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met with surgeon

snommintj
snommintj CSN Member Posts: 601
edited March 2014 in Colorectal Cancer #1
Things seem to be moving in the right direction. He was pleased with my results from chemo. He no longer feels as though a liver resection is a top priority. I get four week off from chemo. I will have another PET/CT and he recommends have the three places in my liver ablated. He said the tumors in my lung showed very little activity and he wouldn't feel comfortable doing surgery at this point. He feels that a few more rounds of chemo might finish them off. Or if they progress between now and time for liver ablation he may ablate one or two of them. Now to the two tumors in the portal caval cavity. He did say those would be tricky, but he said the were less active than the previous scan. He feels that they may not be cancer but left over infection from the infections I had for months. When I have my tumors ablated he said he would stick a scope in to see what is going on. If they are cancer he said he would be able to remove them but the surgery would be significant. He will have to map which segments of the liver correspond to those nodes and remove the entire liver segment. He said that will be another surgery for another time.
the x factor is going to be the clinical trial I have between now and my next meeting with the radiologist. I sure hope it works. My surgeon said that even with a marginal response, my lung mets might become inactive altogether. Also, one spot in my liver was very faint. I'm not going to ask for a miracle, but I am hoping it works a little.
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Comments

  • Paula G.
    Paula G. CSN Member Posts: 596
    #2
    Your meeting
    This sounds great to me. Very hopeful. As for the miracle, I hope you get one. Good luck and I will watch for updates. Paula G.
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  • dianetavegia
    dianetavegia CSN Member Posts: 1,942 Member
    #3
    This is great news!
    John, I'm just thrilled to hear this. You are such a trooper!

    Diane
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  • Sonia32
    Sonia32 CSN Member Posts: 1,071 Member
    #4
    dianetavegia said:

    This is great news!
    John, I'm just thrilled to hear this. You are such a trooper!

    Diane

    Great news
    hope it keeps on getting better for you agree with diane you are a trooper!
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  • angelsbaby
    angelsbaby CSN Member Posts: 1,165 Member
    #5
    Paula G. said:

    Your meeting
    This sounds great to me. Very hopeful. As for the miracle, I hope you get one. Good luck and I will watch for updates. Paula G.

    THAT IS AWESOME NEWS
    ANOTHER NED COMING SOON I HOPE.

    MICHELLE
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  • Fight for my love
    Fight for my love CSN Member Posts: 1,522 Member
    #6
    This really sounds great and
    This really sounds great and inspiring.John,I believe MIRACLE does happen.Best luck and best wishes to you.
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  • lizzydavis
    lizzydavis CSN Member Posts: 893
    #7
    A lot to be thankful for.
    John,
    Glad to hear that things are moving in the right direction. I hope that you feel our prayers and support.

    lizzydavis
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  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    #8
    Go Ahead and Ask...
    If a miracle works, then I hope you get it, John.

    I've kept up with your posts and followed your story and am pulling for a great outcome for you. You've been through alot for a young man and you have handled yourself brilliantly from what I've read from you and from what the others post as well.

    Continuing to hope for the best for you. With you grit and determination, I feel sure that you will conquer all.

    -Craig
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  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    #9
    Good news!
    That's good news! Sounds like things might be a lot more positive than you thought at first. I'm so hopeful for you!

    *hugs*
    Gail
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  • eric38
    eric38 CSN Member Posts: 583
    #10
    tootsie1 said:

    Good news!
    That's good news! Sounds like things might be a lot more positive than you thought at first. I'm so hopeful for you!

    *hugs*
    Gail

    I am glad things are looking
    I am glad things are looking up. I see NED in your future. You need a break and deserve a rest.

    Eric
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  • nudgie
    nudgie CSN Member Posts: 1,478 Member
    #11
    It is
    nice to know that things are moving in the right direction for you. It sounds as though you will have a full plate for awhile, so make sure you still take time for yourself and family.

    Also, make sure you keep your family here updated as well :)
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  • mom_2_3
    mom_2_3 CSN Member Posts: 953 Member
    #12
    This is good news
    John,

    This is good news to hear. I keep you in my thoughts and prayers (as I do everyone on the board). Your determination and resolve inspire me.

    Amy
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  • betina61
    betina61 CSN Member Posts: 642 Member
    #13
    news sound good!!
    I'm very happy for you everything looks very promissing, and for sure you deserve it.
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  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    #14
    betina61 said:

    news sound good!!
    I'm very happy for you everything looks very promissing, and for sure you deserve it.

    Wow
    John: That sounds like some very good and promising news. Are you still working on that machine and do you still intend to use it. Keep up the great spirit.

    Kim
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  • snommintj
    snommintj CSN Member Posts: 601
    #15
    Annabelle41415 said:

    Wow
    John: That sounds like some very good and promising news. Are you still working on that machine and do you still intend to use it. Keep up the great spirit.

    Kim

    I still need parts
    I still need some key parts that have yet to be shipped. I'm going to need to make a few parts. I've been researching transmission and receiving heads. I could buy some but I don't think they are going to be exactly what I need. The key is to direct the radio waves enough to penetrate the body but not so much as to cause harm at the entry site. I have been looking at some old NMR (nuclear magnetic resonance) machines for a possible solution. I might be able to use one of their detection units as a transmission head. I'm going to need a salvaged one since even well used NMR's still run in the tens of thousands of dollars. Luckily I have friends in the biz and have already tracked down a couple I can get some parts off of. Believe it or not, I got a hold of some WWII specs on a Japanese Death Ray.
    They spent a bunch of time and energy trying to kill folks at a log distance with radio waves.
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  • lesvanb
    lesvanb CSN Member Posts: 905
    #16
    What wonderful news!
    I always enjoy your posts and positive attitude! Keep it rolling!
    Leslie
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