Biopsies and stuff

ron50

Hi everyone..Well monday was D day for biopsy results. It seems I have dodged the bullet but still have some shrapnel wounds. There were no amyloid proteins present in my kidneys. As a matter of fact they found nothing unusual at all until the Nephrologist suddested they have a look at the biopsy with an electron microscope. They found lots of damaged filters and told me I have MCD. That stands for Minimal change disease. What a ridiculous name. It means that I probably will not end up in Renal failure.. Unfortunately the treatment is 75mg per day of prednisolone for an extended period. It is common to suffer relapses and after the third relapse they hit you with some of the chemo//immunosuppressants... It appears most of the complications come from the reaction to medications..My dizziness has been ruled out as hypotesion and now a middle ear disease is suspected ,,possibly meniere's. I have to see another specialist,a neurologist to see why I am losing feeling in my feet. The final indignity is that I must have another scope as MCD is often associated with malignancies.....I don't know why they don't just lay a track and leave a permanent camera up there. I may have survived cc for over ten years ,,nearly eleven ,,but I have had to fight for every minute of it...Thanks again for your kind wishes and support...Ron.

Limey

Ron, it may seem to you a long fight for your right to be NED, but boy are you an inspiration for us that are still fighting on a more daily basis. I laughed about laying track. last week they used a camera on me and laying there under sedation I started laughing. the tech asked me what was so funny, I guess I was wondering if I had had this camera before. we will prpbabbly mutate over the years to just light up inside or we will grow switches that can be just turned on.
anyway. It sounds like a bit of a rough road but congratulations for your strength and dedication to beating the crap out of this damn cancer.
Mark.

tootsie1

Ron, you are walking down such a rocky road right now. I'm sorry, but it seems like you're handling it with such grace and humor. I hope your next scope shows nothing! We'll be waiting for the results.

Gail

Monicaemilia

Ron: Wonderful news! I know that the challenges can be tiring at times, but Mark is absolutely right, you are an inspiration and example of the strength of the human spirit. I wish you the very, very best. Monica

fedester

ron,
great news, yes the road is rocky but driveable. you have fought the fight for near 11 years and you will continue to fight. you have given us all here the inspiration to continue on against this beast. please keep us in the loop.
be well
never,ever give up!!
bruce

KathiM

Oh, Ron....I'm wrapping my arms around you. Through it all, you have kept your sense of humor!!! You are so very special!

Please keep us updated, I have you in my prayers, and, as Mark (Limey) said, we look to you as a guide for us...11 YEARS!!! Wonderful!!!

Hugs, Kathi

jams67

Ron, I'm glad that you at least have something treatable. Let us know how your treatments make you feel.
Have you looked into BPPV? Don and I have both had a problem with dizziness and after this painless procedure that was done in the doctor's office it just cleared up completely.
Worth reading.
Jo Ann
http://www.tchain.com/otoneurology/disorders/bppv/bppv.html

Unknown

This comment has been removed by the Moderator

betina61

Oh Ron you have been here since day one that I posted and always have inspired me to be a fighter,I'm glad that the news are not so bad,and you will continue here for many years.

pamness

I am sure it seems like and endless road, and it sounds awful, but many of the alternatives sound worst.

I send you all my good wishes and prayers.

Pam

jenalynet

Hi Ron,
You are a fighter..I am happy that this can be treated and I love your humor about the camera..I'll be keeping you in my thoughts and prayers..Hugs to you, Audrey.

ldot123

Hi Ron,
Thanks for your post. I know what you mean by fighting every day; but compared to you I am a newbie. I finished my last day of chemo about a year ago. I went in for a checkup today, ultrasound, xray and bloodwork. I continue to be NED, but I have so many symptoms that cause me concern it tends to drive me batty. I have been having what I perceive to be an inner ear problem - constant ringing in the ears, occassional ear aches. I am going to go to a specialist for that.
That's all for now, hang in there and keep up the good fight. Cheers, Lance

hopefulone

Ron, You are an inspiration! Keep that sense of humor! Keeping you in my prayers

God BLess
Diane