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New Procedure?

blverrette
blverrette CSN Member Posts: 9
edited March 2014 in Colorectal Cancer #1
Hey Everyone,
this is my first posting. I have been a member of CSN for about a year and a half or longer. I am currently 39 yrs old, and I had stage III rectal cancer resulting from FAP. So, with all the radiation I received and the location of the mass I had they had to remove my entire colon and rectum. I live with a permanent ileostomy (bag on my stomach). Has anyone ever heard of a synthetic type of rectum? I would just like to know if there is a possibility I could become normal again.

Brian
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Comments

  • kimby
    kimby CSN Member Posts: 797 Member
    #2
    J-Pouch
    I'm not sure how the whole system works, but there is a lot of good info on ostomies, J-pouches, and other alternatives at uoaa.org. I love them over there - great inspiration and information!

    Kimby

    PS. Did your daughter get home on time last night? Gotta love teenagers and dating! LOL


    last edited: because I'm stupid and bad at proofing!
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  • blverrette
    blverrette CSN Member Posts: 9
    #3
    kimby said:

    J-Pouch
    I'm not sure how the whole system works, but there is a lot of good info on ostomies, J-pouches, and other alternatives at uoaa.org. I love them over there - great inspiration and information!

    Kimby

    PS. Did your daughter get home on time last night? Gotta love teenagers and dating! LOL


    last edited: because I'm stupid and bad at proofing!

    Yeah, she sure did.
    The only
    Yeah, she sure did.

    The only thing I found so far is a Dr. somewhere up north is doing some experiment on a artificial rectum.
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  • kimby
    kimby CSN Member Posts: 797 Member
    #4
    blverrette said:

    Yeah, she sure did.
    The only
    Yeah, she sure did.

    The only thing I found so far is a Dr. somewhere up north is doing some experiment on a artificial rectum.

    Link
    Here's the link to 'continent diversions' on the uoaa board:

    http://www.uoaa.org/forum/viewforum.php?f=8

    And there is a teen board just in case you know someone who might like that. ;)

    http://www.uoaa.org/forum/viewforum.php?f=9

    HTH

    Kimby
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  • KathiM
    KathiM CSN Member Posts: 8,027 Member
    #5
    Can they use small bowel?
    I have a dear friend who lost his entire large intestine, including his rectum and sig colon, to ulcerative collitis. They performed a J-pouch proceedure, using small bowel. He has been fine every since...sure, he has to watch what he eats, but NO BAG. (Well, it's inside, posing as a rectum...lol)

    MY J-pouch was made from descending colon. I was using my new 'rectum' that night after surgery.

    It is VERY doable, from what I gather, for many folks.

    My surgeon specializes in low bowel resection...he is at UC Irvine, and a VERY talented guy.

    Hugs, Kathi
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  • blverrette
    blverrette CSN Member Posts: 9
    #6
    Thanks
    They did try, but I had too much damage inside to make that happen. Surgeon told me that if he would have tried any more than they did I probably wouldn't have came out alive. The amount of radiation I received just didn't help the situation.
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  • KathiM
    KathiM CSN Member Posts: 8,027 Member
    #7
    blverrette said:

    Thanks
    They did try, but I had too much damage inside to make that happen. Surgeon told me that if he would have tried any more than they did I probably wouldn't have came out alive. The amount of radiation I received just didn't help the situation.

    I wish I could help....
    That's about all I know...but, USC (University of Southern California) specializes in colorectal cancer....also UC San Francisco....Maybe you could e-mail them or something and ask.

    Radiation is a real troublemaker, but it also saved my life...I still have a bad hip from where the beam went thru....

    Please keep us posted, Brian.

    Hugs, Kathi
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