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Welcome Jeff
I am glad you found this site as you start your journey with cancer, you will find many supportive survivors here to help you. I myself am a 20 years survivor of NHL. I had an autologus bone marrow transplant for it 18 years ago after CHOP treatment on diagnosis 2 years before. Transplants are no doubt different today than they were way back 18 years ago but even at that I am here to tell you that NHL can be cured, I am a living example. The road through chemo and radiation can be rough but they consider mine a cure and I just wanted to tell you that. Keep the faith, think as positively as you can throughout, set a goal for your future and if you find yourself troubled or just wanting to share you can come to this site. Often people who love you are there for support and that's fabulous but no one like another survivor knows exactly how you feel and that is where this site comes in. All the best in your treatments. Blessings, Blueroses.0 -
Thanks for the kind wordblueroses said:Welcome Jeff
I am glad you found this site as you start your journey with cancer, you will find many supportive survivors here to help you. I myself am a 20 years survivor of NHL. I had an autologus bone marrow transplant for it 18 years ago after CHOP treatment on diagnosis 2 years before. Transplants are no doubt different today than they were way back 18 years ago but even at that I am here to tell you that NHL can be cured, I am a living example. The road through chemo and radiation can be rough but they consider mine a cure and I just wanted to tell you that. Keep the faith, think as positively as you can throughout, set a goal for your future and if you find yourself troubled or just wanting to share you can come to this site. Often people who love you are there for support and that's fabulous but no one like another survivor knows exactly how you feel and that is where this site comes in. All the best in your treatments. Blessings, Blueroses.
I m getting ready to go to get mu PET sac , Thanks for your encouging woods0 -
Nice to meet you Jeff
First, welcome Jeff
I am a 43 year old Non-Hodgkins Lymphoma survivor. I can truely understand that from the moment the dr says it may be Lymphoma, your head seems to turn so quickly. Its kind of hard to keep up, and digest the words all at the same time. At least that's the way I felt.
I too had the lymphoma in the upper and lower parts of my body. I had spots on my liver and spleen, and bone. I was tired and felt like I was in a fog in the beginning. Once I was placed on R-CHOP/CHOP-R I began to do a whole lot better. There are wonderful results from that chemo treatment and I am glad they are starting you off on it. I did well and you will too.
I have to agree with Blueroses, prayer definitely works. Pray and have others to pray for you. It is what's gonna get you through it all.
Please join us in the chatroom. It is available around the clock. There are a lot of loving people in both the chat room and this discussion boards. We are here to support, love, and help each other. We are here for you.
Take care and be blessed.
Win0 -
Thanks for the words ofwinthefight said:Nice to meet you Jeff
First, welcome Jeff
I am a 43 year old Non-Hodgkins Lymphoma survivor. I can truely understand that from the moment the dr says it may be Lymphoma, your head seems to turn so quickly. Its kind of hard to keep up, and digest the words all at the same time. At least that's the way I felt.
I too had the lymphoma in the upper and lower parts of my body. I had spots on my liver and spleen, and bone. I was tired and felt like I was in a fog in the beginning. Once I was placed on R-CHOP/CHOP-R I began to do a whole lot better. There are wonderful results from that chemo treatment and I am glad they are starting you off on it. I did well and you will too.
I have to agree with Blueroses, prayer definitely works. Pray and have others to pray for you. It is what's gonna get you through it all.
Please join us in the chatroom. It is available around the clock. There are a lot of loving people in both the chat room and this discussion boards. We are here to support, love, and help each other. We are here for you.
Take care and be blessed.
Win
Thanks for the words of encouragement and it os nice to see that there are survivors out there. I will deffinitly be on chat tomorrow night. PET scan wasn't as bad I thought as far a the procedure, my oncologist will give his interpretation on Wednesday Morning before CHEMO.
Take care everyone and thanks for taking the time to reply0 -
Been There Too
Hi, Just wanted to let you know I've been there too. My case is slightly different than most. I was diagnosed with what ended up being Small Lymphocytic Lymphoma back in 2000 but had no symptoms so it was just watch and wait. Finally in the fall of 2006 I started having symptoms and my SLL had also become the more aggressive Diffuse Large B Cell Lymphoma. Starting in January 2007 I went through R-CHOP and by the end of the 6th round was in remission. It was also recommended that I have an Autologus Stem Cell Transplant so in August I went to Dartmouth Medical Center in New Hampshire for the transplant. Everything went well and I was back to work by the beginning of December of that same year. So far everything is going well. I still have my SLL since there is no cure for that but my more aggressive lymphoma is in remission.
They can do some pretty great things now days. Hopefully you have someone close to you that can be there for you to help you along the way. I went almost all the tests you mentioned and it's been quite the adventure. But there are some very good and pretty amazing people you'll meet along the way. Hang in there and keep plugging away, give yourself a break when you need one but keep on living your life as best as you can. You'll do all right.
noreaster0 -
Hello, Jeff
Welcome! We know what you are going through... I am on my 3rd recurrence in 11 years of Small B-Cell MALT (gastric) NHL. I have just finished 8 rounds of Rituxin; I have an endoscopy on Thursday. Best wishes to you and hope you will be feeling better soon. Keep a positive outlook!
Tyggs0 -
Finished ChemoTyggs said:Hello, Jeff
Welcome! We know what you are going through... I am on my 3rd recurrence in 11 years of Small B-Cell MALT (gastric) NHL. I have just finished 8 rounds of Rituxin; I have an endoscopy on Thursday. Best wishes to you and hope you will be feeling better soon. Keep a positive outlook!
Tyggs
Took two days had a little sensivetivity to the rituxin so had to go back for that. If it wasn't for my stomach swelling I think I would be doing allot better. Will try to check in a few days. Hope all goes well with you Tyggs, noreaster, win, and blueroses.0 -
Hi JeffExGI said:Finished Chemo
Took two days had a little sensivetivity to the rituxin so had to go back for that. If it wasn't for my stomach swelling I think I would be doing allot better. Will try to check in a few days. Hope all goes well with you Tyggs, noreaster, win, and blueroses.
Hi Jeff~ I too have Large B Cell lymphoma and went through R-Chop and 25 sessions of radiation. I now am in remission and will get a PET scan in March. Prayers do work wonders~especially when you are dealing with all of the cancer, side effects,anguish etc. This board is also a wonderful way to talk with people who have been there. I am still dealing with the side effects but I can tell you it is worth it!
As long as you are confident in your doctors and ask a lot of questions (there is no silly questions when it comes to cancer) you will feel more in control. Please keep us posted on how you are doing. There are a lot of people on this board who will be praying for you.
Take care, Pnktopaz0 -
My Final DiagnosisPnktopaz10 said:Hi Jeff
Hi Jeff~ I too have Large B Cell lymphoma and went through R-Chop and 25 sessions of radiation. I now am in remission and will get a PET scan in March. Prayers do work wonders~especially when you are dealing with all of the cancer, side effects,anguish etc. This board is also a wonderful way to talk with people who have been there. I am still dealing with the side effects but I can tell you it is worth it!
As long as you are confident in your doctors and ask a lot of questions (there is no silly questions when it comes to cancer) you will feel more in control. Please keep us posted on how you are doing. There are a lot of people on this board who will be praying for you.
Take care, Pnktopaz
Well turns out when we got the final pathology report from Mayo clinic the cancer turned out to be Burkitts Lymphoma. I am now on a very agressive form of treatment called the magrath protocol. I'm halfway through round 2 of 4. Wishing you and I the best, this is not easy.0 -
Now you know what you are fightingExGI said:My Final Diagnosis
Well turns out when we got the final pathology report from Mayo clinic the cancer turned out to be Burkitts Lymphoma. I am now on a very agressive form of treatment called the magrath protocol. I'm halfway through round 2 of 4. Wishing you and I the best, this is not easy.
Now you have the final diagnosis and know what you are dealing with you can put all your energies into fighting it instead of energy spent on wondering what it is. I know it isn't easy on any level but one step at a time and talk out any feelings you have with your loved ones or on this board - people really understand here - no matter how small you think your feelings are - they are all valid. Good luck with the treatments and keep us posted. You are in my prayers. Blueroses.0 -
Burkitts tooExGI said:My Final Diagnosis
Well turns out when we got the final pathology report from Mayo clinic the cancer turned out to be Burkitts Lymphoma. I am now on a very agressive form of treatment called the magrath protocol. I'm halfway through round 2 of 4. Wishing you and I the best, this is not easy.
I am curious as to how you are now. I am responding to your February post. As I think back to February, I was probably just starting round 2 myself. I finished my final round in May but continue to go in every three weeks for further treatments. I have not had any follow-up tests so I worry that a cell or two didn't get the chemo and are multiplying as we speak. I wouldn't have even known I had lymphoma had my appendix not burst so I don't trust that I would even know if I had it again. I don't suppose that's a good way to think.
I hope all is well with you. When you said "this is not easy" you weren't joking.0 -
How are you doin', exGI??mawyers said:Burkitts too
I am curious as to how you are now. I am responding to your February post. As I think back to February, I was probably just starting round 2 myself. I finished my final round in May but continue to go in every three weeks for further treatments. I have not had any follow-up tests so I worry that a cell or two didn't get the chemo and are multiplying as we speak. I wouldn't have even known I had lymphoma had my appendix not burst so I don't trust that I would even know if I had it again. I don't suppose that's a good way to think.
I hope all is well with you. When you said "this is not easy" you weren't joking.
I also would like to know how exGI is doing. I found out I had NHL when my right arm broke without reason. Doctors don't like spontaneous (sp??) breaks, many tests showed NHL, did radiation first cause of broken arm (with shoulder involvement) and then chemo. Now in remission as of this past April (09); another PET scheduled for early August.
No matter what, I need contact with others going thru all this, the waiting game, the struggle to keep the faith going and the hope that has to stay active for me.
I hope all is well, exGI, and that you will make some contact.
take care,
Hestia0 -
exGIHestia said:How are you doin', exGI??
I also would like to know how exGI is doing. I found out I had NHL when my right arm broke without reason. Doctors don't like spontaneous (sp??) breaks, many tests showed NHL, did radiation first cause of broken arm (with shoulder involvement) and then chemo. Now in remission as of this past April (09); another PET scheduled for early August.
No matter what, I need contact with others going thru all this, the waiting game, the struggle to keep the faith going and the hope that has to stay active for me.
I hope all is well, exGI, and that you will make some contact.
take care,
Hestia
I too have been thinking of exGI and hoping the best for him and his journey. The beginning is just full of bumps and mountains.
I hope things are good for you at this point and will continue to be better. Let us know when you can
Our thoughts and prayers for you
Blessings
Judy0
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