HER2/neu positive, estrogen/progesterone negative
I was diagnosed with IDC (Invasive ductal carcinoma) on June 17. I'm Her2/neu (+), Estrogen/Progesterone (-). My KI-67 marker is high, indicating that I've got an agressive baddie. I want to fight this with any tool I can, including nutrition power, herbal medicine, exercize and chemo/radiation/surgery and possibly clinical trials. I've been confirmed a candidate for herceptin.
My current recommended treatment is as follows:
a. shrink the tumor with chemo (adriamyacin every other week for 4 weeks; cytoxin every other week for 4 weeks). Hopefully this will shrink the big tumor in my left breast and shrink to nothing the matastecized cancer in my lymph nodes so we don't have to cut them out;
b. rest 4 weeks before surgery;
c. surgery of left breast mass/radiation;
d. herceptin all along to control the aggressiveness.
I have a lot of questions. If anyone has comments to share an any of the following I would greatly appreciate it!
1. Has anyone ever heard of or had experience with Lapatinib (brand name Tykerb)? Are clinical trials generally for last ditch effort scenarios when nothing else works? With my aggressive type cancer should I be on the lookout for clinical trials first?
Impacts of Exercize:
2. Does anyone know of a fitness trainer who specializes in working with cancer patients?
I am currently doing aerobic exercize and rebound exercize (jumping on mini trampoline) before beginning my treatment and would like to continue some form of exercize during treatment. My reasons are to increase oxygen into my bloodstream (aerobic exercize) and to increase detoxification of my lymph system (rebound exercize). Unfortunately my lymph system is already cancerous (at least one node in my axillary). And I don't know if I'm doing damage or increasing the spread of my cancer by doing this...I'm very confused.
3. Nutrition doesn't appear to be top of the list of concerns with conventional cancer treatment. What should be my nutritional arcinal in my cupboard before I am too wiped out to care? What should my cupboard be stocked with before I begin chemo?
Herbal Medicine in conjunction with chemo/herceptin/other treatment
4. Has anyone worked successfully with a naturopathic doctor/herbal medicine, etc. in conjunction with conventional treatments (chemo/surgery/radiation). I recently saw a naturopathic doctor who works with a lot of cancer patients. His approach is to support the body nutritionally to reduce the toxic impact of chemo and radiation. He perscribed their supplements at a whopping $1000/month regime. They claim that they are "bioavailable", plant based, easily digestable etc.. This is a lot cheaper than pharmaceutical companies charge (herceptin costs $78,000/year! ). However, I want to be sure it's real and works. I feel more comfortable with super foods and herbal teas rather than supplements.
Thanks a bunch.
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.4K Cancer specific
- 2.8K Anal Cancer
- 442 Bladder Cancer
- 307 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 395 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.1K Gynecological Cancers (other than ovarian and uterine)
- 12.9K Head and Neck Cancer
- 6.3K Kidney Cancer
- 669 Leukemia
- 788 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 234 Multiple Myeloma
- 7.1K Ovarian Cancer
- 55 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.3K Prostate Cancer
- 1.2K Rare and Other Cancers
- 533 Sarcoma
- 715 Skin Cancer
- 646 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards