Any 'older' neuroblastoma survivors out there?

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  • Lucky1959
    Lucky1959 Member Posts: 2 *
    #22

    CSN members get to know you.

    In 1959 at 9 months old I had a growth removed from my neck/shoulder region. My surgery was done at the University of Illinois in Champagne,Ill. During the follow-up my mother was told I had lung cancer and

    I also had three tumors in my lungs. At the time it was thought to be Lung Cancer. Due to luck I was able to get into the National Institute of Health in Washington DC because they were doing research on childhood cancers.
    There my mother learned it was not Lung Cancer but Neuroblastoma that I had. At NIH they recommended radiation and Chemotherapy. Since my odds for survival were given as 50/50 but development issues

    greater my mother decided to do experimental drugs recommended by NIH. I went home after 9 months, of the other children there,that my mother knew their mothers, I am the only one still alive

    . I took things like B12 shots daily and cortisone shots that I know. I did have to have X-rays every year for the first seven years and had no childhood immunizations. Other than a lifelong history of migraines

    and a Cancerous Colon Polyp at 32, I have been quite healthy.

    My mother’s mother did have 4 different cancers but died at 90 due to a heart attack. My mother died of Brain Cancer at 72 and most of her eleven

    siblings also died of cancer. I have a nephew who is a Testicular Cancer survivor, having first had it diagnosed at 26 and again at 32 but he is now in his early forties.
    Our family has a saying we may have the

    mutating gene for cancer but we also have the cancer fighting one too.
    Good luck to anyone who gets cancer, may you also have a fighter cells. You and your families are in my thoughts and prayers.

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