port pain still

glinka65

port pain
hey kathleen i hope **** is feeling better , i got my port last week.. ugggggg!!!! the pain is gone and i hope his is asap as well!! when the pain stops u have what looks like a small stack of dimes under the skin... weird!!! im a newibie at all this as well, this site is wonderful, great people like you guys help us all with each post! i wish you guys the best!!!! and keep the faith!!!!! Tommy

Kathleen808

neck
Hi All,
****'s port goes up to his neck too and you can see the shape of the tube up to the neck. He didn't mention the pain today (but I only saw him for 1/2 hour before he went to sleep... long day for me.) He goes to yoga again tomorrow. Donna, I will let you know if the yoga helps. Also, I will keep you posted on the yoga once he starts folfox.
Last night a friend, a nurse anesthesiologist, said there should have been no pain during the procedure. So.... anyone out there who is new and getting ready for their port, if you are still awake when they are putting it in insist that they get you to a place of no pain.
Aloha,
Kathleen

Julie 44

Kathleen808 said:

neck
Hi All,
****'s port goes up to his neck too and you can see the shape of the tube up to the neck. He didn't mention the pain today (but I only saw him for 1/2 hour before he went to sleep... long day for me.) He goes to yoga again tomorrow. Donna, I will let you know if the yoga helps. Also, I will keep you posted on the yoga once he starts folfox.
Last night a friend, a nurse anesthesiologist, said there should have been no pain during the procedure. So.... anyone out there who is new and getting ready for their port, if you are still awake when they are putting it in insist that they get you to a place of no pain.
Aloha,
Kathleen

Yoga
Hi what is yoga supposed to do for him??

pamness

This isn't the same but when my port was removed
I couldn't stand to have anything rub on it or touch it for more than a moment. It took about 6 months and then the feeling went away. I had it checked out a number of times - everyone said - oh,well. When I had mine put in, it was fine in two weeks.

I always thought that when they took it out they cut a nerve. Maybe you situation is similar.

Pam

Kathleen808

Julie 44 said:

Yoga
Hi what is yoga supposed to do for him??

yoga
Hi Julie,
**** has started yoga for a couple of reasons. He is off work for the next 1.5 years because of his diagnosis. He has always wanted to take yoga mostly because he figures it will help him surf. Also we have been reading about fighting cancer and have heard that relaxation, meditation and exercise all help the body fight cancer. He feels better since surgery was 5 weeks ago and he has been doing yoga and working out about 5 days a week. He starts folfox next week so he will do what he can during the next 6 months.
We'd love to hear from others who have been working out during chemo.
Aloha,
Kathleen

Vickil

pamness said:

This isn't the same but when my port was removed
I couldn't stand to have anything rub on it or touch it for more than a moment. It took about 6 months and then the feeling went away. I had it checked out a number of times - everyone said - oh,well. When I had mine put in, it was fine in two weeks.

I always thought that when they took it out they cut a nerve. Maybe you situation is similar.

Pam

Port
I have a power port it has been in almost a year. It still bothers me and it itches careful how you sleep