My Colon is NED / Wierd news on missing mass

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regslady
regslady Member Posts: 37
edited March 2014 in Colorectal Cancer #1
Whoohooo! the CT scan gave some answers about that mass the doctor said he lost...and we can rule out a return of the colon cancer. (major happy dancing here).

Of course, the answers about the mass were as crazy as the rest of this experience. My uterus is covered with tumors and is being pulled strongly to the right. On the CT, they were able to line up one of the tumors with the spot where the doc had seem the mass during the colonoscopy.

I'm so grateful for all of you hear. I hope you don't mind if I stick around and keep cheering others on and praying for many NED days and years for all of us.

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  • ittapp
    ittapp Member Posts: 383 Member
    #2
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    Hello, I was just wanting to
    Hello, I was just wanting to say congratulations on having your answers and being NED. I was wondering what your story was.... what stage and what your treatment, and experience has been. I am stage 4 and looking for some inspiration! Thanks, Patti
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #3
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    Confused
    I'm so glad your colon cancer has not returned, but I'm confused about the rest of it. You said your uterus is covered with tumors. Are they benign? Or what is being done about that situation?

    *hugs*
    Gail
  • regslady
    regslady Member Posts: 37
    #4
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    ittapp said:

    Hello, I was just wanting to
    Hello, I was just wanting to say congratulations on having your answers and being NED. I was wondering what your story was.... what stage and what your treatment, and experience has been. I am stage 4 and looking for some inspiration! Thanks, Patti

    All is possible
    I was truly, truly blessed when it came to my cancer diagnosis. My doctor wasn't available. The doctor that came in to talk to my family before an appendectomy surgery knew my mother and he was her father's surgeon for his colon cancer. He was aggressive when he didn't like what he saw in my appendix. I got the cancer diagnosis on my 16th birthday. It extended my hospital stay, but before I left we had the word that I was cancer-free. It made me feel like my beloved grandfather was there and asking God to watch over me. The cancer was free-floating...how wonderful that it got stuck in my appendix so that this surgeon could find it.

    I believe in the power of the human spirit. What I don't believe in is the survival percentages doctors love to throw around. My fiance was hospitalized on December 27th. On New Years Eve, I was told he wasn't coming out of the hospital. Zero chance of survival. Call his son now. (That was the hardest call Start thinking about funeral plans. He's sitting here next to me now, chattier than ever, happy and healing.

    Believe in yourself. Believe in your ability to heal. You are going to be standing next to that beautiful girl in the picture again. She'll be wearing a white dress again. Who knows...maybe even on the beach. And you and hubby will be crying tears of joy as she starts on the path to beginning her own family.

    You are in my prayers.
  • punch_vj
    punch_vj Member Posts: 88
    #5
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    regslady said:

    All is possible
    I was truly, truly blessed when it came to my cancer diagnosis. My doctor wasn't available. The doctor that came in to talk to my family before an appendectomy surgery knew my mother and he was her father's surgeon for his colon cancer. He was aggressive when he didn't like what he saw in my appendix. I got the cancer diagnosis on my 16th birthday. It extended my hospital stay, but before I left we had the word that I was cancer-free. It made me feel like my beloved grandfather was there and asking God to watch over me. The cancer was free-floating...how wonderful that it got stuck in my appendix so that this surgeon could find it.

    I believe in the power of the human spirit. What I don't believe in is the survival percentages doctors love to throw around. My fiance was hospitalized on December 27th. On New Years Eve, I was told he wasn't coming out of the hospital. Zero chance of survival. Call his son now. (That was the hardest call Start thinking about funeral plans. He's sitting here next to me now, chattier than ever, happy and healing.

    Believe in yourself. Believe in your ability to heal. You are going to be standing next to that beautiful girl in the picture again. She'll be wearing a white dress again. Who knows...maybe even on the beach. And you and hubby will be crying tears of joy as she starts on the path to beginning her own family.

    You are in my prayers.

    Simply Beautiful ...
    This is all I have words to say about what you said here. This is why we ALL come onto this board :)

    Blessings and peace,
    V.
  • regslady
    regslady Member Posts: 37
    #6
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    tootsie1 said:

    Confused
    I'm so glad your colon cancer has not returned, but I'm confused about the rest of it. You said your uterus is covered with tumors. Are they benign? Or what is being done about that situation?

    *hugs*
    Gail

    what I think.
    I'm writing this while I'm also working to help my fiance get his blood sugar up...how I manage to make sense :)

    I'm being assigned a GYN specialist. All the news happened late this afternoon, so I haven't gotten a call back, but my GP and I thought an appointment within a week would be appropriate.

    At this point, we don't officially know anything about the tumors, except that at least one of them is very hard. ;) However, my past medical history leads to a few assumptions about what is going on.

    The uterus being pulled strongly to the right: I have a history of adhesions in my abdomen. I've had a lot of adhesions cut or burned that were attached to my uterus. Some of those adhesions were also attached to my colon. I've had partial bowel obstructions from adhesions. So, I think it is fairly likely that my uterus is out of place because of new or reformed adhesions.

    The tumors on my uterus: I did have a uterine fibroid once and I know those can be really hard. However, I think the most likely cause is endometriosis. Many years back I was diagnosed with aggressive endometriosis. Four surgeries within three years. We haven't done anything to treat it in several years because the disease would return quickly after each surgery and I'd get many more adhesions with each surgery. Even the strong meds did little to slow it down. My GP agrees with me that there is a very strong likelihood that the tumors may be endometriosis cysts.

    Our guess is that I will probably be facing surgery for this. I'm afraid they are going to ask me (again) to let them remove my uterus. I'll have to face that when the time comes and I've gotten information.

    I'd be really surprised if those tumors turn out to be cancerous. As far as I know, there is no history of uternine cancer in my family.
  • kristasplace
    kristasplace Member Posts: 957 Member
    #7
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    YAAAAY!
    Naked happy dance time!! What wonderful news! I will be praying that the uterine tumors are benign, and that you won't need any more surgeries! If you do, maybe it's time to get rid of the 'ole gal? I should've had my uterus removed during the first surgery. It was offered to me, but my onc thought it was too much to handle at one time. Now i run the risk of getting cancer there because of all the radiation! I don't know if you're planning on having children? The radiation sterilized me.

    I hope very much that you do stick around with us! Your story is very inspirational, and i'm sure many others will benefit from hearing it!

    Many hugs,
    Krista
  • Unknown
    Unknown
    #8
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