Any 'older' neuroblastoma survivors out there?

Lucky1959

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In 1959 at 9 months old I had a growth removed from my neck/shoulder region. My surgery was done at the University of Illinois in Champagne,Ill. During the follow-up my mother was told I had lung cancer and I also had three tumors in my lungs. At the time it was thought to be Lung Cancer. Due to luck I was able to get into the National Institute of Health in Washington DC because they were doing research on childhood cancers. There my mother learned it was not Lung Cancer but Neuroblastoma that I had. At NIH they recommended radiation and Chemotherapy. Since my odds for survival were given as 50/50 but development issues greater my mother decided to do experimental drugs recommended by NIH. I went home after 9 months, of the other children there,that my mother knew their mothers, I am the only one still alive . I took things like B12 shots daily and cortisone shots that I know. I did have to have X-rays every year for the first seven years and had no childhood immunizations. Other than a lifelong history of migraines and a Cancerous Colon Polyp at 32, I have been quite healthy. My mother’s mother did have 4 different cancers but died at 90 due to a heart attack. My mother died of Brain Cancer at 72 and most of her eleven siblings also died of cancer. I have a nephew who is a Testicular Cancer survivor, having first had it diagnosed at 26 and again at 32 but he is now in his early forties. Our family has a saying we may have the mutating gene for cancer but we also have the cancer fighting one too. Good luck to anyone who gets cancer, may you also have a fighter cells. You and your families are in my thoughts and prayers.

rkemp78

I was diagnosed with NB on my spine in 1980 when I was two. I was given all clear 18 months later. I later developed scoliosis and had spinal fusion age 7. I have had long term anxiety and depression most of my adult life, I was diagnosed autistic in 2022. I get by and self manage my triggers, and I have lived a good life with two wonderful children. Happy to chat if anyone wants to reach out.

shannonjones1891

My health improved 100% when I stopped taking all western medicine and turned to a nutrition lifestyle by changing my eating habits and diet, I avoid prepackaged foods full of chemicals. I purchased Herbal Formula from World Rehabilitate Clinic, I was literally bedbound for about 3 years. But now I have NONE of the issues they diagnosed me with years ago....all done without the help of western medicine. I am not prescribing medicine or supplements but If anyone chose to follow the regimen I chose I will be happy for them, conversely if anyone chooses not to believe, I will fully understand that as I probably wouldn't believe the story if I hadn't lived it.