need help quick about chemoradiation
Comments
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Never heard of that before ..
Get a second opinion. Call this number and ask one of the nurses or Drs about this...1-270-444-3930....3 Drs ...Gould, Concepcion and Chua, any of those 3 can answer your questions.
I did the 5fu 24/7 for 5 weeks and 25 rad treatments 5 days a week.....never heard of them taking the fanny pack off over the weekend but Im not sure....0 -
Get another opinion from a major cancer center
continuous 5FU with radiation for 5 days is standard. It does not need to be 24/7, that is a different protocol. However - it is usually combined with 8 weeks of Folfox and surgery.
I did mine:
surgery
8 rounds folfox - Oxaliplatin, leukovorin (a vitamin mix, but I guess it helps) a bolus of 5FU with pump for 46 hours, every other week and then on to 28 days of radiation with continuous 5U (5 days per week ) so basically 6 weeks. It is my understanding that this is the current standard for 3A - I was 3A - 2 positive nodes. I am currently 1 year plus ned. I was treated at Mass General - a very major cancer center.0 -
were you 3A - didn't you have the fanny pack and folfoxBuzzard said:Never heard of that before ..
Get a second opinion. Call this number and ask one of the nurses or Drs about this...1-270-444-3930....3 Drs ...Gould, Concepcion and Chua, any of those 3 can answer your questions.
I did the 5fu 24/7 for 5 weeks and 25 rad treatments 5 days a week.....never heard of them taking the fanny pack off over the weekend but Im not sure....
I am not sure that 25 days or 28 days with two days off is that different, but if you were 3A, didn't you have surgery and folfox?0 -
yes i had surgerypamness said:Get another opinion from a major cancer center
continuous 5FU with radiation for 5 days is standard. It does not need to be 24/7, that is a different protocol. However - it is usually combined with 8 weeks of Folfox and surgery.
I did mine:
surgery
8 rounds folfox - Oxaliplatin, leukovorin (a vitamin mix, but I guess it helps) a bolus of 5FU with pump for 46 hours, every other week and then on to 28 days of radiation with continuous 5U (5 days per week ) so basically 6 weeks. It is my understanding that this is the current standard for 3A - I was 3A - 2 positive nodes. I am currently 1 year plus ned. I was treated at Mass General - a very major cancer center.
yes i had surgery, in fact my surgeons last name was chua...where is that phone number for?? i don't know if i would want her giving me recommendations for chemo though as she was very cold and professional and gave me statistics of 40-60% survival for stage IIIa which according to my oncs is way off. I have had 2 cycles of fulfox so far and i still don't know what the plan is yet for the rest. One day she is talking only 1 more, the next day 3 more. She even said the standard for colon cancer without radiation is 14!! Don't know where she got that info from! from what i have noticed most people with radiation get 8 cycles of fulfox and 28-30 days radiation. Glad to hear someone else got their pump disconnected.That made me panic a bit thinking i was the only one. Thanks so much0 -
It was over 3 years ago, but.....
I had only 2 rounds of 5FU pump, hooked up Monday, removed Friday. During the day of that week, everyday, I also had an infusion of oxcillaplatin (or carboplatin...sorry, some jerk stole my records...). And 25 days of radiation.
I then had surgery. Removed my rectum and sig colon. And a total hysterectomy. I had stage IIIA rectal cancer, with a 2 inch tumor in the first rectal fold. No cancer was found in any of the removed tissue.
That said, if you are nervous, you need to ask. I had trust in my treatment team. You need to, too.
I am cancer free, on both this cancer and breast cancer.
Hugs, Kathi0 -
Chemoradiation therapy varies with individuals
I am on pre-operative radiation 5 days a week and on Xeloda 5 days a week, I'm off on weekends.
When I first got my prescription, I watched the video which said that the treatment schedule is usually 2 weeks followed by one week rest. I asked my oncologist about this and he mentioned that treatment really varies with individuals.
I don't think you should worry about being off 5FU on weekends. But as everyone suggested, do speak with your oncologist if you have any doubts.
Good luck!0 -
Mine was different
I had the surgery and was diagnosed as Stage III but I'm not sure what letter was after that. After I healed from the surgery in January, I started the chemo (5FU/Leucovin/Oxipilatin) for 12 cycles. We actually stopped the Oxipilatin after 9 cycles because I was having such problems with it.
In the middle of the 12 cycles, I had 6 weeks of daily radiation (Mon - Fri) and was taken off the infused chemo and put on oral (Capecitabine) pill form. My oncologist (who is in the picture with me and I adore her) said that the Capecitabine worked really well with the radiation, but was milder than the infused chemo I was on.
So, I think it can really differ, depending on the person, their metabolism, height, weight, general health, length of treatments, etc.
Hugggggs,
Cheryl0 -
This one is an Oncologist .......polarprincess said:yes i had surgery
yes i had surgery, in fact my surgeons last name was chua...where is that phone number for?? i don't know if i would want her giving me recommendations for chemo though as she was very cold and professional and gave me statistics of 40-60% survival for stage IIIa which according to my oncs is way off. I have had 2 cycles of fulfox so far and i still don't know what the plan is yet for the rest. One day she is talking only 1 more, the next day 3 more. She even said the standard for colon cancer without radiation is 14!! Don't know where she got that info from! from what i have noticed most people with radiation get 8 cycles of fulfox and 28-30 days radiation. Glad to hear someone else got their pump disconnected.That made me panic a bit thinking i was the only one. Thanks so much
Sorry, probably shouldn't post numbers anymore, but this Chua is a man and an Oncologist...0 -
Hi, I didn't get the 5FU
Hi, I didn't get the 5FU pump at all during my chemoradition. I had once a week infusions of Cisplatin while I was getting radiation. I had my chemo/radiation this past Feb-mid March. I've wondered about why mine was different than most i've heard. I actually never remembered to ask my Dr. later why mine was different. The only thing I can think of was that I already had lots of 5FU with my systemic chemo the prior 6 months. I had major chemo first (Folfox plus Avastin) due to mets in liver and lungs. I did well with that, then got to the point where they were ready to focus on my original rectal tumor.
*The important thing- it did work- my rectal tumor (4 x 3 cm) completely disappeared & follow up biopsy of the former tumor site showed absolutely no sign of any cancer. I ended up not having the rectal surgery after all. Some Drs would still have removed that portion of my rectum, I was told. My surgeon decided not to because my tumor was so low that I had a very high chance of ending up w/ a permanent colostomy. At 42, she said she would just check me every 3 months. So, the plan is to see her for a rectal exam by scope every 6 months & inbetween get an ultrasound sigmoidoscopy (so I'll be checked in some way every three months). To throw a ringer in there, I'm showing lung activity again & am now on chemo again (Camptosar/Erbitx/Avastin this time). I am sooo relieved, though, that my most recent follow up scans still show nothing in my rectum.
Best wishes to you-
Lisa0
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