whats the differnece
I read alot of post and almost everyone says they had surgery im just wondering what type of surgery.
and most importantly what is the difference between a hysterectomy and debulking.
I also read post of woman who had a hysterectomy and still are going through this horrible fight.
im sorry guys but i may not have the diease but i feel as if im dying.. dying from the unknown...
Comments
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DIFFERENCE
So sorry to hear you are no closer to answers than you were a few days ago. Basically, surgery is considered 'debulking', removing as much visible cancer as possible. How radical surgery is depends on the person and circumstances. I was 53 1/2 when I had my first surgery - a complete hysterectomy, omentum removal, lymph node removal. No point in keeping the female organs at my age, once we new I had OVCA. The omentum was removed because that's what my doctor chose to do with respect to his expertise in the field (which is tremendous). Lymph nodes were removed to be tested for cancer.
My second surgery was another pelvic mass that had developed. So, it was removed as well as more lymph nodes to be tested. I actually also asked the doctor to remove my appendix at the same time, as I have heard of lots of women who develop appendicitis around my age. Anyway, again the types of surgeries, etc. depend a great deal on the individual circumstances.
I'm almost leaning toward not asking your sister any more questions at this time. And also, not worrying too much about it right now. This sounds so stressful for you. And I'm thinking that maybe at a certain point your sister will just open up about all of this, when she's ready. Until then, there's not much you can do for her if she's not willing to be honest. And, as I mentioned in an earlier post, it might not all be what you are thinking, or the worst case scenario.
So, hang in there and see what happens. Hopefully, you'll get all your questions answered soon. Until then, feel free to keep coming back here for support and info. We're here for you.
(((HUGS)))
Monika0 -
Maybe your rightmopar said:DIFFERENCE
So sorry to hear you are no closer to answers than you were a few days ago. Basically, surgery is considered 'debulking', removing as much visible cancer as possible. How radical surgery is depends on the person and circumstances. I was 53 1/2 when I had my first surgery - a complete hysterectomy, omentum removal, lymph node removal. No point in keeping the female organs at my age, once we new I had OVCA. The omentum was removed because that's what my doctor chose to do with respect to his expertise in the field (which is tremendous). Lymph nodes were removed to be tested for cancer.
My second surgery was another pelvic mass that had developed. So, it was removed as well as more lymph nodes to be tested. I actually also asked the doctor to remove my appendix at the same time, as I have heard of lots of women who develop appendicitis around my age. Anyway, again the types of surgeries, etc. depend a great deal on the individual circumstances.
I'm almost leaning toward not asking your sister any more questions at this time. And also, not worrying too much about it right now. This sounds so stressful for you. And I'm thinking that maybe at a certain point your sister will just open up about all of this, when she's ready. Until then, there's not much you can do for her if she's not willing to be honest. And, as I mentioned in an earlier post, it might not all be what you are thinking, or the worst case scenario.
So, hang in there and see what happens. Hopefully, you'll get all your questions answered soon. Until then, feel free to keep coming back here for support and info. We're here for you.
(((HUGS)))
Monika
thanks you guys have been so helpful to me despite your own personal issues. im so greatful for this opportunity. but maybe your right i guess when the time is right she will tell hell it took her 4 months to tell me she has cancer i guess another 4 to tell me the rest. I hate to close this case but im working with nothing besides you lovely strong women. Im tired of playing private eye it just makes me feel weaker everytime i hit a corner bu t i can tell u guys this we are only 27 years old in the prime of our lives bestfriends since out the womb we always had secrets but we always shared them with each other. for my sister to keep this a secret means its way more than meets the eye thats why im so worried. but i called her today to check up on her and she said she was feeling pretty bad stomach was hurting i asked her did she take the antibotics that doc prescribed you know what she said... No they make me feel like a zombie! I was lost for words i have a million thoughts going through my mind and of course all bad could my baby sister by approx 2 mins apart be given up the fight before it even starts.
she has to start chemo and all she says is my hair! i dont know than i dont want to be so hard on her because i think thats why she is keeping it a secret i dont know im so weak....0 -
Just be thereSMILES1001 said:Maybe your right
thanks you guys have been so helpful to me despite your own personal issues. im so greatful for this opportunity. but maybe your right i guess when the time is right she will tell hell it took her 4 months to tell me she has cancer i guess another 4 to tell me the rest. I hate to close this case but im working with nothing besides you lovely strong women. Im tired of playing private eye it just makes me feel weaker everytime i hit a corner bu t i can tell u guys this we are only 27 years old in the prime of our lives bestfriends since out the womb we always had secrets but we always shared them with each other. for my sister to keep this a secret means its way more than meets the eye thats why im so worried. but i called her today to check up on her and she said she was feeling pretty bad stomach was hurting i asked her did she take the antibotics that doc prescribed you know what she said... No they make me feel like a zombie! I was lost for words i have a million thoughts going through my mind and of course all bad could my baby sister by approx 2 mins apart be given up the fight before it even starts.
she has to start chemo and all she says is my hair! i dont know than i dont want to be so hard on her because i think thats why she is keeping it a secret i dont know im so weak....
Some of the most supportive people for me are the ones who are just there for me.
They don't ask a ton of questions. They just greet me with a smile and a hug.
Maybe a meal or a note to let me know they are thinking of me.
I thought I was ready to lose my hair but it has been very tramatic. It's like a flag saying "yes I have cancer".
Just try to be there for her. Find an excuse to visit her or talk to her about "other" things. Then when she is ready to talk, you will be there.
Be prepared too she may lash out at you. It is hard not to be angry about having cancer and having to deal with it. Good luck.0 -
I'm sorry to hear about your sister. I had to back up a bit to understand whats happenning and I'm still not sure I know. The most important thing is that she needs a be seen by a Gyn/Onc. They are the specialists. I was in the hospital for 7 days after my debulking surgery. Studies have shown that using a gyn/onc gives the patient a much better out look. Some Onc are also doing chemo first,then surgery,then more chemo. Others just do the surgery and then the chemo either way is good. This must be very hard on you with your twin not keeping you in her confidence. Since this is your twin,there is also a good chance of youbeing diangnosed with this disease as well. Maybe if you ask her to help you she'll tell you more, tell her it would be for your sake. My sister was having no pain or any symptoms,but based on my diagnosis she went to her gyn and asked for a ultrasound...they found a mass, it was borderline cancer. She was staged a 1c...no chemo..just surgery...the point I'm making is because of my diagnosis of stage 3c..my sister was able to be diagnosed earlier and has a 95% chance of never having to worry about this disease. I would do anything to protect my sister from having to experience this disease!!! I'll keep you all in prayer..(((hugz)))~~~Joanne0
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Update
Hey guys what a labor day literally, well i forst want to thank all of you for your support and trying to help me solve this puzzle but good and bad news well to begin...
I went over to her sister house with icecream her favorite flavor and told her we must talk and before u know it she broke out in world of tears it was so horrible to see someone who was always so strong look as if they wanted to crumble. well she told me enough from the very start. From November 2007 she went to gyn and had a irregular pap they ran a few test colocoscopy not 2 sure if i spelled it right but im trying in Jan 2008 results were in but inconclusive... for the next 2 months she went to doctor for pain in stomach and pain during sex and nothing than on April 15, 2008 she went to er for severe pain in stomach and they gave her a cat scan blood test the whole shabang and she was rushed into a emergency surgery which was a laptoscopy which took out tumor and biopsy they let her go home the same day after the surgery. May 31, 2008 dx with cancer stage 3c. June Begain Chemo # 1 really messed her up needed a blood transfusion (i was like all this was goingon i had no clue) so chemo stopped until levels went up. July 14 er visit for vomiting, fever, and of course stomach pain she was giving surgery # 2 on July 16 and got discharged on July 21, 2008. This surgery which the debulking they took as much as they could they offered her a hysterectomy but she refused.. now still no chemo.. now August 20, 2008 er vist again for vomiting and pain and she was rushed into surgery # 3 for a cleaning, draining for acesites and yes finally a hysterctomy she was in hospital from august 20 got discharged on august 22, 2008. now home on bed rest feeling crapy but sept 2, 2008 2nd follow up appt with onco for further chemo procedures.
woo that was alot im still in awe... but at least i know a little
now for the worst news she still wants to keep this a secret from our parents. I tried to convince her but she angerly shouted no. the doctors told her that without her start of chemo thetumors are forming and they a forming fast. sh ehas put off chemo so many times due to low blood count and surgeries.
with all that said do you guys think my sister time is running out if she doesnt start chemo fast?0 -
WowSMILES1001 said:Update
Hey guys what a labor day literally, well i forst want to thank all of you for your support and trying to help me solve this puzzle but good and bad news well to begin...
I went over to her sister house with icecream her favorite flavor and told her we must talk and before u know it she broke out in world of tears it was so horrible to see someone who was always so strong look as if they wanted to crumble. well she told me enough from the very start. From November 2007 she went to gyn and had a irregular pap they ran a few test colocoscopy not 2 sure if i spelled it right but im trying in Jan 2008 results were in but inconclusive... for the next 2 months she went to doctor for pain in stomach and pain during sex and nothing than on April 15, 2008 she went to er for severe pain in stomach and they gave her a cat scan blood test the whole shabang and she was rushed into a emergency surgery which was a laptoscopy which took out tumor and biopsy they let her go home the same day after the surgery. May 31, 2008 dx with cancer stage 3c. June Begain Chemo # 1 really messed her up needed a blood transfusion (i was like all this was goingon i had no clue) so chemo stopped until levels went up. July 14 er visit for vomiting, fever, and of course stomach pain she was giving surgery # 2 on July 16 and got discharged on July 21, 2008. This surgery which the debulking they took as much as they could they offered her a hysterectomy but she refused.. now still no chemo.. now August 20, 2008 er vist again for vomiting and pain and she was rushed into surgery # 3 for a cleaning, draining for acesites and yes finally a hysterctomy she was in hospital from august 20 got discharged on august 22, 2008. now home on bed rest feeling crapy but sept 2, 2008 2nd follow up appt with onco for further chemo procedures.
woo that was alot im still in awe... but at least i know a little
now for the worst news she still wants to keep this a secret from our parents. I tried to convince her but she angerly shouted no. the doctors told her that without her start of chemo thetumors are forming and they a forming fast. sh ehas put off chemo so many times due to low blood count and surgeries.
with all that said do you guys think my sister time is running out if she doesnt start chemo fast?
How any one could hide all of that from their twin sister just amazes me. To think of how much she has gone through - alone - blows my mind. There are SO MANY THINGS she can be doing for the blood counts. There are shots to take before chemo, after chemo - blood transfusions, etc, etc, etc. Why did they wait so long to take everything out? I hope to god her doctor is a gynecologist/oncologist and not just a surgeon. This needs a doctor who specializes. Do you think she'd let you go to the doctor with her? It is so much easier to have someone with you so you can ask your questions and have someone else write down the answers - it is so important to "hear" what the doctor is telling you.
I guess beyond all of what you have probably read on this site - in the end, it is your sisters body, her life, her decisions. But she needs some tough love, some support and some faith that there are things that CAN BE DONE - but you can't sit with your head in the sand and pretend it will go away. Ovarian Cancer is one of those things they treat as a chronic disease - just look at all that the women on this site have gone through - it can and does come back again and again and again. And they keep fighting it with all they have, asking questions, looking for answers, cheering one another on, providing support, telling the brutal truth when it is needed and all the while worrying about their own health.
Keep posting and if you can, have your sister at least look at what we talk about - it may be just what she needs. Take good care and please let us know what has transpired. Sending good thoughts your way. Kris0 -
My heart goes out to you bothSMILES1001 said:Update
Hey guys what a labor day literally, well i forst want to thank all of you for your support and trying to help me solve this puzzle but good and bad news well to begin...
I went over to her sister house with icecream her favorite flavor and told her we must talk and before u know it she broke out in world of tears it was so horrible to see someone who was always so strong look as if they wanted to crumble. well she told me enough from the very start. From November 2007 she went to gyn and had a irregular pap they ran a few test colocoscopy not 2 sure if i spelled it right but im trying in Jan 2008 results were in but inconclusive... for the next 2 months she went to doctor for pain in stomach and pain during sex and nothing than on April 15, 2008 she went to er for severe pain in stomach and they gave her a cat scan blood test the whole shabang and she was rushed into a emergency surgery which was a laptoscopy which took out tumor and biopsy they let her go home the same day after the surgery. May 31, 2008 dx with cancer stage 3c. June Begain Chemo # 1 really messed her up needed a blood transfusion (i was like all this was goingon i had no clue) so chemo stopped until levels went up. July 14 er visit for vomiting, fever, and of course stomach pain she was giving surgery # 2 on July 16 and got discharged on July 21, 2008. This surgery which the debulking they took as much as they could they offered her a hysterectomy but she refused.. now still no chemo.. now August 20, 2008 er vist again for vomiting and pain and she was rushed into surgery # 3 for a cleaning, draining for acesites and yes finally a hysterctomy she was in hospital from august 20 got discharged on august 22, 2008. now home on bed rest feeling crapy but sept 2, 2008 2nd follow up appt with onco for further chemo procedures.
woo that was alot im still in awe... but at least i know a little
now for the worst news she still wants to keep this a secret from our parents. I tried to convince her but she angerly shouted no. the doctors told her that without her start of chemo thetumors are forming and they a forming fast. sh ehas put off chemo so many times due to low blood count and surgeries.
with all that said do you guys think my sister time is running out if she doesnt start chemo fast?
I can't imagine going through this alone!
She is very lucky to have you. It will be very difficult for you but you need to try to step in a little. Sounds like she may still be in denial mode. I stayed in it for a while, when I first found out I had cancer and again when I learned more about ovarian cancer. It's like a roller coaster and it comes at you so fast!
There is lots to be done! Be sure she has a good Dr. Perferably an optimistic one who knows his/her stuff. If not, find one and help her see she needs another opinion. My OBGYN is good and did a good job with my surgery but, I am much more comfortable with my Oncologist who knows about this cancer. The other post was right, there is lots they can do to help with blood levels. They can even do the Chemo directly into the abdomine. It is pretty nasty and some can't tollerate it. I'm afraid she will have to fight especially in trying to beat this thing.
Things happen quickly with this disease. Tumors grow FAST.
I had a clean bill from my OBGYN in March and had a tumor bigger than a canalope by July.
It is still all her decision. She needs to know that there is hope, help and you waiting to see her get well. There really are alot of angels out there waiting to help you both.
I'll be praying & thinking of you both...0 -
SmiliesSMILES1001 said:Update
Hey guys what a labor day literally, well i forst want to thank all of you for your support and trying to help me solve this puzzle but good and bad news well to begin...
I went over to her sister house with icecream her favorite flavor and told her we must talk and before u know it she broke out in world of tears it was so horrible to see someone who was always so strong look as if they wanted to crumble. well she told me enough from the very start. From November 2007 she went to gyn and had a irregular pap they ran a few test colocoscopy not 2 sure if i spelled it right but im trying in Jan 2008 results were in but inconclusive... for the next 2 months she went to doctor for pain in stomach and pain during sex and nothing than on April 15, 2008 she went to er for severe pain in stomach and they gave her a cat scan blood test the whole shabang and she was rushed into a emergency surgery which was a laptoscopy which took out tumor and biopsy they let her go home the same day after the surgery. May 31, 2008 dx with cancer stage 3c. June Begain Chemo # 1 really messed her up needed a blood transfusion (i was like all this was goingon i had no clue) so chemo stopped until levels went up. July 14 er visit for vomiting, fever, and of course stomach pain she was giving surgery # 2 on July 16 and got discharged on July 21, 2008. This surgery which the debulking they took as much as they could they offered her a hysterectomy but she refused.. now still no chemo.. now August 20, 2008 er vist again for vomiting and pain and she was rushed into surgery # 3 for a cleaning, draining for acesites and yes finally a hysterctomy she was in hospital from august 20 got discharged on august 22, 2008. now home on bed rest feeling crapy but sept 2, 2008 2nd follow up appt with onco for further chemo procedures.
woo that was alot im still in awe... but at least i know a little
now for the worst news she still wants to keep this a secret from our parents. I tried to convince her but she angerly shouted no. the doctors told her that without her start of chemo thetumors are forming and they a forming fast. sh ehas put off chemo so many times due to low blood count and surgeries.
with all that said do you guys think my sister time is running out if she doesnt start chemo fast?
How awful for your sister..and to go through this alone...that alone is a testimony as to her inner strength!!! Remind her of this...it is this strength that can and will get her through what she needs to face and do for herself. Only now because she has told you,she only has to carry half the load!!! I had red blood cell boosters throughout my 6 cycles of chemo. I have had 2 recurrences so far and I keep on going....and they are not near as severe on my body as the first round was. It's because of all her surgeries that her chemo is hitting her so tough. It will get better but she must be willing to fight with all she has against this monster. I will keep you both inprayer...(((hugz)))~~~Joanne0 -
I AGREEfloridajo said:Smilies
How awful for your sister..and to go through this alone...that alone is a testimony as to her inner strength!!! Remind her of this...it is this strength that can and will get her through what she needs to face and do for herself. Only now because she has told you,she only has to carry half the load!!! I had red blood cell boosters throughout my 6 cycles of chemo. I have had 2 recurrences so far and I keep on going....and they are not near as severe on my body as the first round was. It's because of all her surgeries that her chemo is hitting her so tough. It will get better but she must be willing to fight with all she has against this monster. I will keep you both inprayer...(((hugz)))~~~Joanne
It's not good for anyone to do this alone. I'm so glad your sister finally opened up to you. And I agree with the others that it's important to find out if she has a gynecologic oncologist. They are better well-rounded to treat this. And your sister needs to know that there is a wealth of information and support here. Of course, she is so lucky to have you. I understand why she wouldn't want to alarm anyone else, but it's not the best way to deal with it.
Well, keep us informed. We're here for you - both of you. Take care.
Luv, hugs, and especially prayers,
Monika0 -
Thanks you Guys
im so lucky to have friends like you guys. When i came to this post days ago i was a mess anger and doing a job i had no experience in (Spying) I came here and i asked so many questions and express so many fears and you guys calme me down and gave me the strength to adress my sister.
But someone stated that my sister is in denial, I agree you took the words right from me. She had her appt yesterday and she will have a port inserted on 17th to begin chemo but they are gonna give her chemo in hospital so she will be hospitalized since the last dose was so bad on her. My sister after the day she told me has been very distant i call her several times a day and she acts so well than i surprise her with a visit and she looks like hell hit her. she still freash off of hysterectomy so its not much she can do but i try my best. I still havent told parents but they are begining to question the same things i am.
as for that being my twin im so scared we shared everything together chicken pox, colds, scars and even well dated same guys im so nervous that this monster will come after me next.
I scheduled an appt for obgyn and im gonna have every test done i can think of but for now i have to help my sister because she has noone not by force but by choice. wish me luck and keep us in your prayers.
And thanks again guys im so lucky to have found this site. ive been researching this since i found my sister doctor appt for ovarian cancer and never did i imagine id run into a bunch of strong, blessed woman!
i guess its safe to say i love you all!0 -
Hang in thereSMILES1001 said:Thanks you Guys
im so lucky to have friends like you guys. When i came to this post days ago i was a mess anger and doing a job i had no experience in (Spying) I came here and i asked so many questions and express so many fears and you guys calme me down and gave me the strength to adress my sister.
But someone stated that my sister is in denial, I agree you took the words right from me. She had her appt yesterday and she will have a port inserted on 17th to begin chemo but they are gonna give her chemo in hospital so she will be hospitalized since the last dose was so bad on her. My sister after the day she told me has been very distant i call her several times a day and she acts so well than i surprise her with a visit and she looks like hell hit her. she still freash off of hysterectomy so its not much she can do but i try my best. I still havent told parents but they are begining to question the same things i am.
as for that being my twin im so scared we shared everything together chicken pox, colds, scars and even well dated same guys im so nervous that this monster will come after me next.
I scheduled an appt for obgyn and im gonna have every test done i can think of but for now i have to help my sister because she has noone not by force but by choice. wish me luck and keep us in your prayers.
And thanks again guys im so lucky to have found this site. ive been researching this since i found my sister doctor appt for ovarian cancer and never did i imagine id run into a bunch of strong, blessed woman!
i guess its safe to say i love you all!
What wonderful sharing you have received from this group. I have little to add. I just can't conceive the torture you sister has gone through by choosing to go it alone. My brother made the same choice and I am aware of the torture that a sibling goes through. The good thing is that you are now aware of this horrible disease and can do more to protect yourself. My daughter will have a CA-125 blood test every year with her regular gyn appointment. Her doctor told her that since I was diagnosed Stage IV.
It is best for us to treat this as a chronic disease and one that we will have treatment for from now on.
"Having hope means that one will not give in to overwhelming anxiety, a defeatist attitude, or depression in the face of difficult challenges or setbacks." From the book by Daniel Goleman entitled "Emotional Intelligence.
As a parent and grandparent, I would be horrified if my daughter had not told me of such a threatening disease and deny me the opportunity to express my love and share her worries. That is what family is for.
One hint for you. I would not call her more than once a day to check on her and see if there was anything I could help her with. When I am in the recovery from the chemo I don't even feel like talking on the phone. Does she live alone? She will need someone to prepare snacks and meals in recovery from the chemo. The right nutrition is so important. She must drink lots of water to flush the system and all of us have bowel problems as a side effect. So there is some before dose preparation that one must do.. Lay in protein drinks, laxatives, tylenol etc.
Hugs and Prayers, Saundra0 -
Just be thereSMILES1001 said:Maybe your right
thanks you guys have been so helpful to me despite your own personal issues. im so greatful for this opportunity. but maybe your right i guess when the time is right she will tell hell it took her 4 months to tell me she has cancer i guess another 4 to tell me the rest. I hate to close this case but im working with nothing besides you lovely strong women. Im tired of playing private eye it just makes me feel weaker everytime i hit a corner bu t i can tell u guys this we are only 27 years old in the prime of our lives bestfriends since out the womb we always had secrets but we always shared them with each other. for my sister to keep this a secret means its way more than meets the eye thats why im so worried. but i called her today to check up on her and she said she was feeling pretty bad stomach was hurting i asked her did she take the antibotics that doc prescribed you know what she said... No they make me feel like a zombie! I was lost for words i have a million thoughts going through my mind and of course all bad could my baby sister by approx 2 mins apart be given up the fight before it even starts.
she has to start chemo and all she says is my hair! i dont know than i dont want to be so hard on her because i think thats why she is keeping it a secret i dont know im so weak....
see below...0 -
ChemoSMILES1001 said:Thanks you Guys
im so lucky to have friends like you guys. When i came to this post days ago i was a mess anger and doing a job i had no experience in (Spying) I came here and i asked so many questions and express so many fears and you guys calme me down and gave me the strength to adress my sister.
But someone stated that my sister is in denial, I agree you took the words right from me. She had her appt yesterday and she will have a port inserted on 17th to begin chemo but they are gonna give her chemo in hospital so she will be hospitalized since the last dose was so bad on her. My sister after the day she told me has been very distant i call her several times a day and she acts so well than i surprise her with a visit and she looks like hell hit her. she still freash off of hysterectomy so its not much she can do but i try my best. I still havent told parents but they are begining to question the same things i am.
as for that being my twin im so scared we shared everything together chicken pox, colds, scars and even well dated same guys im so nervous that this monster will come after me next.
I scheduled an appt for obgyn and im gonna have every test done i can think of but for now i have to help my sister because she has noone not by force but by choice. wish me luck and keep us in your prayers.
And thanks again guys im so lucky to have found this site. ive been researching this since i found my sister doctor appt for ovarian cancer and never did i imagine id run into a bunch of strong, blessed woman!
i guess its safe to say i love you all!
I know for some chemo can be a cure. If cancer is caught early enough it can take it away for good. A lot of ovarian keeps coming back but I have two friends who lived it years ago the women are in their 70's and they have had no reoccurence. Me I have been having chemo off and on for 6 years and they have never made me sick to my stomach. I get stomach meds before chemo as probably a lot of these people do. I too have a port and its a blessing to my veins. I hope your sister attacks it and beats it. Thank God she has you for support. She should tell people because that is what gets you through. I will be praying for her and hoping she does well.
God Bless and my prayers are with you
Sandy Green0
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