The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
surgery

Denise1966
CSN Member Posts: 90
Comments
-
Hi Denise: I am so happy that everything turned out so well. As for the iliestomy, I have had one for two years and, yes, although it does seem gross at first, you do get used to it. As time goes by you will notice a predictability to your bowel movements so that you are prepared. Just be diligent in changing the pouch and cleaning the stoma. Also ensure that you drink lots of water as it will go a long way in avoiding blockages. Don't hesitate to e-mail me if you have specific questions or just want to vent. Monica
-
Denise,
Congrats on good pathology news! I had my surgery on May 7 and am finally getting comfortable dealing with the ileostomy. I have an "in-y" rather than an "out-y" so it's been quite a pain. The best suggestion I have for you is to do things in your time. Be patient with yourself. You are entitled to whatever mood you are in. One month ahead of you, I'm in a much better place than I was a month ago with the bag.
You may also want to check out the ostomy board at www.healingwell.com I have found so much good advice there from people who have dealt with these things for years.
Good luck. I'm thinking of you.
Pam -
Glad to hear the good news. The docs and nurses in the hospital were not very helpful or knowledgable about the fitting and use of the bag. I found the best help with a good visiting osteomy nurse. Every person's body is different and the "fit" is the key. Keep experimenting with different equipment until you find your comfoert level. It will be gone soon. Any add'l chemo planned?
-
-
I had an ilieostomy fo 9 months. I just had my reversal on May 27th. Your stoma shape is important as regards the equipment. My husband is a wound and ostomy nurse so I had wonderful support. A good ostomy nurse for a few visits would be good for you. I experimented with several bags, paste, etc until I found one that worked great. Once I found the right equipment the ostomy became routine. If you have any questions that my husband can answer please feel free to ask. Best of luck, Pearl
Discussion Boards
- All Discussion Boards
- 6 Cancer Survivors Network Information
- 6 Welcome to CSN
- 122.5K Cancer specific
- 2.8K Anal Cancer
- 455 Bladder Cancer
- 311 Bone Cancers
- 1.6K Brain Cancer
- 28.6K Breast Cancer
- 407 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 681 Leukemia
- 802 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 242 Multiple Myeloma
- 7.2K Ovarian Cancer
- 69 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 743 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.4K Lifestyle Discussion Boards