Dr. appt.

saundra
saundra CSN Member Posts: 1,370 Member
edited March 2014 in Ovarian Cancer #1
I saw the surgeon (gyn/onc) today and after the exam he said that everything felt "perfect". My CA-125 was down another point to 5. He wants me to try to go for 12 months of this maintenance dose of taxol. If my neuropathy gets worse or does not go away during the day (like it is now) we may have to stop. I will give it a try as this may keep me in remission some time longer or at least it will be information for someone else.

Comments

  • curlee8661
    curlee8661 Member Posts: 56
    #2
    Saundra,
    That's great news! Hopefully the Taxol won't be too hard on you. I'm still having neoropathy in one foot 3 and a half months after finishing chemo, but it does seem to be fading. During treatment it got pretty bad, where I had difficulty walking for a while, but I decided to ride it out (didn't want to stop treatment), and it got better. My CA-125 was 5.3 when I finished chemo, but now it has jumped up to 15.7. Trying my best not to worry. Hopefully it's unrelated to cancer. We'll see at the first of the year when they re-check it. Hopefully the new year will bring us both continued good news!

    Happy Hollidays!
    ~Marianna~
  • mopar
    mopar CSN Member Posts: 1,972 Member
    #3
    curlee8661 said:

    Saundra,
    That's great news! Hopefully the Taxol won't be too hard on you. I'm still having neoropathy in one foot 3 and a half months after finishing chemo, but it does seem to be fading. During treatment it got pretty bad, where I had difficulty walking for a while, but I decided to ride it out (didn't want to stop treatment), and it got better. My CA-125 was 5.3 when I finished chemo, but now it has jumped up to 15.7. Trying my best not to worry. Hopefully it's unrelated to cancer. We'll see at the first of the year when they re-check it. Hopefully the new year will bring us both continued good news!

    Happy Hollidays!
    ~Marianna~

    That's great news! Enjoy the moment!

    Marianna, that fickle CA125 can go up and down like a yo-yo for a number of reasons - infection, stress, etc. So don't worry - that might make it go up more!
    Luv you all!
    Monika
  • floridajo
    floridajo CSN Member Posts: 480
    #4
    Saundra,
    That is excellent news!!! Have the best holiday..you are a miracle...(((hugz)))..Joanne
  • challen14
    challen14 Member Posts: 29
    #5
    floridajo said:

    Saundra,
    That is excellent news!!! Have the best holiday..you are a miracle...(((hugz)))..Joanne

    Hi Saundra,

    I love good reports!! That is great news!! Hang in there with the Taxol...it worked well for me for 4 years off and on. So happy for you. Stay well and strong...blessings to you!
    Charlotte
  • lizper
    lizper Member Posts: 199
    #6
    That is wonderful!! I hope your Ca-125 keeps going down asn stays that way. Prayers to you. Liz
  • BonnieR
    BonnieR CSN Member Posts: 1,526 Member
    #7
    Saundra, that is awesome to be at 5!! Now I pray the maintenance goes well for you, you are right it is worth a try. Hugs N Prayers Bonnie
  • collins
    collins Member Posts: 69
    #8
    Saundra,

    Great news!!! I am so happy for you, what a good feeling. How often do you take the taxol on maintenance?
    does this program cause you to loose you hair? and what other side effects do you have?

    eleen
  • saundra
    saundra CSN Member Posts: 1,370 Member
    #9
    collins said:

    Saundra,

    Great news!!! I am so happy for you, what a good feeling. How often do you take the taxol on maintenance?
    does this program cause you to loose you hair? and what other side effects do you have?

    eleen

    I take it every 4 weeks usually, but am going a little early this month because of the holidays (3 weeks.) Yes, my hair is falling out today and head is SORE. It had grown back since July to a little over an inch in spite of 4 doses of taxol and carbo.

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