Got some people that need to check in.....worries us when we don't hear from ya......

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  • Shayenne
    Shayenne Member Posts: 2,342
    #22
    msccolon said:

    sounds like good news!
    Sandi, sounds like you and Mike are making the best of your situation! You are so right about using the time to travel and enjoy your lives now, rather than waiting for Christmas or whatever! Live in today, you won't regret it tomorrow!
    mary

    Excellent!
    I'm starting to get used to my pump after only 3 treatments, they really do start becoming like a "buddy" to you LOL..

    I'm glad to hear about your hubby getting better! I am also anemic, been like that all of my life. I was never able to give blood, wish I could! it scares me to have blood troubles with cancer.

    Good too see you, and thanks for the update!

    Hugsss!
    ~Donna
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #23
    glad to hear it
    Glad to hear he's down to his last chemo treatment before scans and "maintenance".

    That's the point I'm coming to, too- but don't actually know if it will be my last "regular" chemo- depends upon what Tuesday's scan shows.

    Hope Mike continues to do well.

    Blessings,
    Lisa
  • trainer
    trainer Member Posts: 241
    #24
    Still NED and nagging people to get a colonoscopy check
    Mike here, just been busy, but I've been lurking. My 3-month PET after surgery was NED, which I'd already reported. The ONC is a very cautious doctor, which I appreciate. The PET showed something in my ear, my lung and my liver. The ear concern was nothing, the specialist said probably just some water in the ear. The lung was scar tissue from a serious bout with pneumonia when I fell asleep on the deck of a boat in Lake Michigan 30 years ago and the liver concern was fatty liver disease, which I already knew about. So I continue my daily prayers for all and for my own cancer treatment result. I continue to cheerfully harass people to get a screening and once people who know me understand that I got it early, they are more inclined to listen and act on it. So far, about 50+ have either gotten one or said they will. Unfortunately, two friends now have cancer; one is ovarian and the other colon cancer.

    i really do feel like I'm in the company of great and good giants when I lurk about the site and see what's developed. I remain in awe of all of you who are not taking the cancer lying down. Mary and I are looking forward to CP7 in Key West. Hope to see you all there.
  • jams67
    jams67 Member Posts: 925 Member
    #25
    Buzzard said:

    changing2
    God knows whats in store for you and you do as well to be in the mindset that you are in...Remission would be great but eternal life is the ultimate. Yes, He did pay all of us that believe in Him a free pass to Eternity and I am sure that one day I will see you there. Live your life here on earth to the utmost then spend eternity with everyone that has passed away before you. We will all meet there someday where there will be no sickness or health problems...just peace and tranquility....God Bless you.......

    After being NED stage iv, for 3 years and 7 mo., I don't always respond when I check in with you guys,mostly lurking, but I do pray for all of you every day, and I know it will help. Someday we will take that trip to heaven, but in October I plan to go to Key West and hang out with other semi-colons for CP7. We have a great time and don't dwell on the negative side very much. It is a great time for all, and we look forward to meeting the people we've gotten to know on CSN. Some of them are only semi-normal, just kidding, and some are still in treatment. But we all do as much as we can to live life to the fullest.
    Looking forward...
    Jo Ann



    Colon Palooza 7 will be in Key West, Florida October 21st-25th.



    We have gotten a block of rooms at the Casa Marina Resort with some great rates! If you click on the link below you can check out the hotel and if you click on guest rooms each of the different kinds of rooms. The rates are guaranteed if you want to come early or stay later, just tell them when you make your reservation.



    Island Vista rooms - $159

    Ocean View rooms - $199

    One bedroom suites (non view) - $225 (by far the best deal I could find at any of the hotels in Key West)

    One bedroom suites (ocean view) - $319



    http://www.casamarinaresort.com/



    The resort opened on New Years Eve 1920 and every US president has visited or stayed at the resort , with the exception of George W Bush. It has 2 outdoor pools, the island’s largest private beach, jet skis, parasailing, Hobie Cats, snorkeling, scuba diving, deep sea fishing and much more. They offer beach massages and have 24 hour room service too.



    The planning for the weekend agenda is still in the works but some of our options are: lunch on a private island, sunset cruises, Ernest Hemingway and Harry Truman museums, the Aquarium, the National Park (Suzann can get another stamp), Fort Jefferson, train and trolley tours and or course the free sunset concerts on Mallory Square and the nightlife of Duval Street. Motor Scooters are my preferred mode of transportation while there since everything is so close but bicycles would do too.



    For those of you not familiar with the Colon Paloozas, here’s a quick history and hopefully others will post their perceptions and experiences to tell you more (visuals and more info can be accessed at : http://colonpalooza.com/). In 2004, some on this board that had become “friends in the battle” decided to plan something where those that were able could meet face to face, hug to hug. 5 years later we are still having them and still meeting and hugging. They are not anything really formal (a bunch of semi-colons could never pull that off) with a few events planned if you are interested. You are welcome to do your own thing/things too. It is a celebration of life and lives and there could be a tear or two shed as we remember friends, soon to be followed by fun and laughter. Over the years, dozens have attended and good times were had by all. I am especially appreciative of the time we were able to spend with “those who have gone on before us” (Nanuk, Kerry, and Jana). I actually feel like they are right there with me while we are having our fun and think they would be disappointed if we stopped having the events. I know I would if the shoes were reversed.



    The theme for this year’s Palooza is “INCREASE YOU LAUGH EXPECTANCY ATTEND CP7”. And look for more posts as there is more information to share. If you have any personal request, ideas of what to do, or questions about the event, send me an email here.



    There are only a limited number of rooms and if we need more I can GUARANTEE YOU, the rates will be higher. To reserve your room; call 1-877-597-9696, you will need to tell them you are with the Colon Palooza 7 group to get the rates (the weekend rate for the Island Vista rooms are already up to $229 today). If you really want to come and need less expensive accommodations, send me an email, there are places but not ones where I could get a block of rooms. The weekend we are there is the beginning of a 2 week Mardi Gras like festival (we’ll be there the tranquil part of the festival I’m told) so the rates will probably only go up over time.



    The Colon Paloozas are open to any and everyone that “experiences colorectal cancer” whether you are a “newbie” or an “old timer”. Bring whomever you want to share a very special and enlightening time with, the more the merrier. The mix is what makes them so special so those of you new to your journey, come on down and meet some of your new and “old” friends from the board.



    You can fly directly into Key West. Most of the airlines now have the smaller jets that can land there so rarely do you have to take a “puddle jumper”. Of course you would fly into Miami, rent a car and drive scenic 3 hours down.





    That’s it for this message, email me if you have any questions etc. Hope to see you there!!



    Lisa P.
  • changing2
    changing2 Member Posts: 118
    #26
    Thanks!
    Thanks for all the encouraging notes:) I should be leaving Tuesday for the Carribean! Praying for you all... stay well and I'll be checking in here and there. Hope we still hear from some others that are still missing. Jcavanugh? (sp?)
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #27
    changing2 said:

    Thanks!
    Thanks for all the encouraging notes:) I should be leaving Tuesday for the Carribean! Praying for you all... stay well and I'll be checking in here and there. Hope we still hear from some others that are still missing. Jcavanugh? (sp?)

    changing2
    special prayer tonight for you .......have a great trip and let us know how it went....God Bless and be safe.........
  • Madre
    Madre Member Posts: 123
    #28
    I miss a lot
    I miss a lot of the familiar names I was used to seeing when I first joined last year. My prayers go out to all the new names that have joined. This site has been a huge support for me and when I was home for 7 months during treatment I came on here everyday faithfully. I ended treatment on October 22, 2008, went back to work Nov 3, 2008, got downsized on January 28, 2009 and now I am looking for a new job, being a mom to my kids, a wife to my husband and helping to plan my nephew-son (I raised him for 9 years) wedding this August. I am curretnly NED and go for my 1 year followup colonoscopy in May. Can't belive it's been a year since this whole nightmere started. But I met all of you and I am greatful to be alive. My dad has just recently been diagnosed with lung cancer and I have urged him and his wife to go on this site. Although I've checked out some of the other links and the semi colons are the best. Happy Spring!!
  • msccolon
    msccolon Member Posts: 1,917 Member
    #29
    Madre said:

    I miss a lot
    I miss a lot of the familiar names I was used to seeing when I first joined last year. My prayers go out to all the new names that have joined. This site has been a huge support for me and when I was home for 7 months during treatment I came on here everyday faithfully. I ended treatment on October 22, 2008, went back to work Nov 3, 2008, got downsized on January 28, 2009 and now I am looking for a new job, being a mom to my kids, a wife to my husband and helping to plan my nephew-son (I raised him for 9 years) wedding this August. I am curretnly NED and go for my 1 year followup colonoscopy in May. Can't belive it's been a year since this whole nightmere started. But I met all of you and I am greatful to be alive. My dad has just recently been diagnosed with lung cancer and I have urged him and his wife to go on this site. Although I've checked out some of the other links and the semi colons are the best. Happy Spring!!

    great pic!
    welcome back and thank you for posting how well you are doing! Wedding planning is so much fun!
    mary
  • sheri22
    sheri22 Member Posts: 273
    #30
    letting you know GOD works his miracles
    Just to post a quick note to you TO LET YOU KNOW i GOT MY SCAN RESULTS LUNGS TUMOR SHRANK FROM 15 CENT TO 11 CENT AND PELVIC FROM 6.7CENT TO 5.7 CENT AND THE ca BLOOD TEST IS FROM
    125 TO 40 JUST WANT EVERYBODY TO KNOW THAT PRAYERS DO HELP I do keep you all in my prayers
    I hope to see more miracles posted if this keeps going good I can handle the chemo every 2 weeks
    Sher22
  • Shayenne
    Shayenne Member Posts: 2,342
    #31
    sheri22 said:

    letting you know GOD works his miracles
    Just to post a quick note to you TO LET YOU KNOW i GOT MY SCAN RESULTS LUNGS TUMOR SHRANK FROM 15 CENT TO 11 CENT AND PELVIC FROM 6.7CENT TO 5.7 CENT AND THE ca BLOOD TEST IS FROM
    125 TO 40 JUST WANT EVERYBODY TO KNOW THAT PRAYERS DO HELP I do keep you all in my prayers
    I hope to see more miracles posted if this keeps going good I can handle the chemo every 2 weeks
    Sher22

    YAY!!
    So glad to hear about your good news Sheri! prayers do help, and I pray for you all everyday! I hope more good news for you as well always!Always good to hear encouraging news from anyone!

    Hugsss!
    ~Donna
  • sheri22
    sheri22 Member Posts: 273
    #32
    Shayenne said:

    YAY!!
    So glad to hear about your good news Sheri! prayers do help, and I pray for you all everyday! I hope more good news for you as well always!Always good to hear encouraging news from anyone!

    Hugsss!
    ~Donna

    did you do scan yet
    Donna
    I think you are right behind me on the chemo , did you get a scan yet or any tests I keep wondering about you too hopefully soon you will be geting some good news too you desrve good news
    HUGGS SHERI22
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #33
    sheri22 said:

    did you do scan yet
    Donna
    I think you are right behind me on the chemo , did you get a scan yet or any tests I keep wondering about you too hopefully soon you will be geting some good news too you desrve good news
    HUGGS SHERI22

    Great News
    Sheri22,
    That is great news.......isn't God wonderful....I hope miracles rain down for you....Keep smiling...God Bless you.....
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #34
    Buzzard said:

    Great News
    Sheri22,
    That is great news.......isn't God wonderful....I hope miracles rain down for you....Keep smiling...God Bless you.....

    Mike49 and Menright....? Where are the both of you ?
    Need to check in here guys asap.......

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