavis
  • mommyof2kds
    mommyof2kds Member Posts: 519
    #8
    lizzydavis said:

    My story is different.
    Yes, I had 5 rounds of Folfox (Oxaliplatin & 5 FU & Leuvcovrin). While I did have some side effects, they were manageable and did not seem to be lasting. I took Ginger Capsules to prevent Nausea (some take the ginger root). I took Vitamin B6. I take Alpha Lipoic Acid which is from a study but can be purchased at Walmart. It is touted for preventing neuropathy. I drank a lot of water, juice, tea, juiced every other day, and took a complete multi-vitamin daily. I also took Ativan which helped the nausea and helped me sleep. My side effects were sensitivity to coldness (refrigerated foods), thinning of my hair, rash (I believe from the Leucovrin). I went to sleep when I was too tired to stay awake. Sleep helps the body. Everyone is different so you should let your doctor or nurses know right away if you have any symptoms. They will change your medication or lower your dose. Good luck and let us know how it goes for you.

    Lizzydavis

    I suffered from severe
    I suffered from severe fatigue and seems that with every treatment it takes me longer to start feeling some energy. I had a reaction on #10, swelling and itching, needed steroids and benadryl, but did fine. Every time you get a dose it builds up in tour system, so the more you get the more chance of a reaction can happen.. I haven't had the neuropathy, my doc given me magnesium and calcium(IV) before and after each oxal. dose, it helps alot. They also told me that since I am only 36 that can be a benefit againest the neuropathy. I do get the cold sensitivities, can usually drink cold things about 5 days after infusion. I seem to have had mild symptoms compared to others. Very little nausea, but take meds when I need to. Best of luck to you....Petrina
  • hannacat
    hannacat Member Posts: 101
    #9
    flowfox regimen
    I started this 5fu and oxiliplatinum regimen in Jan. of 2006 for stage 3b colon cancer. It was not a walk in the park but they gave me meds to cope with the side effects and I remain NED. Think of it as jumping off the diving board when you were a kid. A little bit of apprehension but a goal in mind. Treatment by treatment you will kill the cancer. I still feel the the worst days were when our side was winning. You can do it.

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