Thanks so Much !!!!
Once more, thank you all.
Oh, the nurse went out and brought a mask in and explained how they would make it and every thing. I've decided that when I get through this I'm going to get a nice piece of wood like they mount animal heads on and mount the mask on it and hang it on the wall.
Hang in there everyone!!! John
Comments
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i just prayed about this stuff...
john,
my mom has her first consult with rad doc on tuesday. it appears we're following just behind you..... and i have a question! do you mind?
what's erbatux?
i'm pretty positive that mom will be fitted for a mask, too (based on what i've asked other patients/survivors) but the docs haven't told us that yet. she's going to have rad for her tongue cancer (now removed)... 5x/week, 6 weeks.
hoping all goes well for you!!
thanks.
~k0 -
Erbatux (sp)Katmir said:i just prayed about this stuff...
john,
my mom has her first consult with rad doc on tuesday. it appears we're following just behind you..... and i have a question! do you mind?
what's erbatux?
i'm pretty positive that mom will be fitted for a mask, too (based on what i've asked other patients/survivors) but the docs haven't told us that yet. she's going to have rad for her tongue cancer (now removed)... 5x/week, 6 weeks.
hoping all goes well for you!!
thanks.
~k
Hi Katmir,
I don't know if I'm getting the spelling right, but the chemo doc said it was chemo ,but not. It makes the tumor more receptive to the radiation. They said I wouldn't loose my hair and it doesn't usually make you sick, that the only side affect is a rash from the upper chest up on you're face.That it looks like acne, but instead of treating it like acne you have to use moisturizers and that they would give me a cream for it. The nurse said that it usually gets a lot better after a couple of wks.
The radiologist said that they would also give me a shot of amifostine (generic name) it helps to prevent damage to the surrounding tissue from the radiation. Hopefully saves saliva glands,or at least saves them a little.
As far as the mask goes the nurse brought one in so I could look at it and it wasn't as scary as I thought. It is a plastic mesh. The holes in the mesh are about a half in. so it isn't as bad as I thought.
Hope the big dose of that stuff tomorrow doesn't bother me too much 'cause I'm still trying to get things caught up outside. Oh well, got to do what we've got to do.
All the best to you're mom. We can do this!!!!
John0 -
thinking about you today!John oldtmr said:Erbatux (sp)
Hi Katmir,
I don't know if I'm getting the spelling right, but the chemo doc said it was chemo ,but not. It makes the tumor more receptive to the radiation. They said I wouldn't loose my hair and it doesn't usually make you sick, that the only side affect is a rash from the upper chest up on you're face.That it looks like acne, but instead of treating it like acne you have to use moisturizers and that they would give me a cream for it. The nurse said that it usually gets a lot better after a couple of wks.
The radiologist said that they would also give me a shot of amifostine (generic name) it helps to prevent damage to the surrounding tissue from the radiation. Hopefully saves saliva glands,or at least saves them a little.
As far as the mask goes the nurse brought one in so I could look at it and it wasn't as scary as I thought. It is a plastic mesh. The holes in the mesh are about a half in. so it isn't as bad as I thought.
Hope the big dose of that stuff tomorrow doesn't bother me too much 'cause I'm still trying to get things caught up outside. Oh well, got to do what we've got to do.
All the best to you're mom. We can do this!!!!
John
hope all goes well...0
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