Hello
about 2 months ago I had an odd feeling, like the start of a cold in my left sinus area and a burning sensation( like a hot poker) in the left sinus the area behind my nose. dr.examined me, said sinuses were extermely swollen. he gave me a course of antibiotics, a week later I went back not much better.. another course of a different antibiotic. 3 weeks later I went back , the cold seemed to clear but I still had the burning sensation but it was getting worse. forward 3 weeks and an ENT appointment. I told him the symptoms and that I'd had 3 courses of different antibiotics.
he briefly looked in my throat nose and felt my neck, for lymph node swelling I assume, then ordered a CT scan of the sinuses. I got the CT the very next day.
forward 2 days later, burning pain steady and now in roof of mouth and left upper teeth.
called ENT, he advised go to the ER, as the CT didnt show any conditions that would cause such serious pain. inital diag ,trimingal neurolga.
In the ER I recieved pain meds (no effect), normal blood work up and MRI/MRA scans (no contrast) all results negative. additionally I went to the ER at U of M 2 days later as the pain continued. recieved normal blood work up, pain meds (no effect) neurological exam. and am additional 2 part CT scan.. results negative. now an appointment to see a neurologist.
forward 3 days, the neurologist discussed my pain wich was still primarily in my left sinus / left roof of mouth area. also some pressure and sensativity in left cheek and nose. she scheduled me an appointment for a pain clinic (in december) unacceptable! there supposedly that busy.she ordered a CT with contrast to be sure there were not any masses on tumors on any nerver she said. her inital diagnosis atypical face pain.
I have since scheduled an additional ENT appointment as my left sinus constantly burned like theres acid in my head pain scaly from 1-10 usually 9-10 never under an 8-9. I have also noticed my symptoms are increasing, I have pain in the left sinus when breathing in talking or swallowing. I have a moderate headache on the same side and when I touch my head I can feel it all the way to my sinus/affected area. my sinus actually feels fairly clear and I can breathe well.
I just today looked inside my left nostril and it's blood red and has flaky skin area, like dead skin, I rubbed it and It started to bleed. my nose is numb and hurts at the same time.
the pain is 24/7 I am having serious difficulties at my work as well as daily life. the pain never stops and is severe, I feel it even when I walk or when driving from road bumps. It's almost impossible to sleep as well, im so tired all the time.
sorry to be long winded but I wanted to be as descriptive and accurate as possible.
Thanks for any input
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