Sacrum cancer

Unknown

jjhnyc said:

sacrum bone doctor
Hi Alan I have one off the best doctors on the field on spine tumors I just did a surgery on the back remove the tail bone and also part of the sacrum bone he is one off the best in the us and if you want I will give his name and telephone number he safe my life after some may doctors they try to operate I got diagnose with chordoma cancer on the tail bone also part off my sacrum bone was involve .best regards john

This comment has been removed by the Moderator

ruthied

Dicko said:

Sacrum Cancer
Hello Alan,

I have cancer in the sacrum which apparently travelled from my original bowel-cancer. I have been through radiation and chemo treatments with more chemo coming imminently. In my case(and it is important to realise that everyone is different), surgery is not a viable option as the risk of damage to my nervous system is too high. This situation may also have a lot to do with the UK approach to cancer care in that the balance between treatment and life-style is the first objective. The American way seems to us over here to be to 'kill it' and cope with the risks. Frankly neither policy is wrong - it's what you personally feel you can cope with.

I would recommend talking to an Oncologist i.e. get a second opinion before going near the operating table! I am not a Doctor or 'medical', but in my case surgery will certainly leave me incontinent and possibly semi-immobile i.e. walking difficulty.

I am also investigating Cyberknife, but again I don't know yet whether the position of the tumor in my sacrum amongst the nerves will preclude this. You could talk to your Oncologist about this or to a hospital near you that has the Cyberknife technology.

I wish you well!

****

hi
hi **** i had a sacrectomy on 12th march my storys on www.helpruthie.co.uk ..i too had bowel cancer that spread high up in the rectum and all up to the sacrum bones 1 to 4 ...im 5 months on walking and my only disability is i pee usig a catheter and i have a colostomy bag ....my surgeons name is dr sagar leeds general hospital uk,he carries out most of the uks sacrectomies with good sucsess...my only worry is my cea went to 31 today but all my scans are clear..im not incontinent either so i hope this helps ruth

Dram5

jjhnyc said:

sacrum bone doctor
Hi Alan I have one off the best doctors on the field on spine tumors I just did a surgery on the back remove the tail bone and also part of the sacrum bone he is one off the best in the us and if you want I will give his name and telephone number he safe my life after some may doctors they try to operate I got diagnose with chordoma cancer on the tail bone also part off my sacrum bone was involve .best regards john

sacrum chordoma surgery
Hi John,

I am going to undergo a surgery for removal of chordoma tumor on my tailbone (S2) . The tailbone will be removed during thesurgery.
I much appriciate if you could give your thoughts and experince preand post surgery . Do you experince bowel and urine incontinance after surgery. Is it only for short period or permanat. My surgery is on 11th September.

Best regards

Darin

jasonm1968

jjhnyc said:

sacrum bone doctor
Hi Alan I have one off the best doctors on the field on spine tumors I just did a surgery on the back remove the tail bone and also part of the sacrum bone he is one off the best in the us and if you want I will give his name and telephone number he safe my life after some may doctors they try to operate I got diagnose with chordoma cancer on the tail bone also part off my sacrum bone was involve .best regards john

hello from Jason Murray

Could i please have the name and number of your doctor? My mother has been diagnosed with this form of cancer.my email is jasonm1968@gmail.com.thankyou

lumani1

ruthied said:

hi
hi **** i had a sacrectomy on 12th march my storys on www.helpruthie.co.uk ..i too had bowel cancer that spread high up in the rectum and all up to the sacrum bones 1 to 4 ...im 5 months on walking and my only disability is i pee usig a catheter and i have a colostomy bag ....my surgeons name is dr sagar leeds general hospital uk,he carries out most of the uks sacrectomies with good sucsess...my only worry is my cea went to 31 today but all my scans are clear..im not incontinent either so i hope this helps ruth

Sacrum cancer

Hi Ruthied! 

My daughter having sacrum tumor. At presented time we ar processing pre operative radiotherapy. Can I ask to You please, - in Your case, sacrum was resected totally or partially? 

lumani1

Dicko said:

Sacrum Cancer
Hello Alan,

I have cancer in the sacrum which apparently travelled from my original bowel-cancer. I have been through radiation and chemo treatments with more chemo coming imminently. In my case(and it is important to realise that everyone is different), surgery is not a viable option as the risk of damage to my nervous system is too high. This situation may also have a lot to do with the UK approach to cancer care in that the balance between treatment and life-style is the first objective. The American way seems to us over here to be to 'kill it' and cope with the risks. Frankly neither policy is wrong - it's what you personally feel you can cope with.

I would recommend talking to an Oncologist i.e. get a second opinion before going near the operating table! I am not a Doctor or 'medical', but in my case surgery will certainly leave me incontinent and possibly semi-immobile i.e. walking difficulty.

I am also investigating Cyberknife, but again I don't know yet whether the position of the tumor in my sacrum amongst the nerves will preclude this. You could talk to your Oncologist about this or to a hospital near you that has the Cyberknife technology.

I wish you well!

****

Sacrum cancer

Hi Dicko

My daughter having sacrum tumor. At presented time we ar processing pre operative radiotherapy. Can I ask to You please, - did You experience any other methods against Your disease? 

Razmataz1

lumani1 said:

Sacrum cancer

Hi Dicko

My daughter having sacrum tumor. At presented time we ar processing pre operative radiotherapy. Can I ask to You please, - did You experience any other methods against Your disease? 

cancer in the sacrum...a little late

Hi Lani1...  I know I'm a little late but my leiomyosarcoma of the uterus went into my sacrum bone in oct 2017.    They did radiation...I was already doing chemo.  Then they stopped the chemo and sent me to a neurologist who operated in march 2018 and took out my tailbone and part of my sacrum.  He is a fabulous neurosurgeon and my pain immediately started going away...  I will be forever grateful...