just when I thought...
I had a head ct yesterday at my insistence. I had completed radiation therapy to the brain for brain mets from rectal ca (highly unusual, i'm told) at the end of july. My equilibrium was getting worse. My onc thought we were doing the head ct too soon. That we should wait one month and do it woth my abd and chest ct in one month(still have those mets in the lungs). But i knew something wasn't right. I'm 51. I shouldn't be walking around like my 90 something mother-in-law.
One of the tubes between brain ventricles is narrowing from the brain mets. So fluid isn't draining appropriately. One of them at least has grown larger. 2 options. Insert a shunt. this would be stopgap, but quick answer. Or go in and remove the tumor to relieve the pressure. I'm told this wouldn't be an actual treatment of the brain tumor. I do have more than one. I have an MRI monday at 6AM and an appt with a local neurosurgeon on Mon at 12:15 PM.
What's it like to get good news? Just wondering. It's been so long.
Mary
PS only daughter moving to Denver tomorrow.
Comments
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Mary -
One word for you... $%^*. That totally sucks @$$. I am glad that you were insistent with your doc (when will they ever learn that patients often DO know best?) and caught the narrowing now versus a month from now.
I am amazed by your spirit and determination. You are an absolute hero to every one of us here. Know that you are in my prayers daily.
Be well.
- SB0 -
Mary, hugs and i will be thinking of you on Monday and sending good thoughts and prayers your way. Good thing you did listen to your inner self and insisted on the ct as SB said. Please keep us posted. The surgeon may have some better options once the MRI results are in. God Bless and please let us know.0
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Hi Mary -
This definitely sucks! But so good that you pushed your doctor for a CT. I'll be thinking of your MRI and neurosurgeon appointment. I'm wishing you the best.
Betsy0 -
P.S. I can also understand how you feel with your daughter moving to Denver. Mine was 2800 miles away for a while , but moved back here now thankfully. We talked 4-5 times a week on the phone though and I know it's not the same, but try to think she's a phone call away. It helps. Hugs .hopefulone said:Mary, hugs and i will be thinking of you on Monday and sending good thoughts and prayers your way. Good thing you did listen to your inner self and insisted on the ct as SB said. Please keep us posted. The surgeon may have some better options once the MRI results are in. God Bless and please let us know.
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Mary,
It just doesn't seem fair, does it? You sound so calm in spite of it all. You know Lance had brain mets too, but he got through it. I hope you'll keep the faith and fight the good fight - which sounds like you're doing.
I'll be thinking about you and sending healing vibes.
Ying0 -
Mary,
I am so sorry you have had more bad news. I so admire your fighting spirit. I can only hope to be as strong as you have been in your fight. You are in my prayers.0 -
That stinks! Hopefully all will get better from here. You're in my thoughts and prayers!0
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Shelley,redlady23 said:Mary
I am new to the site so have not spoken with you before but I am truly sorry to hear your news. I will be praying for you and hope that the surgeon will be able to give you some options.
All my good vibe mojo is going out to you!
Shelley
Sorry you are here, but glad you found us.
Jo Ann0 -
Mary: what more can I say but that you are truly in my thoughts and prayers..I have been praying for you since I first came to this site I guess about 2 years now...keep fighting...
Bev0
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