Has anyone have this????

qwe
qwe Member Posts: 124
edited March 2014 in Colorectal Cancer #1
A low oval crooked stoma and one end smaller then the other end.
Can not use the stencil to measure it right now my nurse is tracing
it on transparent paper and cutting it out then putting it on the barrier
to cut it.

Comments

  • qwe
    qwe Member Posts: 124
    #2
    Still waiting fore a reply
    Still waiting fore a reply sorry to be a pain in the but LOL.
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #3
    Nope
    Sorry, can't help you
    -p
  • PamPam2
    PamPam2 Member Posts: 370 Member
    #4
    Had a weird one
    I had a strange one, it was high and large, it was done on emergency basis so my intestines would not burst, the tumor had to wait till later to get taken out. If yours is fairly new, it will shrink in time and be a lot easier to deal with. I just cut a hole that was big enough, did not bother to measure that close, used the convetex durahesive or stoma hesive brand that stuck really good, and used the skin prep so my skin that was not covered would not get irritated. Mine shrunk up real good, and could use the opaque small bags, until I got a prolapse (probably from doing too much work too soon) and had to go back to the big bags and cutting a large hole. Be patient, yours will shrink up a lot.
    Pam
  • scouty
    scouty Member Posts: 1,965 Member
    #5
    Sounds okay to me
    Mine was also done during emergency surgery and the durn thing almost changed daily. I learned over time that some of those changes were signs of "things to come". The first most humbling moment I had was just after taking a shower and getting ready to dry my hair (before attaching the wafer and bag....bad me) my stoma decided to do what it does best and spill "stuff". That was the first time I realized I had to pay attention to what it looked like because it really does change in shape, size, and color for very good reasons.

    I hope you are getting support from an ostomy nurse and not relying on this site. A month from now you'll be telling us what to do!!!

    Lisa P.
  • qwe
    qwe Member Posts: 124
    #6
    scouty said:

    Sounds okay to me
    Mine was also done during emergency surgery and the durn thing almost changed daily. I learned over time that some of those changes were signs of "things to come". The first most humbling moment I had was just after taking a shower and getting ready to dry my hair (before attaching the wafer and bag....bad me) my stoma decided to do what it does best and spill "stuff". That was the first time I realized I had to pay attention to what it looked like because it really does change in shape, size, and color for very good reasons.

    I hope you are getting support from an ostomy nurse and not relying on this site. A month from now you'll be telling us what to do!!!

    Lisa P.

    Thank you I see a nurse she
    Thank you I see a nurse she is not an ostomy nurse I have one but have not heard or see her all most 2 weeks not much support around here.One meeting a month and in the summer they do not meet for 2 months so you can see were I am coming from i do not have the support I need.
    I go to Ostomyland chat.Some times American cancer Society chat but not many there have an Stoma.
  • Shayenne
    Shayenne Member Posts: 2,342
    #7
    qwe said:

    Thank you I see a nurse she
    Thank you I see a nurse she is not an ostomy nurse I have one but have not heard or see her all most 2 weeks not much support around here.One meeting a month and in the summer they do not meet for 2 months so you can see were I am coming from i do not have the support I need.
    I go to Ostomyland chat.Some times American cancer Society chat but not many there have an Stoma.

    Hi qwe!
    I have a stoma that is shrinking, it looked big at first, but the doctors told me it would take a few months to get to a normal size, I do measure with the stencil, and in the circle, I cut it out that shape over the wafer, then use the paste, away from the stoma abit, so it would stick better, but when I cut the shape of the stoma, I made it too the shape of the stome, so the cut would also be oval, I think I only saw an ostomy nurse once for it, in the hospital, and my home health nurses had helped me do it also, since they knew how to change it as well, if you have home health, maybe you can call the office and request a nurse who can show you how to do this the right way, they are RN's and in the hospital, they've had to change them as well, thank god for mine, or I would have been lost.

    Hugsss!
    ~Donna
  • snommintj
    snommintj Member Posts: 601
    #8
    Shayenne said:

    Hi qwe!
    I have a stoma that is shrinking, it looked big at first, but the doctors told me it would take a few months to get to a normal size, I do measure with the stencil, and in the circle, I cut it out that shape over the wafer, then use the paste, away from the stoma abit, so it would stick better, but when I cut the shape of the stoma, I made it too the shape of the stome, so the cut would also be oval, I think I only saw an ostomy nurse once for it, in the hospital, and my home health nurses had helped me do it also, since they knew how to change it as well, if you have home health, maybe you can call the office and request a nurse who can show you how to do this the right way, they are RN's and in the hospital, they've had to change them as well, thank god for mine, or I would have been lost.

    Hugsss!
    ~Donna

    oval
    Mine was sort of bloated figure 8 that eventually became an oval. I just smeared on plenty of sealer around my stoma the put on the bag. I never had any problems.
  • tiny one
    tiny one Member Posts: 465 Member
    #9
    stoma
    Some stoma's are irregular. They do get smaller with time. A stoma nurse will be the best person to show you how to get the appliance to fit well. I used the two piece convatec appliance, they worked well for me. There are alot of different ones out there.

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