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PET CT NED

Glv49
Glv49 CSN Member Posts: 206 Member
edited March 2014 in Colorectal Cancer #1
Hi,
For all the newbies who don't know me. DX in 2003 with StageIV colon cancer. Surgery, colostomy which was reversed successfully after 18mos. Folfox regimine with fanny pack 24 hrs a day for 6 wks, along with radiation. Then 6 mos of chemo oxillaplatin, 5FU, leucovorin. I have been in remission since 2004. Just had my PET/CT last week, and saw my onc today. She said NED. I don't have to see her again till next year at this time, and she said no need for a PET every year, only a CAT scan, as long as my numbers stay like they are now. And, will only have my CEA, and CA125 every 6 mos with my blood work. She said I am doing great. I hope this gives somebody some hope, NEVER EVER give up.. things didn't look very promising for me in the beginning... but.. I kept up the faith, and the fight, and I am still here. I guess God has a bigger plan for me someplace, sometime. But for today I am doing that naked happy dance with NED, and loving every minute of every day. Good luck to everyone battling this beast, and God bless all of us.

Gail
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Comments

  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    #2
    From one Gail to another, I'm thrilled for you. Sounds like you've had a tough battle, but you've come through with flying colors. Wonderful!

    *hugs* Gail
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  • jenhopesprays
    jenhopesprays CSN Member Posts: 128 Member
    #3
    Gail,
    Thanks for the encouragement. I love good news!!!!

    So glad your NED!

    Jen
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  • nudgie
    nudgie CSN Member Posts: 1,478 Member
    #4
    It is sooooo GREAT to hear stories like yours. CONGRATS on dancing with NED :):):)

    God has a plan for us all and he is the only one that knows what each and every plan is.
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  • apache4
    apache4 CSN Member Posts: 272 Member
    #5
    Thanks to you and everyone else who recently posted good news It does help other Stage IV's. I am so happy for you. Did you have the metasesies(can't spell) in the liver? My good thoughts go with you. Linda
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  • impactzone
    impactzone CSN Member Posts: 558 Member
    #6
    Awesome! I read these when I am feeling down as a stage 4 myself.
    Impactzone
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  • KathiM
    KathiM CSN Member Posts: 8,027 Member
    #7
    I'm dancin' for you gal!!! GREAT news!!!

    It's stories such as yours that are a wonderful inspiration!

    Hugs, Kathi
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  • Hanac
    Hanac CSN Member Posts: 55 Member
    #8
    In the words of my 20 something sons:

    WOOT WOOT WOOT!

    Love Ya,

    Hana
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