Not any better off...Anyone care to vote?

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Comments

  • Kayla1
    Kayla1 Member Posts: 101
    #22
    confused123 said:

    I am sorry you have to make
    I am sorry you have to make such a hard decision in such a confusing time. Wish I could be of more help, you have been so positive for everyone else. I suggest getting a second opinion, you may be in the middle but maybe a different doc can be of more help decision wise with stats of chemo or no chemo for people on your position. Maybe a different doc will see you more on one side of the road than the other.

    Thinking of you
    Kim

    T,
    I'm really happy to hear
    T,
    I'm really happy to hear you are going to get a second opinion. You need to feel confident that your dr. is giving you the best possible care and answer every question you have until you are completely satisfied and have no doubts with your decision on treatment.

    I was told that if I did chemo (only 4 treatments), radiation, and hormone therapy I am going to give myself a chance to live until I'm 80 and greatly reduce the chance of recurrence. This was told to me by my surgeon, onc, and radiation doc. How can I mess with that!

    I pray that you get the answers you need to make the right decision for you!
    Love & Hugs,
    K
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    #23
    jgridley said:

    Do you have my oncolgist?
    T, after reading your response, I wonder if you have the same onc as I.
    doesn't seem to care about what I say or do. because of his lack of caring about what I have to say, or even the remote interest, I have lymphdema now. I have been seriously think about going to the James Cancer Center at Ohio State Hospital. It's a long haul, but maybe I would be taken more serious.

    I hope and pray that things will get better for you at new oncologist.

    Julie

    Julie
    I've heard nothing but good about that place!
  • BCdone
    BCdone Member Posts: 8
    #24
    My vote
    I had the ONCODX test and believe it or not it came back right in the middle - not high - not low!! First of all I had a lumpectomy and then Mammosite. I was stage 1 - no lymph node involvement. My husband really helped with the chemo decision. He wanted me around and I decided to have it done. It's not easy or fun but I'm glad I did it - learned a lot about myself. Now I am on Femara and going through all the yearly tests - but I know I have done everything I could to fight cancer. No doubts at all. I would do the same thing again.
  • taleena
    taleena Member Posts: 1,612 Member
    #25
    BCdone said:

    My vote
    I had the ONCODX test and believe it or not it came back right in the middle - not high - not low!! First of all I had a lumpectomy and then Mammosite. I was stage 1 - no lymph node involvement. My husband really helped with the chemo decision. He wanted me around and I decided to have it done. It's not easy or fun but I'm glad I did it - learned a lot about myself. Now I am on Femara and going through all the yearly tests - but I know I have done everything I could to fight cancer. No doubts at all. I would do the same thing again.

    Just wanted to say "thank
    Just wanted to say "thank you once again" for all of your input... it is a hard decision for me..it isn't vanity over losing my hair... it's just all of it... I know that I will hear similar information from my second opinion at the Caner Center.. but what I am hoping is that I will have a doctor who isn't afraid to express his opinion.. with I would recommend x y or z.. but ulimately it's your choice... that would be nice to hear.. aren't they supposed to help guide us... I think .. I have decided that if it does come out to be in the middle... I will go ahead with the chemo... it just scares me to death... sniff...sniff. trying to hold my head high and be strong... but sometimes, I catch my eyes filling with tears... deep breath in.. exhale.. okay tears are gone now... I know I have a lot of good things going for me ER +, PR + HER2 (two conflicting reports but the FISH say Unamplified so we'll go with that the other says positive)... so we will say HER2-.... now the wait for the ONCOTYPEDX and meeting with new Oncologist!!! Whoever said, if your not comfortable with your doctor seek a second opinion... could not be further from the truth... and is my hero!

    Hugs, Love & Friendship,

    ~T
  • lynn1950
    lynn1950 Member Posts: 2,570
    #26
    taleena said:

    Just wanted to say "thank
    Just wanted to say "thank you once again" for all of your input... it is a hard decision for me..it isn't vanity over losing my hair... it's just all of it... I know that I will hear similar information from my second opinion at the Caner Center.. but what I am hoping is that I will have a doctor who isn't afraid to express his opinion.. with I would recommend x y or z.. but ulimately it's your choice... that would be nice to hear.. aren't they supposed to help guide us... I think .. I have decided that if it does come out to be in the middle... I will go ahead with the chemo... it just scares me to death... sniff...sniff. trying to hold my head high and be strong... but sometimes, I catch my eyes filling with tears... deep breath in.. exhale.. okay tears are gone now... I know I have a lot of good things going for me ER +, PR + HER2 (two conflicting reports but the FISH say Unamplified so we'll go with that the other says positive)... so we will say HER2-.... now the wait for the ONCOTYPEDX and meeting with new Oncologist!!! Whoever said, if your not comfortable with your doctor seek a second opinion... could not be further from the truth... and is my hero!

    Hugs, Love & Friendship,

    ~T

    Glad you are going for a second opinion
    As hard as the wait is, peace of mind is so important. I am hopeful that you will find an onc that COMMUNICATES. Lynn
  • CR1954
    CR1954 Member Posts: 1,390 Member
    #27
    taleena said:

    Just wanted to say "thank
    Just wanted to say "thank you once again" for all of your input... it is a hard decision for me..it isn't vanity over losing my hair... it's just all of it... I know that I will hear similar information from my second opinion at the Caner Center.. but what I am hoping is that I will have a doctor who isn't afraid to express his opinion.. with I would recommend x y or z.. but ulimately it's your choice... that would be nice to hear.. aren't they supposed to help guide us... I think .. I have decided that if it does come out to be in the middle... I will go ahead with the chemo... it just scares me to death... sniff...sniff. trying to hold my head high and be strong... but sometimes, I catch my eyes filling with tears... deep breath in.. exhale.. okay tears are gone now... I know I have a lot of good things going for me ER +, PR + HER2 (two conflicting reports but the FISH say Unamplified so we'll go with that the other says positive)... so we will say HER2-.... now the wait for the ONCOTYPEDX and meeting with new Oncologist!!! Whoever said, if your not comfortable with your doctor seek a second opinion... could not be further from the truth... and is my hero!

    Hugs, Love & Friendship,

    ~T

    You know T....
    Chemo was the obvious choice for me, as I have said.

    But my surgeon told me that the chemo would take care of any "stray" cancer cells that might be in my body. I remember that at the time, all I could think was....GULP! Just recovering from mastectomy & 21 lymph nodes removed (trauma, stress and ouch!) and here she was telling me there could be STRAYS just floating around, looking for a homey place to take root! Who would have thought......

    I think and I hope that your new doc will give you a recommendation, according to his/her experience and protocol. And if chemo is what he/she recommends, we will always be here for you. Just as you have been here for so many others.

    Hugs, hugs and more hugs...

    CR
  • phoenixrising
    phoenixrising Member Posts: 1,508
    #28
    My two cents
    Taleena, hit with your best shot!! Too many women are experiencing recurrences. What would you say to yourself if it came back or you got mets? Would you have any regrets? If mine came back I would always wonder if it was because I didn't do rads. I didn't want to do chemo but now I'm glad I did. Don't give this insidious disease any opportunity to come back.

    hugs
    jan
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    #29
    taleena said:

    Just wanted to say "thank
    Just wanted to say "thank you once again" for all of your input... it is a hard decision for me..it isn't vanity over losing my hair... it's just all of it... I know that I will hear similar information from my second opinion at the Caner Center.. but what I am hoping is that I will have a doctor who isn't afraid to express his opinion.. with I would recommend x y or z.. but ulimately it's your choice... that would be nice to hear.. aren't they supposed to help guide us... I think .. I have decided that if it does come out to be in the middle... I will go ahead with the chemo... it just scares me to death... sniff...sniff. trying to hold my head high and be strong... but sometimes, I catch my eyes filling with tears... deep breath in.. exhale.. okay tears are gone now... I know I have a lot of good things going for me ER +, PR + HER2 (two conflicting reports but the FISH say Unamplified so we'll go with that the other says positive)... so we will say HER2-.... now the wait for the ONCOTYPEDX and meeting with new Oncologist!!! Whoever said, if your not comfortable with your doctor seek a second opinion... could not be further from the truth... and is my hero!

    Hugs, Love & Friendship,

    ~T

    T
    chemo is "doable". It's not fun,but you can get through it!

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