I just got diagnosed on May 12, 2009 with PC, keeping my faith and head up.

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Comments

  • Watch.repair.man
    Watch.repair.man Member Posts: 49
    #22
    Thanks Larry.
    I was real glad to get the surgery moved up. I have 2 friends that had the RP done in Dec 08 and Apr 09. They said to take stool softeners, they were very serious about that, still waiting on the first bm. Walking is a good thing, may venture out of the house tomorrow.
    Thanks again Larry. Take care.
  • RRMCJIM
    RRMCJIM Member Posts: 149
    #23
    Watch.repair.man said:

    Thanks Larry.
    I was real glad to get the surgery moved up. I have 2 friends that had the RP done in Dec 08 and Apr 09. They said to take stool softeners, they were very serious about that, still waiting on the first bm. Walking is a good thing, may venture out of the house tomorrow.
    Thanks again Larry. Take care.

    Mine too!!!
    I know how you feel. Mine was scheduled for July 30th originally, when the Dr called and told me of the cancellation on May 22nd, I took it without a second thought. I was glad to have my surgery date sooner, for me, waiting was the hardest part. Hope your recovery goes well, I am now 4 weeks post surgery, ED non-existent .. still dealing with the Depends ... but even that is not a big deal ... about two a day...
    Jim
  • Watch.repair.man
    Watch.repair.man Member Posts: 49
    #24
    Catheter came out today!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    Man that does feel better.
    That has not been fun having that thing in, but oh well whatever it takes.
    My first pee on my own was pretty painful, several down the road and they still burn some.
    My doc told me today that the cancer took up 15% of my prostate. He said it had not made it to the outer wall, thank God for all the good news and catheter removal.
    Still on my first pad the doc gave me. It will get changed next time I go, it does squirt on it's own sometimes.
    Went to the drugstore to buy some depends and there is no feeling of shame at all.
    My wife said she would get them...lol, I love her. She has been like a nurse to me these last few days.
    I could not imagine going through this without someone being there to help.
    I am beat for now, think I have overdone it for this day, but it has been a great one.
    Take care to all of you.
  • Watch.repair.man
    Watch.repair.man Member Posts: 49
    #25
    RRMCJIM said:

    Mine too!!!
    I know how you feel. Mine was scheduled for July 30th originally, when the Dr called and told me of the cancellation on May 22nd, I took it without a second thought. I was glad to have my surgery date sooner, for me, waiting was the hardest part. Hope your recovery goes well, I am now 4 weeks post surgery, ED non-existent .. still dealing with the Depends ... but even that is not a big deal ... about two a day...
    Jim

    ED question
    Hi Jim.
    The doctor gave me 3 weeks of cialis to take daily to start things working again, blood etc.
    Did yours do this?
    Take care
    Keven
  • shubbysr
    shubbysr Member Posts: 87
    #26
    Watch.repair.man said:

    Catheter came out today!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    Man that does feel better.
    That has not been fun having that thing in, but oh well whatever it takes.
    My first pee on my own was pretty painful, several down the road and they still burn some.
    My doc told me today that the cancer took up 15% of my prostate. He said it had not made it to the outer wall, thank God for all the good news and catheter removal.
    Still on my first pad the doc gave me. It will get changed next time I go, it does squirt on it's own sometimes.
    Went to the drugstore to buy some depends and there is no feeling of shame at all.
    My wife said she would get them...lol, I love her. She has been like a nurse to me these last few days.
    I could not imagine going through this without someone being there to help.
    I am beat for now, think I have overdone it for this day, but it has been a great one.
    Take care to all of you.

    Ups and Downs - Man that does feel better!
    There will be days when you make progress (urinary control)(Ups) and there will be days when you feel that you have fallen back (Downs)
    I to have a wonderful wife being the only one here to help.I am using 3-4 depends every 24 hours. The best time that I am dry is when I wake up in the morning. As I have read and learned from postings, patience is necessary.
    I have Cialis but, hesitant to take it. Need to work up my courage!

    Jim (shubbysr)
  • Watch.repair.man
    Watch.repair.man Member Posts: 49
    #27
    shubbysr said:

    Ups and Downs - Man that does feel better!
    There will be days when you make progress (urinary control)(Ups) and there will be days when you feel that you have fallen back (Downs)
    I to have a wonderful wife being the only one here to help.I am using 3-4 depends every 24 hours. The best time that I am dry is when I wake up in the morning. As I have read and learned from postings, patience is necessary.
    I have Cialis but, hesitant to take it. Need to work up my courage!

    Jim (shubbysr)

    Thanks Jim.
    Thanks for the post Jim. The doctor gave me a 3 week supply of cialis that I am to take daily. I will start tomorrow, directions say to take around the same time each day.
    Why are you hesitant?
    Keven
  • RRMCJIM
    RRMCJIM Member Posts: 149
    #28
    Watch.repair.man said:

    Thanks Jim.
    Thanks for the post Jim. The doctor gave me a 3 week supply of cialis that I am to take daily. I will start tomorrow, directions say to take around the same time each day.
    Why are you hesitant?
    Keven

    good to go
    It is such a great feeling to get the cath out... woohoo... I have been taking the cialis as directed by my Dr... 5mg for 6 days, then 20mg on day 7.... did this for two weeks...then only the 20mg once per week... face flushing, headache....he told me I don't seem to need it, so he said I could go to as needed...erections are normal for me, have not had any problems yet with ED... he said he feels the cialis helps in reduction of scar tissue, it keeps the blood flowing to where we need it to...keep us posted.. incontinence seems to be less all the time, down to just pads now, see how long that lasts... will probably still sleep with a depends tho, just for peace of mind for now..
    Jim
  • shubbysr
    shubbysr Member Posts: 87
    #29
    RRMCJIM said:

    good to go
    It is such a great feeling to get the cath out... woohoo... I have been taking the cialis as directed by my Dr... 5mg for 6 days, then 20mg on day 7.... did this for two weeks...then only the 20mg once per week... face flushing, headache....he told me I don't seem to need it, so he said I could go to as needed...erections are normal for me, have not had any problems yet with ED... he said he feels the cialis helps in reduction of scar tissue, it keeps the blood flowing to where we need it to...keep us posted.. incontinence seems to be less all the time, down to just pads now, see how long that lasts... will probably still sleep with a depends tho, just for peace of mind for now..
    Jim

    good to go - Cialis
    Interesting to note that doctor suggested cialis for reduction in scar tissue and increased blood flow. My doctor at John Hopkins sugessted cialis to use as needed for erections. I still am somewhat hesitant to use but, maybe this weekend!!!
    Jim (shubbysr)
  • Watch.repair.man
    Watch.repair.man Member Posts: 49
    #30
    shubbysr said:

    good to go - Cialis
    Interesting to note that doctor suggested cialis for reduction in scar tissue and increased blood flow. My doctor at John Hopkins sugessted cialis to use as needed for erections. I still am somewhat hesitant to use but, maybe this weekend!!!
    Jim (shubbysr)

    A funny thing happened the other night.
    The first night after I took the cialis during the day, I woke at around 3-4am kind of hurting. I had about 1/4 staff going on in my night pad, This happened on Wed night.
    It hurt because I just had the catheter taken out on Tuesday.
    I was happy for the 1/4 staff but too soon for I am still really tender.
    Does anyone know when the burning during peeing will get better.
    Some times it's not bad then others it is like the end is on fire?
    Thanks,
    Keven
  • lewvino
    lewvino Member Posts: 1,010
    #31
    shubbysr said:

    good to go - Cialis
    Interesting to note that doctor suggested cialis for reduction in scar tissue and increased blood flow. My doctor at John Hopkins sugessted cialis to use as needed for erections. I still am somewhat hesitant to use but, maybe this weekend!!!
    Jim (shubbysr)

    Jim,
    From what I have read
    Jim,
    From what I have read the cialis and other pills are very beneficial to get blood flowing back to the penis. I also read one article that stated if the penis is not getting the regular blood flow then scar tissue can start forming which will make it more difficult down the road for the return of erections. I plan on taking the pills as directed by the Dr after my surgery on Aug 12th.
    Larry
  • lion1
    lion1 Member Posts: 241
    #32
    Watch.repair.man said:

    A funny thing happened the other night.
    The first night after I took the cialis during the day, I woke at around 3-4am kind of hurting. I had about 1/4 staff going on in my night pad, This happened on Wed night.
    It hurt because I just had the catheter taken out on Tuesday.
    I was happy for the 1/4 staff but too soon for I am still really tender.
    Does anyone know when the burning during peeing will get better.
    Some times it's not bad then others it is like the end is on fire?
    Thanks,
    Keven

    Burning/ Aching Penis
    Watch,

    The burning lasted a month or so, but the aching at the tip of the penis lasted about 2 1/2mos. I believe it's from the catheter. Because whenever I have had the cystoscopy or URO my tip was sore for about two days following.

    Lion1
  • hopeful and optimistic
    hopeful and optimistic Member Posts: 2,346 Member
    #33
    Watch Repair Man
    I'm glad that you've completed the operation in a successful manner. ...You had a quick turnaround time which is good, and you are on your way which is great...........I'm still doing active surveillance....generally I'm O.K., but anytime something medically happens that is negative, I am bottered a lot.

    By the way, which doctor did you use?

    Do you know of any surgeons in Oklahoma City who you would recommend for the robotic?

    Ira
  • Watch.repair.man
    Watch.repair.man Member Posts: 49
    #34
    lion1 said:

    Burning/ Aching Penis
    Watch,

    The burning lasted a month or so, but the aching at the tip of the penis lasted about 2 1/2mos. I believe it's from the catheter. Because whenever I have had the cystoscopy or URO my tip was sore for about two days following.

    Lion1

    Long time for the burn.
    Man that's a long time to have the burning, oh well I will take it over the catheter.
    Like others on here have said, diluting the urine with lots of water etc. does help a lot on the burn.
    Keven
  • Watch.repair.man
    Watch.repair.man Member Posts: 49
    #35
    hopeful and optimistic said:

    Watch Repair Man
    I'm glad that you've completed the operation in a successful manner. ...You had a quick turnaround time which is good, and you are on your way which is great...........I'm still doing active surveillance....generally I'm O.K., but anytime something medically happens that is negative, I am bottered a lot.

    By the way, which doctor did you use?

    Do you know of any surgeons in Oklahoma City who you would recommend for the robotic?

    Ira

    Ira
    Hello Ira.
    I don't know anything about the OKC area. I used Dr. Milston here in Tulsa. He is with the Urologic Specialist's of Oklahoma. I have 3 friends who have used him since last Nov, 2008. I was number 362.
    From what I have heard about the robotic procedure, it is the best surgery to have. But it is up to the Doctors skills alone that makes it so. The robot only does what the Doctor commands with the joysticks. My most painful incision is the one on the left lower side where the assistant worked through, and it's not that bad now, almost 2 weeks past.
    I am not bragging in any way but the day after I had the catheter removed, I wanted to try and see how I could do without a pad. I only wore underwear for most of the day till around bedtime.
    All went well. I had a few drops but I have that if I don't shake well in the colder months. I was very excited. I have not done that again since for getting out of the house and doing stuff I wear the pads just in case.
    Today I have been only wearing underwear for most of the day since noon and have been doing great. I did put one on to go for a walk with my wife earlier.
    I am drinking my first beer since the operation, 3.0 natural light if you call that a beer..lol
    I believe that all my success so far is related to the Good Lord and the skill of the surgeons hands.
    I would highly recommend Dr. Milston. It would be a drive for you though.
    Take care.
    Keven

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