fallopian tube cancer

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  • Sam22
    Sam22 Member Posts: 1
    edited August 2017 #42
    I have Fallopian tube cancer without having Fallopian tubes...

    I was recently diagnosed with Fallopian tube cancer but I don't have Fallopian tubes. In 2004 I had a hysterectomy and in 2009 I had an oofrectomy and a bi-lateral mastectomy. Atypical, pre cancer cells found on the end of my tubes. So it seems that some time before 2009 the atypical cells moved into my lymph nodes. We were prepared to hear it was lymphoma and shocked to hear it was fallopian!  Started Taxol and  Carboplatin today. Any out there with similar diagnosis?  Surgery? Survivors? 

  • NagginPops
    NagginPops Member Posts: 1
    #43
    It happened To My Wife

    My wife was scheduled for a routine robitc hysterectomy in January when a mass was found in her upper abdomen. She had been complaining of debilitating cramps for many years prior. Biopsies of the mass were negative. The procedure was aborted until the nature of the mass was determined. She was scheduled for an open hysterectomy in May with removal of the mass. The mass involved the omentum where cancer cells were detected and had been removed along with a radical hysterectomy. They even threw in an appendectomy. Pathology revealed that she had stage 3 Ca of the fallopian tubes. After 4 hospitalizations from complications due to infections, she finally was given a clean bill of health for chemo (Taxol & Carboplatin) which began last Monday.  This has been a very challenging year for us both. I am a prostate Ca survivor and cannot begin to empathize with her as our situations are so different. She does not use social media of any kind, so I am her path to wellness by going online for words of encouragement and show her hard copies of my finds. This is my 1st day at this and will be returning for answers.

  • gnchatt
    gnchatt Member Posts: 1 *
    #44

    I was diagnosed with stage IIIc fallopian tube cancer in Dec 2023. I'm wondering if anyone has used Keytruda as immunotherapy after chemo ended? My numbers are rising and I'm curious if others have had more success with immunotherapy. Thanks.

  • katalina333
    katalina333 Member Posts: 7 Member
    #45
    https://csn.cancer.org/discussion/comment/1717844#Comment_1717844

    hello gnchatt

    I also was diagnosed with stage IIIc fallopian tube cancer in December 2024, one year after you? After chemotherapy I began taking Lynparza, a PARP inhibitor. It was a bit rough at first, lethargy, off food, dizziness and lightheaded. But after 3 months it leveled out. I feel really good right now, 8 months into the Lynparza, and am on vacation! I’m scheduled to take the Lynparza for 3 years. I would love to know how you are doing, and to keep in touch here on this chat. It’s often very quiet here. And it seems Fallopian Tube Cancer is not as common as some other gynecological cancers.
    Hope you’re feeling well and strong and I wish you the best!

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