The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Starting Chemo Again

LPack
LPack CSN Member Posts: 645
edited March 2014 in Ovarian Cancer #1
Ladies,

Had my followup today. My CA125 went up 80 more points to 193.5. CTscan of pelvis and abdomen was inconclusive, but physical a week later still felt 4 cm mass in colon area.

So I will begin gemzar/cisplatin on Monday, followed by Neulasta shot on Tuesday 24 hours later, then chemo again 2 weeks later, and so goes the cycle.

My questions are: what is the difference between this treatment and carbo/taxol? How many of you have followed this same pattern? Any words of wisdom??

I am going to continue to press on.......................toward the prize. ☺

Need a rest from all that information today and will get back on in a day or two. Know I am praying for each of you in your circumstances and bumps in the road, too.

In His Grip,
Libby ☺ ♥

Comments

  • Susan523
    Susan523 CSN Member Posts: 231 Member
    Sorry you have to have more chemo...
    Hi, Libby,

    I'm so sorry you have to have more chemo. I'm sorry I can't help you with the side effects information, as I had Gemzar alone, and when I had Cisplatin it was with Taxol.

    Just want to let you know that you are in my thoughts & prayers.

    ~Susan xoxo
  • jane65
    jane65 CSN Member Posts: 277
    Libby
    Dear Libby,
    I'm so sorry to hear that you need to go back on chemo., I wish you an easy time of it. I can't help with your question however, my next chemo will probably be Gemzar/Avastin so we can compare notes, or war stories regarding the Gemzar part.

    Good luck, I hope it knocks the cancer down and out and you have another long NED.

    You're a lovely lady and I wish you peace and good health.

    Jane
  • ladyjogger31
    ladyjogger31 CSN Member Posts: 289
    jane65 said:

    Libby
    Dear Libby,
    I'm so sorry to hear that you need to go back on chemo., I wish you an easy time of it. I can't help with your question however, my next chemo will probably be Gemzar/Avastin so we can compare notes, or war stories regarding the Gemzar part.

    Good luck, I hope it knocks the cancer down and out and you have another long NED.

    You're a lovely lady and I wish you peace and good health.

    Jane

    Libby
    Hi Libby sorry to hear that you have to start chemo again and I know how you must feel. I have been on chemo non stop since April 08 and now I’m having radiation. I have never been in remission.I was only on Gemzar, so I can't answer your question about the side effects but I'm sure someone will. All I can say is the Lord well send you what you need to deal with it again and once the initial shock wears off ~ you feel better and ready to battle again. Stay strong and just take one day at a time. Don't anticipate the worst, and don't look too far ahead.
    Hugs and Prayers Terry
  • BonnieR
    BonnieR CSN Member Posts: 1,526 Member
    The Prize
    Dearest Libby,

    I am sad to read your latest report but rejoice with you on keeping your eye on the prize. The is the best medicine we could get. I have been on gemzar but never gemzar/cisplatin, I know without combining the two your counts really drop adn I always get short winded from gemzar. Saying an extra prayer today for you. Hugs ♥ Prayers Bonnie
  • carol2dogs
    carol2dogs CSN Member Posts: 132
    Gemzar/Cisplatin
    Libby,
    I too am on that combination, after less than 6 months remission with Taxotere and Avastin. So far, I have had both once and just the Gemzar 2 weeks later. I got more nausea than I had expected, but manageable with the Zofran and Compazine. The chemos were hard on my white blood cell counts - I was supposed to have the Gemzar alone the following week, but my WBCs were too low. Other than that, I have felt just fine - no extra fatigue yet. Let's keep each other posted - my nurses think the cisplatin can kick butt!
    Love and hugs, Carol
  • LPack
    LPack CSN Member Posts: 645

    Gemzar/Cisplatin
    Libby,
    I too am on that combination, after less than 6 months remission with Taxotere and Avastin. So far, I have had both once and just the Gemzar 2 weeks later. I got more nausea than I had expected, but manageable with the Zofran and Compazine. The chemos were hard on my white blood cell counts - I was supposed to have the Gemzar alone the following week, but my WBCs were too low. Other than that, I have felt just fine - no extra fatigue yet. Let's keep each other posted - my nurses think the cisplatin can kick butt!
    Love and hugs, Carol

    Sounds Good
    Thanks Carol, I will keep in touch with you. Do you go every 2 weekss and how many treatments are you scheduled for?

    I have to get a shot this time 24 hours later of Neulasta b/c of my white counts so low the first time around.

    In His Grip,
    Libby
  • lindaprocopio
    lindaprocopio CSN Member Posts: 1,980 Member
    Just a hug ((((Libby)))))
    So sorry to hear you are going back into chemo. All do-able, but still....

    Just wanted to add my hugs to everyone else's.
  • saundra
    saundra CSN Member Posts: 1,370 Member
    Adding Prayers
    Dear Libby, I am so sorry that you got the new treatment news. l willl be saying extra prayers for no side effects for you. I am sure you are grateful for the six months vacation and recovery time. I know I am. Saundra
  • carol2dogs
    carol2dogs CSN Member Posts: 132
    LPack said:

    Sounds Good
    Thanks Carol, I will keep in touch with you. Do you go every 2 weekss and how many treatments are you scheduled for?

    I have to get a shot this time 24 hours later of Neulasta b/c of my white counts so low the first time around.

    In His Grip,
    Libby

    Schedule
    Libby,
    I am on the following schedule: Day 1 both gemzar and cisplatin, day 8 gemzar alone, then day 28 start again. As for how many, my doc won't even guess - as many as it takes to get the CA125 down and stable. I may end up with the Neulasta, we'll see. Please keep in touch. Thanks.
    Love and hugs, Carol