Newly diagnosed

TBORE
TBORE Member Posts: 1
edited March 2014 in Breast Cancer #1
Hi all,
Last Friday 6-12-09 it was confirmed that I have Invasive Ductal Carcinoma,Nottingham histologic grade 3( nuclear grade3),involving three of three tissues cures with a max linear dimenision of 0.9 cm. and High grade ductal carcinoma in situ and lymphovascular invasion is Identified...

Also estrogen receptor : positive 100%
Progesterone Receptor:positive 90%
Proliferation rate ( mid-1) :High
HER-2/neu by fluorescence in siti hybridization ( FISH) negative

Can ANYONE TELL me what this all means? I am scared to death and my Doctor and I can't seem to catch up with each other4 on the phone......You can also email me @ [email protected]...

THANK YOU ALL!
«1

Comments

  • confused123
    confused123 Member Posts: 251
    Dear TBORE,
    I don't know

    Dear TBORE,
    I don't know what all of it means, but really all the stuff they find out and name determines the treatment you get I think.
    Invasive Ductal Carcinoma means it is inside the dicts inside your breast tissue. My doc told me that it is like a pipe system. Sometimes the cancer is in them, sometimes out, mine was both.
    Sorry I am not sure what the other stuff means, hope you hear from the doc soon. I am sure others will post more info for you
    Also, I found the first week the worst. After talking to my doc and figuring out the course of treatment I felt better even though I needed a mast and chemo and rad. Don't think the worst, there is so much treatment out there now for all of us. LEt us know how you make out.
  • jnl
    jnl Member Posts: 3,869 Member
    When is your next
    When is your next appointment with your doctor? And, next time you call, be insistent and maybe don't be so nice. Tell them you are terrified and confused and need some help NOW! That should get you thru. Sometimes, sadly, we have to be forceful and not so timid.

    My opinion is that it says that you are ER and PR positive. The rest of it, it would be easier for your doctor to explain. Call them again and be forceful. Good luck!
  • Noel
    Noel Member Posts: 3,095 Member
    Hi Tbore and welcome. So
    Hi Tbore and welcome. So sorry that you found us due to your having bc. But, this is a wonderful site. You will find a lot of support to help you thru this.

    My advice is to keep calling your doctor for the information that you want. Don't you have an appointment setup to meet with him? If not, make one as soon as possible.

    These are things you need explained to you, by your doctor.

    Good luck! Noel
  • mdfau
    mdfau Member Posts: 12
    Talk To Your Doctor
    I had the same situation. But I had three in the right breast. Some were lobular and the other was ductal & lobular.

    I changed my first surgeon, as he would not give me any details of my situation. Went to another surgeon, who was wonderful. You also might want to get a second opinion.

    Also, find a good hopsital that specializes in cancer surgery.

    Make a list of questions before you meet with the doctor. I decided to have a right side masectomy, which was a good choice.

    There are a lot of options available, which is great to know!

    Hope everything goes well.
  • mimivac
    mimivac Member Posts: 2,143
    Welcome, Tbore
    First, take a deep breath. You're going to be all right. It's terrifying and confusing at first, all these unfamiliar terms and no one to tell you what they mean. I second the suggestion to see your doctor as soon as possible to get some answers. Make sure to bring a notebook to write down both your questions and the doctor's answers. It usually also helps to bring someone with you who can help you keep track of all the technical information. Selective hearing during emotional times is very common. What I am about to way is no substitute for your own doctor's assessment. I'm just interpreting your pathology report according to my own layperson's understanding.

    Invasive ductal carcinoma or IDC is the most common form of breast cancer. It means that the cancer cells are capable of invading surrounding breast tissue and reside in the ducts of your breasts. Most people have this type of breast cancer.

    The Nottingham grade refers to several factors, but basically measures how different the breast cancer cells are from normal cells and how fast they are capable of multiplying. A grade three means that they are poorly differentiated and therefore quite different from normal cells. I also have a grade 3 breast cancer. Many people do.

    .9 cm is probably the size of the tumor. This is a very small tumor and very good news. For comparison, my tumor is also considered on the small side and it was 2.6 cm.

    Ductal carcinoma in situ or DCIS is non-invasive cancer that doesn't have potential to spread to surrounding breast tissue. You have a mixture of both IDC and DCIS, invasive and non-invasive. High grade DCIS is DCIS with cells that look quite a bit different from normal cells. See discussion of Nottingham grade above.

    Estrogen and Progesteron are receptors. You are very positive for both, meaning that the tumor is fed by the hormones estrogen and progesterone. This is good news because it means you'll be a candidate for cancer drugs like Tamoxifen and the like. These drugs prevent the body from using estrogen and progesterone to make breast cancer cells.

    HER2/neu is also a receptor, but it's a gene rather than a hormome (I believe). HER2 positive breast cancer is generally more aggressive, so it's good that you're negative.

    Again, please talk to your doctor. You'll get through this. Come back and let us help you.

    Mimi
  • jgridley
    jgridley Member Posts: 169
    newly diagnosed
    T, Er positive means is erstrogen receptor and PR positive means Progestron receptor. At least that is how my doc explained to me. HER2 is negative so I take that as a good thing. As for the rest of it, I am not too sure. But call doc and tell them u want answers.

    take it from someone who learned it the hard way, u are your own best advocate

    Julie
  • Kat11
    Kat11 Member Posts: 1,931 Member
    mimivac said:

    Welcome, Tbore
    First, take a deep breath. You're going to be all right. It's terrifying and confusing at first, all these unfamiliar terms and no one to tell you what they mean. I second the suggestion to see your doctor as soon as possible to get some answers. Make sure to bring a notebook to write down both your questions and the doctor's answers. It usually also helps to bring someone with you who can help you keep track of all the technical information. Selective hearing during emotional times is very common. What I am about to way is no substitute for your own doctor's assessment. I'm just interpreting your pathology report according to my own layperson's understanding.

    Invasive ductal carcinoma or IDC is the most common form of breast cancer. It means that the cancer cells are capable of invading surrounding breast tissue and reside in the ducts of your breasts. Most people have this type of breast cancer.

    The Nottingham grade refers to several factors, but basically measures how different the breast cancer cells are from normal cells and how fast they are capable of multiplying. A grade three means that they are poorly differentiated and therefore quite different from normal cells. I also have a grade 3 breast cancer. Many people do.

    .9 cm is probably the size of the tumor. This is a very small tumor and very good news. For comparison, my tumor is also considered on the small side and it was 2.6 cm.

    Ductal carcinoma in situ or DCIS is non-invasive cancer that doesn't have potential to spread to surrounding breast tissue. You have a mixture of both IDC and DCIS, invasive and non-invasive. High grade DCIS is DCIS with cells that look quite a bit different from normal cells. See discussion of Nottingham grade above.

    Estrogen and Progesteron are receptors. You are very positive for both, meaning that the tumor is fed by the hormones estrogen and progesterone. This is good news because it means you'll be a candidate for cancer drugs like Tamoxifen and the like. These drugs prevent the body from using estrogen and progesterone to make breast cancer cells.

    HER2/neu is also a receptor, but it's a gene rather than a hormome (I believe). HER2 positive breast cancer is generally more aggressive, so it's good that you're negative.

    Again, please talk to your doctor. You'll get through this. Come back and let us help you.

    Mimi

    Welcome Tbore, I have DCIS
    Welcome Tbore, I have DCIS and IDC. I am Er and pr positive and her2 positive. 2 weeks ago I had surgery. ( lumpectomy ) You need a doctor who you can talk to, who returns your calls, who explains everything to you even though you will probably be lost anyways and come on this site to have the others explain it to you. You will not get all the answers right away. Waiting is a big part of your DX and treatment, as I have learned. The information does come just maybe not as fast as you would like it to. I was told to breath, when I thought I was going to go crazy. Good luck, and we will be here every step of the way.
  • tasha_111
    tasha_111 Member Posts: 2,072
    jgridley said:

    newly diagnosed
    T, Er positive means is erstrogen receptor and PR positive means Progestron receptor. At least that is how my doc explained to me. HER2 is negative so I take that as a good thing. As for the rest of it, I am not too sure. But call doc and tell them u want answers.

    take it from someone who learned it the hard way, u are your own best advocate

    Julie

    No clue here
    All I know about mine was they cut it out, lymph nodes were removed and I have to take tamoxifen now.
    You all sound a lot more knowledgeable than I was, I was just in a confused lonely hole thruout.

    Maybe I'll ask my onco on next visit. Jxxxxxxxx
  • taleena
    taleena Member Posts: 1,612 Member
    TBORE.. Welcome to the
    TBORE.. Welcome to the group, though I am so sorry that you are here, I am glad you found us. You have already had a wealth of information thrown your way. So, all I will add is, take a deep breath, exhale... and take it one day at a time... not only day to day, but moment by moment... use this site.. the group here is a family like no other... you will find information, support, acceptance, and a group that will go the distance with you. Get in to your doctor... then let us know how you are.

    Hugs..

    ~T
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Welcome....
    Tbore, I don't blame you for being scared to death. Your going through a scarey disease.
    EVERYTHING is terrifying in the beginning because we are not educated about our disease yet. I have only been going through this for a total of 6 weeks and I'm here to tell you that it will become easier for you the more you find out & know. Be careful of surfing the internet for info (not a good idea) and stck to reliable sites (even my Doctors recommend this one!!). Everything will be made known to you in time and you'll settle into working on your treatments. Hang in there and seek us out anytime....we're here. :) Pammy
  • dyaneb123
    dyaneb123 Member Posts: 950
    mimivac said:

    Welcome, Tbore
    First, take a deep breath. You're going to be all right. It's terrifying and confusing at first, all these unfamiliar terms and no one to tell you what they mean. I second the suggestion to see your doctor as soon as possible to get some answers. Make sure to bring a notebook to write down both your questions and the doctor's answers. It usually also helps to bring someone with you who can help you keep track of all the technical information. Selective hearing during emotional times is very common. What I am about to way is no substitute for your own doctor's assessment. I'm just interpreting your pathology report according to my own layperson's understanding.

    Invasive ductal carcinoma or IDC is the most common form of breast cancer. It means that the cancer cells are capable of invading surrounding breast tissue and reside in the ducts of your breasts. Most people have this type of breast cancer.

    The Nottingham grade refers to several factors, but basically measures how different the breast cancer cells are from normal cells and how fast they are capable of multiplying. A grade three means that they are poorly differentiated and therefore quite different from normal cells. I also have a grade 3 breast cancer. Many people do.

    .9 cm is probably the size of the tumor. This is a very small tumor and very good news. For comparison, my tumor is also considered on the small side and it was 2.6 cm.

    Ductal carcinoma in situ or DCIS is non-invasive cancer that doesn't have potential to spread to surrounding breast tissue. You have a mixture of both IDC and DCIS, invasive and non-invasive. High grade DCIS is DCIS with cells that look quite a bit different from normal cells. See discussion of Nottingham grade above.

    Estrogen and Progesteron are receptors. You are very positive for both, meaning that the tumor is fed by the hormones estrogen and progesterone. This is good news because it means you'll be a candidate for cancer drugs like Tamoxifen and the like. These drugs prevent the body from using estrogen and progesterone to make breast cancer cells.

    HER2/neu is also a receptor, but it's a gene rather than a hormome (I believe). HER2 positive breast cancer is generally more aggressive, so it's good that you're negative.

    Again, please talk to your doctor. You'll get through this. Come back and let us help you.

    Mimi

    Wow Mimi. That was an
    Wow Mimi. That was an excellent explanation.
    I don't think anyone is going to explain it better. Hope it helps.
    Dee
  • brenda247
    brenda247 Member Posts: 124
    hey
    i havent been on here long myself but going through a tough time.. i had breast cancer stage 2 and they done a mastomomy took out 3 limpnodes.. they were all clean.. thank god!!! then i was sent to ct scans all over my body just to make sure it any had excaped luckily they hadnt.. thanks god again.. but mine was aggressive and invasive if i dont take treatment it could come back.. i had her2 too and it means that high in protein and good cells can go bad left untreated.. dont worry im still learning as i go and this site really helps me.. everyone is different so hang in there and we are here for you... take care.. god bless..
  • Kylez
    Kylez Member Posts: 3,761 Member
    Just want to welcome you to
    Just want to welcome you to this site TBORE. I can't tell you what that means. You need to go see your doctor and they will explain it to you. Good luck!
  • iceberg73
    iceberg73 Member Posts: 3
    Kylez said:

    Just want to welcome you to
    Just want to welcome you to this site TBORE. I can't tell you what that means. You need to go see your doctor and they will explain it to you. Good luck!

    TBORE
    Hello TBORE and everyone.

    I also have been just been informed that I have breast cancer. In reading your message I was a amazed at the lack of response of your medical staff. I have always thought that here in Alaska we were way behind the times and because of that many people still opt to go out of Alaska for treatment.

    I assume that your doctor is not part of a cancer treatment center. We have a new Cancer treatment center here that opened last year at Providence Hospital. They work hand in hand with The Fred Hutchinson Center in Seattle. I was told I had cancer on a Friday when my doctor called me she had me set up an appointment with a surgeon that specialized in cancer surgery the next Monday morning. I was schedualed for out patient surgery within two weeks. In the mean time they sent me to a radiology oncologist and set up an appointment for me with a medical onocologist. I saw her yesterday. I had a very small tumor less then .9 cm. It was not there on last years' mamogram. I start radiation today.

    I was a little disappointed because I tried to be able to have the balloon treatment which is two radiation treatments a day for 5 days. Unfortuneately there is not enough tissue in the area to protect the chest wall. So they are giving me a boost treatment today and will then remove the balloon. Then I will have to go for radiation treatments for five weeks. After that I will be treated with a estrogeon inhibitor for five years. At least that is the plan for now if nothing changes in the mean time. After hearing your story I won't complain any more about having to go and see all of these different doctors. I am very thankful that my treatment is progressing very quickly.

    Can any one give me some tips on a good diet to follow during radiation?

    Thanks.

    TBORE my prayers are with you. I hope they get your treatment going for you right away. This situation is scary and the longer you have to wait the stronger your fear becomes. I think that once you know that something is being done about it even though you may feel like you are on the set of a science fiction movie during some of this stuff. You are relieved that something is being done and it helps to remove that helpless feeling of not being able to do anything.

    God bless.
    Nancy

    Is there a cancer center close to you that you could go in for another opinion?
  • jnl
    jnl Member Posts: 3,869 Member
    iceberg73 said:

    TBORE
    Hello TBORE and everyone.

    I also have been just been informed that I have breast cancer. In reading your message I was a amazed at the lack of response of your medical staff. I have always thought that here in Alaska we were way behind the times and because of that many people still opt to go out of Alaska for treatment.

    I assume that your doctor is not part of a cancer treatment center. We have a new Cancer treatment center here that opened last year at Providence Hospital. They work hand in hand with The Fred Hutchinson Center in Seattle. I was told I had cancer on a Friday when my doctor called me she had me set up an appointment with a surgeon that specialized in cancer surgery the next Monday morning. I was schedualed for out patient surgery within two weeks. In the mean time they sent me to a radiology oncologist and set up an appointment for me with a medical onocologist. I saw her yesterday. I had a very small tumor less then .9 cm. It was not there on last years' mamogram. I start radiation today.

    I was a little disappointed because I tried to be able to have the balloon treatment which is two radiation treatments a day for 5 days. Unfortuneately there is not enough tissue in the area to protect the chest wall. So they are giving me a boost treatment today and will then remove the balloon. Then I will have to go for radiation treatments for five weeks. After that I will be treated with a estrogeon inhibitor for five years. At least that is the plan for now if nothing changes in the mean time. After hearing your story I won't complain any more about having to go and see all of these different doctors. I am very thankful that my treatment is progressing very quickly.

    Can any one give me some tips on a good diet to follow during radiation?

    Thanks.

    TBORE my prayers are with you. I hope they get your treatment going for you right away. This situation is scary and the longer you have to wait the stronger your fear becomes. I think that once you know that something is being done about it even though you may feel like you are on the set of a science fiction movie during some of this stuff. You are relieved that something is being done and it helps to remove that helpless feeling of not being able to do anything.

    God bless.
    Nancy

    Is there a cancer center close to you that you could go in for another opinion?

    TBORE, let us know what you
    TBORE, let us know what you find out after you see your doctor!
  • cwestbro
    cwestbro Member Posts: 15
    I was diagnosed with
    I was diagnosed with invasive ductual breast cancer last July. After surgery I was told I had two invasive tumors and multiple non-invasive. None showed up on any of the testing except the largest one. My largest was about your size, maybe a tad smaller. When they say your are estrogen positive, that means that you will probably be treated with tomoxifin (or a similar drug) HER 2 positive too, right? That also means that you can be treated with another drug, other than chemo. You will probably have the chemo option too, but the way I understand it's always better, if there can be a better breast cancer to have options other than chemo. I was HER 2 neg and estrogen/prgoesterone neg. My only option for treatment was chemo...Are you scheduled for surgery soon? You will get even more info after that...but keep asking questions to your dr. or nurse until they are all answered! IF there are issues with them explaining so you can understand get another dr!!! You have to know what you're dealing with and you are your only advocate!! Best wishes! ~ Cherri
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    Warm welcome, TBORE
    It's good that you found us, though I'm sorry for the reason. I hope that, by now - a day later, you've been able to speak directly to your own doctor.

    We're all here to support and encourage each other. Please visit often, whenever you'd like.

    Best wishes to you.

    Kind regards, Susan
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    iceberg73 said:

    TBORE
    Hello TBORE and everyone.

    I also have been just been informed that I have breast cancer. In reading your message I was a amazed at the lack of response of your medical staff. I have always thought that here in Alaska we were way behind the times and because of that many people still opt to go out of Alaska for treatment.

    I assume that your doctor is not part of a cancer treatment center. We have a new Cancer treatment center here that opened last year at Providence Hospital. They work hand in hand with The Fred Hutchinson Center in Seattle. I was told I had cancer on a Friday when my doctor called me she had me set up an appointment with a surgeon that specialized in cancer surgery the next Monday morning. I was schedualed for out patient surgery within two weeks. In the mean time they sent me to a radiology oncologist and set up an appointment for me with a medical onocologist. I saw her yesterday. I had a very small tumor less then .9 cm. It was not there on last years' mamogram. I start radiation today.

    I was a little disappointed because I tried to be able to have the balloon treatment which is two radiation treatments a day for 5 days. Unfortuneately there is not enough tissue in the area to protect the chest wall. So they are giving me a boost treatment today and will then remove the balloon. Then I will have to go for radiation treatments for five weeks. After that I will be treated with a estrogeon inhibitor for five years. At least that is the plan for now if nothing changes in the mean time. After hearing your story I won't complain any more about having to go and see all of these different doctors. I am very thankful that my treatment is progressing very quickly.

    Can any one give me some tips on a good diet to follow during radiation?

    Thanks.

    TBORE my prayers are with you. I hope they get your treatment going for you right away. This situation is scary and the longer you have to wait the stronger your fear becomes. I think that once you know that something is being done about it even though you may feel like you are on the set of a science fiction movie during some of this stuff. You are relieved that something is being done and it helps to remove that helpless feeling of not being able to do anything.

    God bless.
    Nancy

    Is there a cancer center close to you that you could go in for another opinion?

    Warm welcome to you, too, Nancy/iceberg73
    Though I regret your diagnosis - I'm glad you joined us. We're all here to share, and understand in ways that those outside of the cancer circle simply cannot.

    Sounds to me as if you're getting excellent medical care. Which is so very important, and half the battle.

    Best wishes to you.

    Kind regards, Susan
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    cwestbro said:

    I was diagnosed with
    I was diagnosed with invasive ductual breast cancer last July. After surgery I was told I had two invasive tumors and multiple non-invasive. None showed up on any of the testing except the largest one. My largest was about your size, maybe a tad smaller. When they say your are estrogen positive, that means that you will probably be treated with tomoxifin (or a similar drug) HER 2 positive too, right? That also means that you can be treated with another drug, other than chemo. You will probably have the chemo option too, but the way I understand it's always better, if there can be a better breast cancer to have options other than chemo. I was HER 2 neg and estrogen/prgoesterone neg. My only option for treatment was chemo...Are you scheduled for surgery soon? You will get even more info after that...but keep asking questions to your dr. or nurse until they are all answered! IF there are issues with them explaining so you can understand get another dr!!! You have to know what you're dealing with and you are your only advocate!! Best wishes! ~ Cherri

    OK, #3 here! Warm welcome to you, also, Cherri/cwestbro
    I'm glad you found our group, though I'm sorry for your diagnosis.

    We'll be here for you, to share each step along the journey.

    Best wishes.

    Kind regards, Susan
  • Jeanne D
    Jeanne D Member Posts: 1,867
    Hi TBORE
    Your oncologist will be able to explain your path report to you. I just want to say I am sorry that you are here because of bc, but, welcome you to a great supportive group!