Papillary Renal Cell Carcinoma- Anyone Experiencing This or is a Survivor?

AlwaysHaveHope

donna_lee said:

Love and Regrets to the entire Family
Dear Carrie,
How sad you must feel. My eyes are watery just thinking about what you must be going thru. If there is anything you can get out of this is that you and your dad got to spend some of the most precious and important time with your mom. You were truly "there" for her. Not everyone in a family is able to or wants to be there at the closing of a life.

Does the Hospice you worked with offer Grief counseling for the survivors? This can be extremely valuable for you, Dad, sister and the rest of the family there.
South Coast Hospice, the one I "champion" offers 13 months. We are across the USA, and each hospice functions under similar rules and regulations, but offer slightly different services. Go to www.schospice.org to see what this one offers; and they just put out their Winter 2009 Newsletter under publications.

Cry when you need to, laugh at the funny stuff and don't let anyone tell you how you should feel. I'm here. dlgould@wildblue.net
Donna

Hi Everyone....
Hi everyone...

How's everyone doing? I thank each and everyone of you for being there for me. Your support is incredible.

I've been very busy this past week. I took all of last week off, because I knew there'd be a lot to take care of. I am a little better now that we have gotten through the most difficult moments of this experience. There's going to be a lot of changes around here, besides the obvious...not having my mom around anymore. We've been sitting down... my sister, dad, and me, coming up with some creative ways of reducing the cost of bills, etc. to make it financially easier for us. It's bad that you have to start thinking about such things, immediately after loosing someone you loved so much. But we're going to be okay.

The past few days I've been cleaning out my mom's room. I hated doing this so early, but dad just couldn't walk into her room and deal with seeing her clothes hanging there anymore. So, unfortunately, I had to start cleaning her room out. Seems kind of rushed to me, though. That was one of those crying moments for me....because it was hard stuffing her clothes into bags to go to the Good Will, but I saved some of her shirts that she used to wear a lot; one's I can still picture in my memory of her wearing and each time I saw a shirt or blouse my mom used to wear a lot, it made me cry. But I got through it and it got a little easier as I got close to being done. We gave her bedroom furniture to my sister, which we helped take over to her house; her 6 year old is going to use it in his room now. Mom's room is all empty now, except for some of her belongings I still have to go through, which I shoved into the closet when we moved out the furniture. I'm going to go through that stuff later, at a slower pace; my own pace.

I washed all the woodwork this weekend in mom's room and dad cleaned the carpet. We're planning on using mom's room as an office/art & craft room. Mom wanted it that way. She had told my dad and my aunt, apparently...that she wanted me to clear out the room when she was gone and be able to use it for a room to do my art in. It feels kind of strange though, to be getting rid of all her things in that room, eventhough I am keeping a few of her things that remind me the most of her. I always had this idea of one day making a family quilt using clothes and fabric that belonged to different people in the family, don't know if I'll ever do it, though (but if so, I hope to use some of mom's clothes). To be honest, things seem to be going a little fast, but I guess in a way it is better to clean her room out now, then to be like one of those people who keep a loved ones room the way they left it after they die; untouched. That sort of thing, just causes one's grief and sorrow to linger on and on.

It's odd, I guess because I've stayed so busy and all since mom passed, in the back of my mind....it's like I still haven't grasped the reality that she is actually gone. It just happened so fast; so early. I don't think any of us really thought it would be this early on that we'd lose her. But in a small way, it's like everyone keeps saying...at least she's not suffering anymore. But unfortunately, that phrase doesn't help much.

I went back to work today and eventhough a part of me didn't want to return to work, I know it is what I needed. The people I work with are so supportive and are like a second family. I think it is going to help, having something else to concentrate on.

Well, Maryann, Dawn, and Donna....thanks for listening and providing words of support during this time. Maryann, I hope that you are doing okay. Are you still taking Afinitor or did you have to quit it? Dawn, I hope that your FIL is doing good. And Donna, I hope, too, that you are doing alright. I also hope to get back to regular posting with you'll three. Well, I'll talk with everyone later. Have a nice evening.
Carrie

dawnmomofthree

AlwaysHaveHope said:

Hi Everyone....
Hi everyone...

How's everyone doing? I thank each and everyone of you for being there for me. Your support is incredible.

I've been very busy this past week. I took all of last week off, because I knew there'd be a lot to take care of. I am a little better now that we have gotten through the most difficult moments of this experience. There's going to be a lot of changes around here, besides the obvious...not having my mom around anymore. We've been sitting down... my sister, dad, and me, coming up with some creative ways of reducing the cost of bills, etc. to make it financially easier for us. It's bad that you have to start thinking about such things, immediately after loosing someone you loved so much. But we're going to be okay.

The past few days I've been cleaning out my mom's room. I hated doing this so early, but dad just couldn't walk into her room and deal with seeing her clothes hanging there anymore. So, unfortunately, I had to start cleaning her room out. Seems kind of rushed to me, though. That was one of those crying moments for me....because it was hard stuffing her clothes into bags to go to the Good Will, but I saved some of her shirts that she used to wear a lot; one's I can still picture in my memory of her wearing and each time I saw a shirt or blouse my mom used to wear a lot, it made me cry. But I got through it and it got a little easier as I got close to being done. We gave her bedroom furniture to my sister, which we helped take over to her house; her 6 year old is going to use it in his room now. Mom's room is all empty now, except for some of her belongings I still have to go through, which I shoved into the closet when we moved out the furniture. I'm going to go through that stuff later, at a slower pace; my own pace.

I washed all the woodwork this weekend in mom's room and dad cleaned the carpet. We're planning on using mom's room as an office/art & craft room. Mom wanted it that way. She had told my dad and my aunt, apparently...that she wanted me to clear out the room when she was gone and be able to use it for a room to do my art in. It feels kind of strange though, to be getting rid of all her things in that room, eventhough I am keeping a few of her things that remind me the most of her. I always had this idea of one day making a family quilt using clothes and fabric that belonged to different people in the family, don't know if I'll ever do it, though (but if so, I hope to use some of mom's clothes). To be honest, things seem to be going a little fast, but I guess in a way it is better to clean her room out now, then to be like one of those people who keep a loved ones room the way they left it after they die; untouched. That sort of thing, just causes one's grief and sorrow to linger on and on.

It's odd, I guess because I've stayed so busy and all since mom passed, in the back of my mind....it's like I still haven't grasped the reality that she is actually gone. It just happened so fast; so early. I don't think any of us really thought it would be this early on that we'd lose her. But in a small way, it's like everyone keeps saying...at least she's not suffering anymore. But unfortunately, that phrase doesn't help much.

I went back to work today and eventhough a part of me didn't want to return to work, I know it is what I needed. The people I work with are so supportive and are like a second family. I think it is going to help, having something else to concentrate on.

Well, Maryann, Dawn, and Donna....thanks for listening and providing words of support during this time. Maryann, I hope that you are doing okay. Are you still taking Afinitor or did you have to quit it? Dawn, I hope that your FIL is doing good. And Donna, I hope, too, that you are doing alright. I also hope to get back to regular posting with you'll three. Well, I'll talk with everyone later. Have a nice evening.
Carrie

How are things?
Hello Ladies,

Well I have been out of the box this last week. I took the kids up to northern Ohio to visit my sister and my neices. Between the two of us we have 6 kids, all ages 7 and under, so it proved to be a lively visit. After that, the day after I got home my in-laws came for a 4 day visit. My fil is looking and feeling great. I am happy that he is feeling good, but kind of nervous that his therapy may not be helping since he really looks and feels good. He is taking Sudent only, now that the clinical trial he was on was stopped due to safety concerns. He has abdominal scans scheduled for July 10. We will know more after that I guess.

Carrie how have you been? You have been in my thoughts frequently this past week. I kept wondering how you and your family were holding up. It looks like you are doing pretty good so far. How is it going back to work? I think its fine to clean out your mom's room when you and your dad deem it appropriate. My younger brother died when I was 16 (he was 9 at the time) and my mom kept his room a shrine for over a year. It was very painful when she finally went through everything--even after a year--so I say do what works for you to make things as easy on you as you can. As you pointed out, your mom would want it that way anyway.

Maryann, I hope you are doing ok. I have been really worried about you. How are your lungs? Any more news on how the Afinitor is working out? I hope you managed to stay out of the hospital last week!

Hey Donna, how are you? I hope all is well.

Well I need to get my kids bathed. We spent the day at the pool and I am exhausted. Post when you can ladies. I am thinking of all of you!

Dawn

donna_lee

dawnmomofthree said:

How are things?
Hello Ladies,

Well I have been out of the box this last week. I took the kids up to northern Ohio to visit my sister and my neices. Between the two of us we have 6 kids, all ages 7 and under, so it proved to be a lively visit. After that, the day after I got home my in-laws came for a 4 day visit. My fil is looking and feeling great. I am happy that he is feeling good, but kind of nervous that his therapy may not be helping since he really looks and feels good. He is taking Sudent only, now that the clinical trial he was on was stopped due to safety concerns. He has abdominal scans scheduled for July 10. We will know more after that I guess.

Carrie how have you been? You have been in my thoughts frequently this past week. I kept wondering how you and your family were holding up. It looks like you are doing pretty good so far. How is it going back to work? I think its fine to clean out your mom's room when you and your dad deem it appropriate. My younger brother died when I was 16 (he was 9 at the time) and my mom kept his room a shrine for over a year. It was very painful when she finally went through everything--even after a year--so I say do what works for you to make things as easy on you as you can. As you pointed out, your mom would want it that way anyway.

Maryann, I hope you are doing ok. I have been really worried about you. How are your lungs? Any more news on how the Afinitor is working out? I hope you managed to stay out of the hospital last week!

Hey Donna, how are you? I hope all is well.

Well I need to get my kids bathed. We spent the day at the pool and I am exhausted. Post when you can ladies. I am thinking of all of you!

Dawn

Maryann, Darrie, Dawn
To Carrie-my sentiments are as Dawn expressed above. I seem to be the responsible and local resident clean up hitter in both my and my husbands family. I've been thru it with my fil, his mother, my dad and then my mom. Even when my mom-in-law moved to an independent and assisted living unit, I got to clean up her house and left overs before the sale.
How is work going. I'm so glad you a job to return to with the economy the way it is.
To Maryann- I'm sure those teens are keeping you hopping. Is your energy level staying up? I had enquired about Afinitor, mostly because I want knowledge. At this time, all my Drs. say if surgery can be used, that's the best treatment for me. Only if it spreads and is inoperable will they suggest "chemo"/drug therapy.
TO Dawn- Sounds like you had a wild ride and vacation with little people. So glad you can get together with family.

We had most of us here over the weekend. Oldest granddaughter was 5 on the 16th, but they had her party at the beach on Sunday afternoon with some of her friends from pre-school plus family. My daughter and her boys came down from Portland and we had a short but nice visit from Sat-Mon morn.
On Monday morning Chelsea's Mom said to her, "your birthday is tomorrow." The almost 3 year old said, "My birthday's next." She got mixed up with the party being 2 days early.

The road trip with my 13 year old grandson will be in mid to late July. I gave him a couple of alternate itineraries and he picked the one that goes to the fossil beds and paleontology center. Hot and dry-100 degree desert, watch out for rattle snakes.

We've got some BBQ/party invitations coming up next. On 6/27 is the local Relay For Life. For a small town, last year ours raised about $115,000. I'm going for the box lunch and kick-off ceremonies, plus walk for our team during the first 1/2 hour. Our team is called "Been There, Done That" and we all are part of the Cancer Survivors Support Group that meets weekly. Almost all have had some form of cancer, or were the caregiver when a spouse or family member was dealing with treatment.
Later that afternoon, we going to an outdoor party; and on the 4th we going to a friends cabin in the mountains for their annual get-together.

Did you see that corey50 had a great report on her CT?

Keep the good news coming
Donna

bangormom

bangormom said:

Hi Ladies,
I had my port put
Hi Ladies,

I had my port put in on tuesday, and boy do I have pain! The cough that I have from the Afinitor makes the pain so much worse, I haven't gotten a real good sleep in 2 days now and it is making me cranky, I don't like that. We have had icky weather up here, and I am still trying to get my daughter to make some time for those pic's I want to send, she'll get to it. Her cheer tryouts will be held the last week of school and they don't even have a coach, what a year for cheer this will be.

Oh, before I forget, on tuesday 2hrs after I was discharged I had a dr's appointment I gained 3lbs! For me thats great news, he says he thinks I am doing pretty good, but no treatment for this cough that is driving me over the bend. All the doctors keep telling me that I have try all the over the counter stuff first, well that can get expensive, but it is what I am going to have to do I guess, one day I'll find something that works.

Dawn, has your father in law tried Biotene mouthwash and toothpaste for the mouth sore's, it has worked for me, if he has and it doesn't work there is a perscription the doctor can writte for something called mirical mouthwash, I haven't used it, but others have and they say it works. You might even be able to find a home made version on line. Well I have to go and get some ice for my shoulder, hopefuly I can get those pic's out this week.

Maryann

Just bumping to see if I can
Just bumping to see if I can move this thread over. Yeah it worked.

Noranv

Papillary renal cell carcinoma
I had surgery to remove my left kidney on 5/19/09. The original diagnosis was clear cell renal carcinoma, however, the pathology report showed I have 3rd stage papillary renal cell carcinoma.

My condolences to you and your mother for what you are going through. I am a survivor of Ovarian Cancer (1983-1984 two surgeries and a year of chemotherapy) so I know a small part of what your mother is going through. I've been told by both my oncologist and my surgeon that neither chemotherapy nor radiation are effective against papillary kidney cancer and, frankly, was somewhat relieved at that news because, despite my love for and the devotion of my children, I'd rather not feel obligated to go through chemotherapy again.

One thing I have decided is that I am NOT going to allow this disease to ruin the life I have remaining. I'm going to experience and enjoy each day as it comes and I look forward to becoming a great grandmother for the first time around Christmas.

You are in my thoughts and prayers. I believe that cancer is harder on the family and friends than on the cancer patient because they want so very much to help and feel powerless.
Bless your heart.

AlwaysHaveHope

bangormom said:

Just bumping to see if I can
Just bumping to see if I can move this thread over. Yeah it worked.

Hi, Maryann, Dawn, and Donna....
Hey, everyone. How are you all doing? Great I hope.

I am so tired right now, so I'm going to try to keep this one short for right now.

This weekend has been busy. Comcast came yesterday and spent a couple hours getting us set up, then I went to Office Max for a new desk chair (gave mine to dad for his new desk), and spent over two hours at the grocery store, and came back home and made pizza.

Today, was a great day. Today, me and dad, my sister, her fiance', and my nephew all met up with my dad's sister and her daughters (my cousins are older than me) and their family for a cook out at Holiday Lake State Park in Appomatox County. It's basically this big freshwater lake in the middle of a park in the mountains where you can go boatpaddling, fishing, swimming, diving, and so on. I had no idea I was going to get wet today! I luckily brought a pair of shorts and old shirt that I changed into when we got there. The younger kids and my future brother-in-law and one of my cousins went into the water. I was just going to wade into the water, but they had swimsuits on and well I got splashed with water and then nocked into the water, and well, I gave up and ended up spending over 3 hours with them in the 4 ft. water, swimming and splashing around. It was fun, actually. I wish mom could have been there to enjoy it with us, though. We haven't seen dad's family in a long time; most of my cousins' children have grown so much, we didn't recognize them. Plus, we got to meet my cousin's two twin adopted children that we've never gotten a chance to meet before (dad and his sister have had a rocky relatiionship over the years, so we're trying to re-establish some family ties). When mom got sick and had her surgery back over a year ago, dad's sister reached out to us and has been visiting with us ever since, and today was the first time in several years that we got to see dad's side of the family.

Got so much more to do around here. My next task, for this week, is to try and work on putting family pictures in the frames that mom wanted me to help her with and get hung on the wall. We never got around to it, and well, now I feel like it is something that I must do; that I owe it to her and to myself (one of my regrets is that I never got around to helping her with this). As far as our current situation is, I think we are doing okay for right now. I think dad is bored lately, because I often retreat to my bedroom at night leaving him down stairs on weeknights, but I'm going to try and be better about that. And as for me, well, I think I'm doing okay, I seem to be handling things better than I ever imagined I would in a time like this. I like to think it's just my way of inheriting my mom's strong will (she was a very strong and determined woman). I have my moments though, like...when I walk down the hallway at night and walk past mom's use-to-be bedroom...I get scared sometimes because all I can picture are moments when I used to lay beside her and scratch her back or lay and talk with her, especially there at the end. But on a better side, I've also been having these moments lately where I'll be doing something around the house either the right/or wrong way and I stop and imagine what she would have said to me at that moment, and for a few minutes it feels like she is here with me. And I welcome some of these moments, because not having the difficult moments or not trying to remember, would make me feel like I'm doing my mom's memory an injustice.

Oh yeah, thanks for asking about how work was. Most people there are really nice and were so supportive, so going back did help to a certain degree...I'm not going to say much about work other than that though; some things that were raised to attention in a staff meeting last week have raised my temper level really high and well, I don't want to re-kindle that fire, right now.

Well, here I am rambling on about myself and my own life, what about you all? How are all of you doing?

Donna, it sounds like you are going to have fun in July. How are you doing? Okay I hope.
Maryann, haven't heard much from you lately. I hope everything is going better for you. Hope your lungs are feeling better and the lympnode isn't giving you anymore problems. Did you go off the Afinitor?
Dawn, I'm glad to hear that your fil is feeling okay. I know what you mean about not knowing what to feel about him feeling good while taking the treatment pill he is on. You can't ever tell much from that though; some people react differently than others to treatments, whatever form of treatment it may be. His cancer could be getting smaller and he's just not feeling any distinct side effects. You just don't know. Time and scans will show. But remain hopeful, no matter what.

Well, this "short" posting, got really long. Oh well. Anyways, I'm sunburned all over my face and my legs are tired from swimming/wading in water so, I'm going to go now, seeing how it's after midnight anyways and I'll catch up some more with you all later this week. I might send you'll some pictures from today, if I get to it. Bye.

donna_lee

Noranv said:

Papillary renal cell carcinoma
I had surgery to remove my left kidney on 5/19/09. The original diagnosis was clear cell renal carcinoma, however, the pathology report showed I have 3rd stage papillary renal cell carcinoma.

My condolences to you and your mother for what you are going through. I am a survivor of Ovarian Cancer (1983-1984 two surgeries and a year of chemotherapy) so I know a small part of what your mother is going through. I've been told by both my oncologist and my surgeon that neither chemotherapy nor radiation are effective against papillary kidney cancer and, frankly, was somewhat relieved at that news because, despite my love for and the devotion of my children, I'd rather not feel obligated to go through chemotherapy again.

One thing I have decided is that I am NOT going to allow this disease to ruin the life I have remaining. I'm going to experience and enjoy each day as it comes and I look forward to becoming a great grandmother for the first time around Christmas.

You are in my thoughts and prayers. I believe that cancer is harder on the family and friends than on the cancer patient because they want so very much to help and feel powerless.
Bless your heart.

Five Musketeers, now
Don't we wish we could close membership in this club?
Hey, Carrie. It sounds like you had a blast and for a while forgot what happened the past few months. That is great.
And you don't have to always keep your dad company. He needs to work thru things, too. He's just lucky you still live at home and are around part of the time.
Just thought I'd share that your mom will have a luminaria (bag with sand and a candle) lit in her memory at 10 pm PDT on Saturday night, the 27th during our Relay For Life Celebration.

My hubby was home most of the weekend. They have had a job out of town that took 2.5 hours one way to drive, so almost all had taken camp trailers to stay on site, or gotten a motel room 20 miles away. I guess he brought me his "father's day present"...the camp trailer that needs to be cleaned out after 2 guys batched in it since the first of June.

Last night, our son, his wife and girls came up. We had a tea party with many tiny cups of water served by the 5 yr old hostess along with the cake d-i-l made. The almost 3 yr old set the table.

Have a good week, y'all.
Donna

AlwaysHaveHope

donna_lee said:

Five Musketeers, now
Don't we wish we could close membership in this club?
Hey, Carrie. It sounds like you had a blast and for a while forgot what happened the past few months. That is great.
And you don't have to always keep your dad company. He needs to work thru things, too. He's just lucky you still live at home and are around part of the time.
Just thought I'd share that your mom will have a luminaria (bag with sand and a candle) lit in her memory at 10 pm PDT on Saturday night, the 27th during our Relay For Life Celebration.

My hubby was home most of the weekend. They have had a job out of town that took 2.5 hours one way to drive, so almost all had taken camp trailers to stay on site, or gotten a motel room 20 miles away. I guess he brought me his "father's day present"...the camp trailer that needs to be cleaned out after 2 guys batched in it since the first of June.

Last night, our son, his wife and girls came up. We had a tea party with many tiny cups of water served by the 5 yr old hostess along with the cake d-i-l made. The almost 3 yr old set the table.

Have a good week, y'all.
Donna

Sounds like you had some fun, too...
Donna,
It sounds like you had some fun, too. What a nice "father's day present". You must have had a few laughs with the tea party and grandchildren. I bet that was a cute thing to see. I can remember doing the same thing when I was little.

Anyways, how are you doing? I hope you're doing good.

Thanks for the candle lighting in mom's memory coming up this Saturday. That means a great deal to me. Thank you so much. I'll try to remember Saturday at 10 to take a moment. I've heard about Relay for Life a lot in the past. What are they about, what do they do, exactly? I think our's here was sometime last month, not sure though.

Have you heard anything from Maryann? I'm kind of wondering, because I don't think I've heard from her lately.

Well, I've been thinking about you all and have a special place in my heart for each of you...Maryann, Dawn, and Donna. Hope to hear from you all soon. Talk with you later.

AlwaysHaveHope

Noranv said:

Papillary renal cell carcinoma
I had surgery to remove my left kidney on 5/19/09. The original diagnosis was clear cell renal carcinoma, however, the pathology report showed I have 3rd stage papillary renal cell carcinoma.

My condolences to you and your mother for what you are going through. I am a survivor of Ovarian Cancer (1983-1984 two surgeries and a year of chemotherapy) so I know a small part of what your mother is going through. I've been told by both my oncologist and my surgeon that neither chemotherapy nor radiation are effective against papillary kidney cancer and, frankly, was somewhat relieved at that news because, despite my love for and the devotion of my children, I'd rather not feel obligated to go through chemotherapy again.

One thing I have decided is that I am NOT going to allow this disease to ruin the life I have remaining. I'm going to experience and enjoy each day as it comes and I look forward to becoming a great grandmother for the first time around Christmas.

You are in my thoughts and prayers. I believe that cancer is harder on the family and friends than on the cancer patient because they want so very much to help and feel powerless.
Bless your heart.

Hi, Noranv!
Hi,
Nice to meet you, Noranv. Sorry it has to be under these circumstances though.

That is so odd that your surgeon and oncologist told you that chemo and radiation are not effective against PRCC. I know radiation really isn't, but chemo...several people who are suffering from PRCC take or try chemo. As to whether anyone's really had a success with it, is another story, I guess, but for a doctor to come out and say flat right out that those aren't worth trying seems a bit strange to me.

But, either way, I support your choice to not go through chemo again. It's a monster, as I've said in one of my earlier posts. When my mom had made that decision to not take chemo anymore, that was a difficult thing to hear, but I supported her decision because I knew how hard that choice was for her and because I saw everyday what her last chemo had done to her. It must have been hard for your family to deal with that, but I bet they are supportive of you, also. But, anyways, I'd like you to know that I support your decision and think it is admirable to want to spend the rest of your life the way you'd like to; to enjoy things and do things that you want to do and in the way you want to do them.

What else that seems odd to me, and I've said it before, is that I've seen on this website and through these posts right here, that people who get PRCC or RCC, seem to have one thing in common. A lot of the women who get it, have started out with some form of female related cancer beforehand. I still wonder to this day, if the two are somehow related. But who knows.

Well, I hope you are doing okay right now. Please feel free to chat with us once in a while, I'm sure the others would welcome you, as I do. Have a nice evening.

Carrie

dawnmomofthree

AlwaysHaveHope said:

Hi, Noranv!
Hi,
Nice to meet you, Noranv. Sorry it has to be under these circumstances though.

That is so odd that your surgeon and oncologist told you that chemo and radiation are not effective against PRCC. I know radiation really isn't, but chemo...several people who are suffering from PRCC take or try chemo. As to whether anyone's really had a success with it, is another story, I guess, but for a doctor to come out and say flat right out that those aren't worth trying seems a bit strange to me.

But, either way, I support your choice to not go through chemo again. It's a monster, as I've said in one of my earlier posts. When my mom had made that decision to not take chemo anymore, that was a difficult thing to hear, but I supported her decision because I knew how hard that choice was for her and because I saw everyday what her last chemo had done to her. It must have been hard for your family to deal with that, but I bet they are supportive of you, also. But, anyways, I'd like you to know that I support your decision and think it is admirable to want to spend the rest of your life the way you'd like to; to enjoy things and do things that you want to do and in the way you want to do them.

What else that seems odd to me, and I've said it before, is that I've seen on this website and through these posts right here, that people who get PRCC or RCC, seem to have one thing in common. A lot of the women who get it, have started out with some form of female related cancer beforehand. I still wonder to this day, if the two are somehow related. But who knows.

Well, I hope you are doing okay right now. Please feel free to chat with us once in a while, I'm sure the others would welcome you, as I do. Have a nice evening.

Carrie

Checking In
Hello Ladies,

Hi Carrie, Donna, Maryann and hello and welcome Noranv. I was thinking summer would be more relaxed for me, but my kids have even more activities than usual right now and every day they want to go to the pool! I wouldn't mind the pool so much, but my 2 year old is a real handful and then after I chase her around I am frantically scanning the waterpark for my older children, hoping they haven't managed to drown themselves. Donna, I am sure you can relate to this with your 3 year old grandchild! LOL.

I had to go to urgent care this morning for myself. Its not serious, just a real irritating problem. I woke up and my eye had this rash all around it and it itched like you wouldn't believe. Somehow, I have managed to get poison ivy all around and in my left eye. Now I am taking oral steriods so it will go away and they told me I may gain weight. Just what I need! Anyway, its irritating, but certainly small potatoes compared to what all of you are going through.

My fil is still feeling good. My husband is going up to Youngstown in a week to stay with him for a few days and go with him for his July scans. Carrie, I am glad you slowly getting back into your life and healing a little bit. Donna, I am glad you are living up the summer with those grandchildren. Noranv, I think your dr is right, traditional chemo usually doesn't work for papillary renal cancer. Nonetheless, there still are a lot of treatment options and medications, that, while not chemo, may shrink and slow your tumor. My fil is currently taking Sudent and many people have had good luck with a drug called Torisel. Keep us posted and keep it up with your fantastic attitude! Maryann, my precious friend--how are you?? I know you have had a very rough time of it lately. I hope you feel well enough to post soon. Until then, we miss you and are praying for you.

Have a good week ladies,
Dawn

imbkuz

dawnmomofthree said:

Checking In
Hello Ladies,

Hi Carrie, Donna, Maryann and hello and welcome Noranv. I was thinking summer would be more relaxed for me, but my kids have even more activities than usual right now and every day they want to go to the pool! I wouldn't mind the pool so much, but my 2 year old is a real handful and then after I chase her around I am frantically scanning the waterpark for my older children, hoping they haven't managed to drown themselves. Donna, I am sure you can relate to this with your 3 year old grandchild! LOL.

I had to go to urgent care this morning for myself. Its not serious, just a real irritating problem. I woke up and my eye had this rash all around it and it itched like you wouldn't believe. Somehow, I have managed to get poison ivy all around and in my left eye. Now I am taking oral steriods so it will go away and they told me I may gain weight. Just what I need! Anyway, its irritating, but certainly small potatoes compared to what all of you are going through.

My fil is still feeling good. My husband is going up to Youngstown in a week to stay with him for a few days and go with him for his July scans. Carrie, I am glad you slowly getting back into your life and healing a little bit. Donna, I am glad you are living up the summer with those grandchildren. Noranv, I think your dr is right, traditional chemo usually doesn't work for papillary renal cancer. Nonetheless, there still are a lot of treatment options and medications, that, while not chemo, may shrink and slow your tumor. My fil is currently taking Sudent and many people have had good luck with a drug called Torisel. Keep us posted and keep it up with your fantastic attitude! Maryann, my precious friend--how are you?? I know you have had a very rough time of it lately. I hope you feel well enough to post soon. Until then, we miss you and are praying for you.

Have a good week ladies,
Dawn

Whew what a thread
I've read all the posts the other day and felt so compelled that I just couldn't put it down. My heart goes out to all. My hubby has renal cell carcinoma stage IV so wasn't quite in the loop with the papillary but in retrospect we are all united.I am recovering from cataract surgery so left eye blurry but I just had to write. I know Donna lee (Hi) hope all is well. i know Maryann who helped me a lot (she is my godsend) and am very concerned since you haven't posted lately.It's hard to describe but besides worrying and tormenting about your loved ones who are sick,then you get attached and worry about your fellow cancer friends. And Carrie, I never had the honor to chat with you but my heart goes out to you and aches. I have a son who I worry about because he is taking his dads illness very hard and also is trying to help in his own way. Your mom and family must have been/be very proud of you. You seem like an amazing young lady.I hope this message finds you doing as well as can be expected. I am so sorry for your loss. And to everyone else on this site God Bless and I am praying. Please don't feel slighted if I didn't mention everyone by name since it's hard for me to see right now but I didn't want to waste another day or excuse not to write. You all touched me.
Always
imbkuz

AlwaysHaveHope

imbkuz said:

Whew what a thread
I've read all the posts the other day and felt so compelled that I just couldn't put it down. My heart goes out to all. My hubby has renal cell carcinoma stage IV so wasn't quite in the loop with the papillary but in retrospect we are all united.I am recovering from cataract surgery so left eye blurry but I just had to write. I know Donna lee (Hi) hope all is well. i know Maryann who helped me a lot (she is my godsend) and am very concerned since you haven't posted lately.It's hard to describe but besides worrying and tormenting about your loved ones who are sick,then you get attached and worry about your fellow cancer friends. And Carrie, I never had the honor to chat with you but my heart goes out to you and aches. I have a son who I worry about because he is taking his dads illness very hard and also is trying to help in his own way. Your mom and family must have been/be very proud of you. You seem like an amazing young lady.I hope this message finds you doing as well as can be expected. I am so sorry for your loss. And to everyone else on this site God Bless and I am praying. Please don't feel slighted if I didn't mention everyone by name since it's hard for me to see right now but I didn't want to waste another day or excuse not to write. You all touched me.
Always
imbkuz

Hi, nice to meet you.
Hi, nice to meet you. I know it must have taken you a while to read our posts, we've been going at it for a while, since the end of last year, I think. I find myself writing on this site more often now. Thank you for your concern and kind words.

Your husband is going through this? I'm so sorry and I really mean that, because no one should ever have to experience this type of cancer, any cancer for that matter. My mom was stage 4, too. I know what your son is feeling like right now. Your heart aches because you don't know exactly what to do, but all you know is you want to do something. You want to do something to help the one who's suffering and you realize one day that there really isn't anything you can do, except to be there for them, spend time with them, get them whatever they want, talk with them, cry or laugh with them when they need it, and let them know everyday how much you love them. I think what made things a little less painful or little easier to get through it, was that I made sure I was there for everything. Of course there, were really painful moments, like when you watch them geting sick or where they get to the point they can't eat, but there's also the better moments when you realize that for some reason someone's giving you extra special moments with that loved one, that will give you memories to last forever, like for me it was laying beside my mom at night and just talking, about anything and everything.

How about you? How are you dealing with things right now? Please remember that it's okay to take a moment for yourself once in a while. I know it can get stressful or depressing at times and you just feel like you need to get away for a minute and it's okay to do so.

Well, anyways, I've got so much to do today, it's not even funny. I want to clean mom's closet out; it's the last of her bedroom stuff, and I'm planning on going by my nanny's house to visit (that's my mom's mom), oh yeah, and lots of clothes to wash, oh boy. I'm also hoping to get these photos sorted out for those picture frames to hang, still haven't gotten to it yet. Well, I've got to go. Hope to hear from you again, please feel free to post with us.

Maryann, I'm getting really worried. Please email me or post, or something. This isn't like you.
Dawn and Donna, I hope to hear from you soon. Hope you two are doing good.

imbkuz

AlwaysHaveHope said:

Hi, nice to meet you.
Hi, nice to meet you. I know it must have taken you a while to read our posts, we've been going at it for a while, since the end of last year, I think. I find myself writing on this site more often now. Thank you for your concern and kind words.

Your husband is going through this? I'm so sorry and I really mean that, because no one should ever have to experience this type of cancer, any cancer for that matter. My mom was stage 4, too. I know what your son is feeling like right now. Your heart aches because you don't know exactly what to do, but all you know is you want to do something. You want to do something to help the one who's suffering and you realize one day that there really isn't anything you can do, except to be there for them, spend time with them, get them whatever they want, talk with them, cry or laugh with them when they need it, and let them know everyday how much you love them. I think what made things a little less painful or little easier to get through it, was that I made sure I was there for everything. Of course there, were really painful moments, like when you watch them geting sick or where they get to the point they can't eat, but there's also the better moments when you realize that for some reason someone's giving you extra special moments with that loved one, that will give you memories to last forever, like for me it was laying beside my mom at night and just talking, about anything and everything.

How about you? How are you dealing with things right now? Please remember that it's okay to take a moment for yourself once in a while. I know it can get stressful or depressing at times and you just feel like you need to get away for a minute and it's okay to do so.

Well, anyways, I've got so much to do today, it's not even funny. I want to clean mom's closet out; it's the last of her bedroom stuff, and I'm planning on going by my nanny's house to visit (that's my mom's mom), oh yeah, and lots of clothes to wash, oh boy. I'm also hoping to get these photos sorted out for those picture frames to hang, still haven't gotten to it yet. Well, I've got to go. Hope to hear from you again, please feel free to post with us.

Maryann, I'm getting really worried. Please email me or post, or something. This isn't like you.
Dawn and Donna, I hope to hear from you soon. Hope you two are doing good.

Carrie
Wow who's the mother here! I don't know how old you are but you seem wise beyond your years. If I had a daughter I would want her to be just like you sparing the pain of course. But I guess that unfortunately made you who you are today. I'm so impressed. I feel all those feelings and then some. No one should have to go through this and I have been there before with other family members and myself.(I'm not well and that's another story).I know they say to take some time out for yourself. I've been hearing that for many years. Easier said then done but thank you for the advice. I find it hard to look at my hubby sometimes.He doesn't look the same and it hurts to see him like this.It's so hard to watch someone you love go through this. He always was very macho and my rock. He started his meds about two weeks ago and yesterday was the first day that he really didn't feel well.I can't even imagine what's going on in his mind since he's not much of a talker.I'm just so scared how am I going to take care of him and everything else when some days are difficult for myself but people just expect it from me. Hopefully today will be a better day. It sounded like you had a full day of plans yesterday. I hope you accomplished what you wanted. How is your mom's mother handling this? Your dad and sister doing?
I could only hope that my son meets someone half as special as you someday. Unfortunately he's having a hard time relating to other people lately (as I myself am) since their lives are so different.Most people his age don't understand and seem too busy enjoying life. My heart is breaking for him as well. Enough of my rambling. I hope this is somewhat coherent since I've been up a good portion of the night. I wish I could hold you and give you a great big hug.
I hope we hear from Maryann soon.
God Bless
With All My Heart
Imbkuz

AlwaysHaveHope

imbkuz said:

Carrie
Wow who's the mother here! I don't know how old you are but you seem wise beyond your years. If I had a daughter I would want her to be just like you sparing the pain of course. But I guess that unfortunately made you who you are today. I'm so impressed. I feel all those feelings and then some. No one should have to go through this and I have been there before with other family members and myself.(I'm not well and that's another story).I know they say to take some time out for yourself. I've been hearing that for many years. Easier said then done but thank you for the advice. I find it hard to look at my hubby sometimes.He doesn't look the same and it hurts to see him like this.It's so hard to watch someone you love go through this. He always was very macho and my rock. He started his meds about two weeks ago and yesterday was the first day that he really didn't feel well.I can't even imagine what's going on in his mind since he's not much of a talker.I'm just so scared how am I going to take care of him and everything else when some days are difficult for myself but people just expect it from me. Hopefully today will be a better day. It sounded like you had a full day of plans yesterday. I hope you accomplished what you wanted. How is your mom's mother handling this? Your dad and sister doing?
I could only hope that my son meets someone half as special as you someday. Unfortunately he's having a hard time relating to other people lately (as I myself am) since their lives are so different.Most people his age don't understand and seem too busy enjoying life. My heart is breaking for him as well. Enough of my rambling. I hope this is somewhat coherent since I've been up a good portion of the night. I wish I could hold you and give you a great big hug.
I hope we hear from Maryann soon.
God Bless
With All My Heart
Imbkuz

Hi, Having a nice weekend, I hope...
Hi,
As far as Maryann goes, Dawn emailed me last night concerned about her as well. She told me Maryann hadn't been doing too good. I hope she is alright. I'm really concerned and worried about her. Dawn was asking me if I had a phone number for her, but I don't, unfortunately.

I know what you mean by not really getting a chance to take time for yourself; you're so busy caring for your loved one and then, you don't want to be away from them too long for fear of not being there. Your worries about how your going to take care of your hubby and be able to cope at the same time, are real and I felt the same way and so did dad, when we were taking care of mom. She didn't become real ill until a few months ago, when she decided to take Torisel (chemo) a second time. She was hoping taking it a second time but taking it for a longer period of time would help her, but instead it killed her. When she was taking that, she really changed. She didn't look the same, threw up a lot, and couldn't eat, which caused her to be really thin. It was so bad at times, I couldn't stand to watch it and yet somehow you make it through it, I guess because you just have to, because you love them so much and know they'd be there for you if it was you going through it. Of course, there were times when I felt I would scream out or wanted to just cry all day because it was so hard and stressful, but I saved those moments for when I was alone in my car or in bed at night. Mom had gotten to a point were she was so depressed because she knew somehow she didn't have much time left and I didn't want to upset her further by crying, so I stood strong, never let anyone see me cry, and perhaps that was the wrong thing to do, but like you said...people almost expect it of you. I feel for your son, because I know he's having a really hard time right now and I can relate to the not being able to relate to other people right now. It's a hard thing to go through; it's like your life/world is falling apart and no one around you except those going through it, understands.

Thanks for asking about my family. My nanny (mom's mom) seems to be handling it okay; better than I thought she would. I visited her yesterday and took some Arby's to her and we sat and ate lunch together. She said, "just like old times". Mom and I used to go over there, before she was diagnosed, and took Arby's all the time and ate with her. She misses it I guess. As far as dad, well, I'm not so sure. At times it's like we're doing okay, and other times it's like it just hits you that mom's not there and I can see dad just sitting there with that look on his face. He said he went to the cemetary the other day and regretted it, because it was too early for him to. I understand. I went a few weeks ago and cried so hard. It's just going to take time.

Well, how are you doing? Okay I hope. I rambled on so much, I didn't even ask. I hope you are maintaining. Remember there's going to be bad days and then there will be really good days; days that seem almost normal. The key is to really be thankful for the good days, because they're precious.

Well, lots to do today, too. Groceries and well, my great aunt is in town from Arizona and is coming by to visit today.

Talk with you later,
Carrie

dawnmomofthree

AlwaysHaveHope said:

Hi, Having a nice weekend, I hope...
Hi,
As far as Maryann goes, Dawn emailed me last night concerned about her as well. She told me Maryann hadn't been doing too good. I hope she is alright. I'm really concerned and worried about her. Dawn was asking me if I had a phone number for her, but I don't, unfortunately.

I know what you mean by not really getting a chance to take time for yourself; you're so busy caring for your loved one and then, you don't want to be away from them too long for fear of not being there. Your worries about how your going to take care of your hubby and be able to cope at the same time, are real and I felt the same way and so did dad, when we were taking care of mom. She didn't become real ill until a few months ago, when she decided to take Torisel (chemo) a second time. She was hoping taking it a second time but taking it for a longer period of time would help her, but instead it killed her. When she was taking that, she really changed. She didn't look the same, threw up a lot, and couldn't eat, which caused her to be really thin. It was so bad at times, I couldn't stand to watch it and yet somehow you make it through it, I guess because you just have to, because you love them so much and know they'd be there for you if it was you going through it. Of course, there were times when I felt I would scream out or wanted to just cry all day because it was so hard and stressful, but I saved those moments for when I was alone in my car or in bed at night. Mom had gotten to a point were she was so depressed because she knew somehow she didn't have much time left and I didn't want to upset her further by crying, so I stood strong, never let anyone see me cry, and perhaps that was the wrong thing to do, but like you said...people almost expect it of you. I feel for your son, because I know he's having a really hard time right now and I can relate to the not being able to relate to other people right now. It's a hard thing to go through; it's like your life/world is falling apart and no one around you except those going through it, understands.

Thanks for asking about my family. My nanny (mom's mom) seems to be handling it okay; better than I thought she would. I visited her yesterday and took some Arby's to her and we sat and ate lunch together. She said, "just like old times". Mom and I used to go over there, before she was diagnosed, and took Arby's all the time and ate with her. She misses it I guess. As far as dad, well, I'm not so sure. At times it's like we're doing okay, and other times it's like it just hits you that mom's not there and I can see dad just sitting there with that look on his face. He said he went to the cemetary the other day and regretted it, because it was too early for him to. I understand. I went a few weeks ago and cried so hard. It's just going to take time.

Well, how are you doing? Okay I hope. I rambled on so much, I didn't even ask. I hope you are maintaining. Remember there's going to be bad days and then there will be really good days; days that seem almost normal. The key is to really be thankful for the good days, because they're precious.

Well, lots to do today, too. Groceries and well, my great aunt is in town from Arizona and is coming by to visit today.

Talk with you later,
Carrie

Still worried about Maryann
Hello Everyone,

I hope all of you are doing good. I have just been feeling so down today. As Carrie posted above, we haven't been able to get in contact with Maryann and I am so very worried about her. Maryann, if you are out there, we are all praying and hoping that you are doing ok. We miss you very much.

Carrie, thanks for responding to my emails. You are handling yourself so well in this time after your mom's passing that I am just amazed. I'm sure your mom is so proud, but not at all surprised at how well you are handling this. Your post above, about your mom taking the Torisel, scares me to death. My fil will probably take that one next. I pray that he will not have such a severe reaction to it and that it will help. Right now its just one day at a time and we won't have any more news on how my fil's cancer is doing until after his scans on July 10.

Everyone else out there, best wishes to all of you. I hope this message finds everyone doing well. I need to go play with my kids and focus on something positive. Take care ladies.

Dawn

imbkuz

dawnmomofthree said:

Still worried about Maryann
Hello Everyone,

I hope all of you are doing good. I have just been feeling so down today. As Carrie posted above, we haven't been able to get in contact with Maryann and I am so very worried about her. Maryann, if you are out there, we are all praying and hoping that you are doing ok. We miss you very much.

Carrie, thanks for responding to my emails. You are handling yourself so well in this time after your mom's passing that I am just amazed. I'm sure your mom is so proud, but not at all surprised at how well you are handling this. Your post above, about your mom taking the Torisel, scares me to death. My fil will probably take that one next. I pray that he will not have such a severe reaction to it and that it will help. Right now its just one day at a time and we won't have any more news on how my fil's cancer is doing until after his scans on July 10.

Everyone else out there, best wishes to all of you. I hope this message finds everyone doing well. I need to go play with my kids and focus on something positive. Take care ladies.

Dawn

Dawn and Carrie
I too am in awe of Carrie. As a matter of fact in all you ladies. I was honored to read all your posts.Dawn what a wonderful daughter-in-law to be so involved with your father-in-law.Just remember everyone reacts differently to the medications so one day at a time.
We all just have to pray that they work. My hubby's on Sutent. Still on his first cycle. So I am praying that his tumors in his lungs shrinks.
Right now I am truly concerned about Maryann. She was so kind and an inspiration to me. Please keep me posted and tell her she is in my prayers. Hope to talk soon.
Babs

donna_lee

imbkuz said:

Dawn and Carrie
I too am in awe of Carrie. As a matter of fact in all you ladies. I was honored to read all your posts.Dawn what a wonderful daughter-in-law to be so involved with your father-in-law.Just remember everyone reacts differently to the medications so one day at a time.
We all just have to pray that they work. My hubby's on Sutent. Still on his first cycle. So I am praying that his tumors in his lungs shrinks.
Right now I am truly concerned about Maryann. She was so kind and an inspiration to me. Please keep me posted and tell her she is in my prayers. Hope to talk soon.
Babs

Weekend news
Hello to all-
I had a busy week/weekend. Our office doesn't have much landscaping because it is an equipment repair and truck shop along with the office, but I haven't been able to do anything the previous three years. So after a morning of paperwork, I'd put on my work clothes and tackle the overgrown shrubs, weeds, and accumulated dirt and grit. I ended up with pitch in my hair from leaning over the pine tree and dirt in my eyes, ears and nose. The next two days I pulled my hair back thru the adjustable strap in the baseball cap. I have one more afternoon of that kind of work.

Saturday was Dave's and my 45th anniversary. We got married after our Jr. year in college, but we both finished school.
From 11-2:30, I was involved with the ACS Relay for Life. Box lunch, entertainment, kick-off ceremony, survivors' lap, plus walking the track for the next half hour. Some stayed all night, but we had a picnic to attend so went out to it until nearly 6. By the time we'd eaten a late BBQ and all the other pot-luck stuff supplied by about 60-70 guests, Dave and I just went home and watched TV for an hour and then crashed.

On Sunday, I made my husband take me out to breakfast at Mom's- a little diner with about 6 tiny tables and a counter. Then we went home and worked in our own yard. I finally have my pond and waterfall so I can go buy some goldfish. No fancy Koi for me, since the raccoons will eat them anyway.

Today was cancer support group. So far, turn in of $$ for all the relay teams was at $85K, with more to be turned in before the first of August. I guess the Oregon Coast wind really got strong and cold after I left Saturday. Glad I missed it.

I almost feel guilty when I say I feel well...but not totally. There've been enough times when the news was bad. So I'm sure you'll forgive me a little. Everyone, hang in there.
Donna

corey50

donna_lee said:

Weekend news
Hello to all-
I had a busy week/weekend. Our office doesn't have much landscaping because it is an equipment repair and truck shop along with the office, but I haven't been able to do anything the previous three years. So after a morning of paperwork, I'd put on my work clothes and tackle the overgrown shrubs, weeds, and accumulated dirt and grit. I ended up with pitch in my hair from leaning over the pine tree and dirt in my eyes, ears and nose. The next two days I pulled my hair back thru the adjustable strap in the baseball cap. I have one more afternoon of that kind of work.

Saturday was Dave's and my 45th anniversary. We got married after our Jr. year in college, but we both finished school.
From 11-2:30, I was involved with the ACS Relay for Life. Box lunch, entertainment, kick-off ceremony, survivors' lap, plus walking the track for the next half hour. Some stayed all night, but we had a picnic to attend so went out to it until nearly 6. By the time we'd eaten a late BBQ and all the other pot-luck stuff supplied by about 60-70 guests, Dave and I just went home and watched TV for an hour and then crashed.

On Sunday, I made my husband take me out to breakfast at Mom's- a little diner with about 6 tiny tables and a counter. Then we went home and worked in our own yard. I finally have my pond and waterfall so I can go buy some goldfish. No fancy Koi for me, since the raccoons will eat them anyway.

Today was cancer support group. So far, turn in of $$ for all the relay teams was at $85K, with more to be turned in before the first of August. I guess the Oregon Coast wind really got strong and cold after I left Saturday. Glad I missed it.

I almost feel guilty when I say I feel well...but not totally. There've been enough times when the news was bad. So I'm sure you'll forgive me a little. Everyone, hang in there.
Donna

WEEKEND NEWS
hey donna,
don't you dare feel guilty. you deserve and have earned all the good times and good health coming your way.
thanks for the update on your weekend.
it's so funny you have a breakfast place called MOM'S we have one called DAD'S.
friday night after supper my husband and i went to get an ice cream and watched a thunder/lightning storm come in over the ocean. he sat outside, i sat in the car. don't like lightning.
on sat. yard work for the guys/ housework for the girls. shower, rest then a graduation party for a friends daughter.
sunday. the weather broke a little here in the northeast so my hubby and i (the kids didn;t want to come) went to stroll a local art show and sit out in the sun for a few minutes enjoying the ocean.
supper around 5pm. then church 8pm mass.
home, tv, fall asleep.
yesterday was my daughter's 15th birthday. so lovely.
had a nice day. lunch out, walked around the shops, movie, dinner out. home for cake, ice cream and a new movie she got as a present.
my daughter's like me, we like to go out to eat for our birthdays, the guys like me to cook for them.
have a great week. the sun is shining. yeah.

dawnmomofthree

dawnmomofthree said:

Still worried about Maryann
Hello Everyone,

I hope all of you are doing good. I have just been feeling so down today. As Carrie posted above, we haven't been able to get in contact with Maryann and I am so very worried about her. Maryann, if you are out there, we are all praying and hoping that you are doing ok. We miss you very much.

Carrie, thanks for responding to my emails. You are handling yourself so well in this time after your mom's passing that I am just amazed. I'm sure your mom is so proud, but not at all surprised at how well you are handling this. Your post above, about your mom taking the Torisel, scares me to death. My fil will probably take that one next. I pray that he will not have such a severe reaction to it and that it will help. Right now its just one day at a time and we won't have any more news on how my fil's cancer is doing until after his scans on July 10.

Everyone else out there, best wishes to all of you. I hope this message finds everyone doing well. I need to go play with my kids and focus on something positive. Take care ladies.

Dawn

Update on Maryann
Hello everyone,

I wanted to give everyone an update on Maryann. Her daughter sent me an email. Maryann is back in the hospital and having difficulty breathing. The cancer has spread to her lungs. She is fighting but we all need to pray for her and send good thoughts her way. Maryann has been such a source of support and kindness for all of us on this thread. I am hoping and praying that she will be back with us posting messages very soon.

Dawn

imbkuz

dawnmomofthree said:

Update on Maryann
Hello everyone,

I wanted to give everyone an update on Maryann. Her daughter sent me an email. Maryann is back in the hospital and having difficulty breathing. The cancer has spread to her lungs. She is fighting but we all need to pray for her and send good thoughts her way. Maryann has been such a source of support and kindness for all of us on this thread. I am hoping and praying that she will be back with us posting messages very soon.

Dawn

Dawn
Thank you so much for the update. It was bittersweet. I am having a really difficult time the last few days and as I write this I'm crying. Maryann was one of the first people to help me.I've also missed her on the kidney cancer forum. She's always been in my heart. This just made things worse hearing about her. She is my hero and a wonderful lady. I hope this passes quickly and she will be on the road to recovery shortly.Is there anyway I can let her know she's in my prayers? I miss her.
Thanks Dawn. I hope all is well with you and your family.
Always
Babs