TRIPLE NEGATIVE

2

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  • pinkkari09
    pinkkari09 Member Posts: 877
    #22
    Triple Neg
    Hi, I'm triple negative stage 3c, I'm staying away from the stats myself.... a lot of good stuff said here, we each have our own stats, we fight, we take care of ourselves, and we think positive....that's what we hold on too. I refuse to be thrown in a group of statistics. It is scary the things you hear, but the survival stories out-weigh everything. There are many women who have beaten this triple negative, and we can too.
    (((Hugs)))
    Kari
  • Unknown
    Unknown
    #23
    This comment has been removed by the Moderator
  • bratlee
    bratlee Member Posts: 2
    #24
    Me too
    Hi I this is my second go round with BC. I had it 7yrs ago ER, PR+, had lumpectomy, radiation and chemo A/C. I have been told that this new BC (same breast) is a NEW Primary tumor, not a reoccurance. Only had a 4% chance of this happening, but it did. This time the tumor was Triple Negative, grade 3. I had a bilateral Mastectomy with Tram Flap Reconstruction. Since I had radiation back in 2002 I can not do that again. I had my first Chemo C/T on Oct 7th and had allergic reactions to Taxotere even with the meds they gave me to try and prevent that. The decision has been made to discontinue Chemo. The decision not to do Chemo was scary, but I am okay with it. I am ready to get my life back on track. It doesn't seem fair that I still had to loose my hair though, hehe. My goal is to continue to recover from surgery and the side effects of the chemo. Thanks for letting me share, I wish you all well!
  • Akiss4me
    Akiss4me Member Posts: 2,188
    #25
    bratlee said:

    Me too
    Hi I this is my second go round with BC. I had it 7yrs ago ER, PR+, had lumpectomy, radiation and chemo A/C. I have been told that this new BC (same breast) is a NEW Primary tumor, not a reoccurance. Only had a 4% chance of this happening, but it did. This time the tumor was Triple Negative, grade 3. I had a bilateral Mastectomy with Tram Flap Reconstruction. Since I had radiation back in 2002 I can not do that again. I had my first Chemo C/T on Oct 7th and had allergic reactions to Taxotere even with the meds they gave me to try and prevent that. The decision has been made to discontinue Chemo. The decision not to do Chemo was scary, but I am okay with it. I am ready to get my life back on track. It doesn't seem fair that I still had to loose my hair though, hehe. My goal is to continue to recover from surgery and the side effects of the chemo. Thanks for letting me share, I wish you all well!

    So sorry, Bratlee
    I am so sorry to hear of your new cancer. I understand being on the odd end of the percentages. This has been occuring my entire treatment. I just found out it really has been my whole life, since only 1% to 4% of highschool sweethearts will remain married. I'm about to celebrate my 31st Anniversary with my wonderful Husband this year and yes, he was my highschool sweethart! This also tells me that even when I am given the bad odds....the Lord sees to it that I prevale. So hang in there. Even though you decided to stop the chemo, know that God's Will will be done and no less. Try to keep the faith that you will also be another odd percentage....beating that odd percent! ♥Pammy
  • bratlee
    bratlee Member Posts: 2
    #26
    Akiss4me said:

    So sorry, Bratlee
    I am so sorry to hear of your new cancer. I understand being on the odd end of the percentages. This has been occuring my entire treatment. I just found out it really has been my whole life, since only 1% to 4% of highschool sweethearts will remain married. I'm about to celebrate my 31st Anniversary with my wonderful Husband this year and yes, he was my highschool sweethart! This also tells me that even when I am given the bad odds....the Lord sees to it that I prevale. So hang in there. Even though you decided to stop the chemo, know that God's Will will be done and no less. Try to keep the faith that you will also be another odd percentage....beating that odd percent! ♥Pammy

    God willing
    Pammy, So funny you should say that, I have been married to my hubby for 34yrs. We started dating at the beginning of my freshman year. hehehe....... My oncologist told me a restrictive fat diet can be extremely beneficial so I will be doing that as part of my treatments. I get all the particulars on Wed. One has to be so careful surfing the internet for information on TNBC, I do wish that some people that tell prognosis percents, etc. would be more careful as many of these are scary and not correct. You are so very right, it is God's will and God willing I will be around to see my Grand-babies grow up. I hope all is well for you!
    Thanks, Kim
  • Hil Lyn
    Hil Lyn Member Posts: 2
    #27
    Ltalcott said:

    dancing with NED
    Dancing with NED! I can't get that picture out of my head! I just can't really see NED's face--does he look sort of like Carrot Top, or is he a handsome dude, like Brad Pitt?

    Lisa

    NED
    I vote for Brad Pitt.
  • Hil Lyn
    Hil Lyn Member Posts: 2
    #28
    PP said:

    Triple Negative and 6.5 years out
    You can do this!!! Beware of the net and all the negatives about Trip Negative BC. For me the hardest part was all the scary info I read. I am so sorry I wasted so much time on it. Eat well and believe you can beat this. The first few years are the hardest because of fear. Then one day you'll realize you haven't been thinking of it on a daily basis. Everytime I went for radiation I took headphones of some awsome American Indian music and pictured them dancing around me and the cancer raising to the sky. I also did phycotherapy to calm my fears. She told me to imagine sheep grazing the cancer away. I tried to eat very well and took recommended vitamins. Chemo was a little rough but I also imagined it as liquid gold cleaning my body of all cancer. Sounds kinda wierd and crazy but I am healthy and never felt better.

    Was stage 2 with 2 nodes positive grade 3. Lumpectomy with brachyradiation and epicubrin and cytoxin for chemo.

    51 at diagnosis

    Best to you and believe you can survive.

    First Few Years Fear
    I am new to the board. 2 years post Triple Negative diagnosis with full mastectomy and TAC chemo(49 at diagnosis). I appreciate your comments about the Fear. I bullied my way through surgery and chemo but over the past year have lost steam and feel this cloud over my head that I have yet to address. Hopefully I can find a support group locally but the comments here have been helpful as well. Thanks to all of you fellow survivors.
  • Dawne.Hope
    Dawne.Hope Member Posts: 823
    #29
    bratlee said:

    God willing
    Pammy, So funny you should say that, I have been married to my hubby for 34yrs. We started dating at the beginning of my freshman year. hehehe....... My oncologist told me a restrictive fat diet can be extremely beneficial so I will be doing that as part of my treatments. I get all the particulars on Wed. One has to be so careful surfing the internet for information on TNBC, I do wish that some people that tell prognosis percents, etc. would be more careful as many of these are scary and not correct. You are so very right, it is God's will and God willing I will be around to see my Grand-babies grow up. I hope all is well for you!
    Thanks, Kim

    bumping up for scubagirl

    bumping up for scubagirl
  • TxAthlete
    TxAthlete Member Posts: 5
    #30
    Triple Negative - Tough Disease
    We lost a young daughter( 34 years old ) to Triple Negative breast cancer 2 years ago. She managed to fight the disease for 2 1/2 years before finally losing the battle. I keep looking online for the miracle cure that would have saved her. It just isn't there yet. Hopefully, one day it will be found. I wish everyone well in your fight with this type of cancer. We traveled around the country to find a cure but weren't able to find it. I spent the last weekend of her life flying her to North Dakota to a clinic for a special trial drug. Unfortunately, she was too weak by then and I drove her home to Texas over the next 2 days with stops in hospitals along the way to get her home. She passed the next morning in her bed. Sadly, it was her 10th year wedding anniversary.
  • yv1214
    yv1214 Member Posts: 72
    #31
    TxAthlete said:

    Triple Negative - Tough Disease
    We lost a young daughter( 34 years old ) to Triple Negative breast cancer 2 years ago. She managed to fight the disease for 2 1/2 years before finally losing the battle. I keep looking online for the miracle cure that would have saved her. It just isn't there yet. Hopefully, one day it will be found. I wish everyone well in your fight with this type of cancer. We traveled around the country to find a cure but weren't able to find it. I spent the last weekend of her life flying her to North Dakota to a clinic for a special trial drug. Unfortunately, she was too weak by then and I drove her home to Texas over the next 2 days with stops in hospitals along the way to get her home. She passed the next morning in her bed. Sadly, it was her 10th year wedding anniversary.

    Triple Negative
    I love this website because I was going to post a question about triple negative and here it is all ready for me. My mom is a triple negative and has stage IV bc. I am not sure how to feel about this since I know this is a tough road ahead for her. So thank you for posting some inspiring stories that doesn't make this look so bleak for us. Although that might just be me being naive.

    yessy
  • Maruja
    Maruja Member Posts: 2
    #32
    Also triple negative and nine years out . . .

    I was dxed w/ trip negative in 2004 - stage 1b, no lymph node involvement but grade 3 (the most aggressive).  I had a lumpectomy + radiation + 4 cycles of chemo (AC).  It was found on mammogram - located so close to the chest wall NO ONE could feel it.

    I didn't know then but I found out afterward from the Mayo Clinic that there are two types of triple negative BC:  basel cell and non-basel cell.  Basel cell tends to recur within 5 years.  Non-basel cell is less likely to recur.  However, which ever you have, unlike other types of breast cancer, if you are triple negative and survive FIVE YEARS, you can considered yourself CURED.

    So you won't be dealing with it your whole life - unlike women with other types of breast cancer.

    Now, on the down side, I got all that info from Mayo Clinic when I went there and they discovered I have another primary tumor in my other breast.  This one is NOT triple negative and is WHOLELY UNRELATED to my first primary.  It is larger, still stage 1with no node involement, but ER+, PR+ and HER-2 negative.  They are going for a cure.  I've had the lumpectomy and just finisted my 1st week of RT.

    HOWEVER, being triple negative the first time around had NOTHING to do with my getting this second tumor.  I am just happy that at 9 years out for the triple negative one I don't have to worry about it recurring ever again.  My getting the second tumor is just life, which sometimes really sucks.

  • netty45
    netty45 Member Posts: 7
    #33
    Hi everyone I had local recurrence

    Hi everyone I had posted in 2009. After 12 yrs clear I had local recurrence in sMe breast . Devastated is the word I can use to describe how I felt . I had chemo again and radiation again also. I recurred June 2012.

     

  • marycurbelo1204
    marycurbelo1204 Member Posts: 73
    #34
    Triple Negative

    I am also  Stage 2 triple negative and am still going thru chemo (not too much side affects with the exception that I've gained way too much weight).  I am currently on Taxol.  My biggest worry came when I was told yesterday not to come in today cause they were out of Taxol and medicine is on back order.   OMG, what exactly does that mean to my cancer???  Should I be horribly worried, what if it doesn't come in for the longest, what then...

  • Treecy1106
    Treecy1106 Member Posts: 144 Member
    #35
    Hello my Beautiful TNBC SISTAS!!!!

    I am a 3 year survivor of TNBC stage 2A...does dense AC/T chemo with a BMX. Scary...yes.....I stopped being scared after my 4th treatment. I said, I am in for the fight!!! I eat well and I try to live life stress free. Stay as positive as much as I can. Surround myself with happy people and try to help as many newbies as I can!!!

     

    If I can help in anyway let me know and I will forward my number!!!

     

    XOXOOX

    Patrice

  • GlowMore
    GlowMore Member Posts: 789 Member
    #36
    mimivac said:

    Hi Netty,
    Thank you for telling your story. It's very inspiring for us fellow triple negatives to read of a long-term survivor such as yourself!

    Mimi

    Triple Negative

    I was diagnosed with High Risk Triple Negative BC Stage 3-A   in April 2002............after a Lumpectomy/Port Implant/chemo/radiation/millions of blood tests and every scan in the world/and of course continued blood work every 6 months now.....the Oncologist still will not release me.   I will be 78 next week and really am thinking of just stopping the doctor visits...because at my age I am not going to go thru all that again.       I truly believe I am only still alive thru the Grace of God.

     

  • CancerNinja
    CancerNinja Member Posts: 3
    #37
    GlowMore said:

    Triple Negative

    I was diagnosed with High Risk Triple Negative BC Stage 3-A   in April 2002............after a Lumpectomy/Port Implant/chemo/radiation/millions of blood tests and every scan in the world/and of course continued blood work every 6 months now.....the Oncologist still will not release me.   I will be 78 next week and really am thinking of just stopping the doctor visits...because at my age I am not going to go thru all that again.       I truly believe I am only still alive thru the Grace of God.

     

    Hi there, I to an TNBC stage

    Hi there, I to an TNBC stage 2b I have been through chemo, surgery, and rad. I had a lumpectomy and 3 nodes removed. Its interesting how ONC either just release you and others are very protective. I have had some really bad swelling in my feet and ankles espically on the left side. I had allot of blood test and ultrasound on legs to make sure no problems with veins. And nothing. I so agree with Good luck with everything and keep smiling. Pam

  • 24242
    24242 Member Posts: 1,398 Member
    #38
    Triple Neg

    At 36 Stage 3 with 11 out of 21 positive nodes and had one lump in arm pit that grew in a week.  I knew...  Stats were less than 40% survival rate for me a little bit of a shot in the stomach at that time since spending years trying to convince doctors I was truly ill. 

    Going on 20 years later and hitting the top end of years of survival and don't worry about anything because having time was better than not having time no matter what it was.  Survival rates way higher than 20 years ago and finding much earlier because people more aware and it doesn't get any better than this.

    Tara

  • lelela
    lelela Member Posts: 1
    #39
    netty45 said:

    Hi everyone I had local recurrence

    Hi everyone I had posted in 2009. After 12 yrs clear I had local recurrence in sMe breast . Devastated is the word I can use to describe how I felt . I had chemo again and radiation again also. I recurred June 2012.

     

    Hi Netty
    sorry to hear of

    Hi Netty

    sorry to hear of your new BC....after 12 years it would be considered a new primary. Still sucks...hopefully you will never have to go through this ever again... Prayers, hugs and well wishes to you...

  • LVG
    LVG Member Posts: 128
    #40
    Triple Negative here...

    Triple Negative dx. 11/2010, Invasive ductal carcinoma, Stage II, Grade 3, 2.2 cm, PT2N0 - Three lymphnodes: Negative.

    Visiting my doctor today to receive test results from genetic testing BRCA 1/2.

  • AK farm gal
    AK farm gal Member Posts: 2
    #41
    redriverartist said:

    HER2, etc.
    Hi, Milly - I just finished my treatments last week. Like you, I was a triple negative, as well. I guess our stories are very similar as I found the lump in the shower. It was a big bad boy but the surgeon and the oncologist are confident that it hadn't spread. I had a modified radical Oct 22 and began treatments shortly after that.

    The odds for staying cancer-free for 10 years went to 85% with the chemo treatments (47% without treatment).

    I certainly hope we don't have to fight this again.

    Teresa

    Trip neg survival rate

    Can u tell me where I can find the info about increased survival rate after chemo. I was triple neg and had double mast and dose dense chemo. Finished 13 myths ago:)

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