If you have a heart, Please Help.
-Christina Z.
(We are at UCLA Medical Center)
Comments
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Bless Your heart. This is not an easy road your on. My mom fought for 16 months.
I know other who have lived 4 years and are doing ok not well but ok.
My mom is not one of them, she passed away June 7th.. I'm 44 but that does not make it any easier. I wish I could help you. Hang in there, spend time talking with your mom, you will charish the time.
I'm so sorry
Janine0 -
Hi Christina,
There is hope. My husband was diagnosed with a GBM in December of 2004. He had surgery, chemo, radiation & then we went to Duke. (They are the most wonderful, caring people in the world.) He did a full year of CPT-11, CCNU & Temodar. The next year, he did Tamoxifin. As of April of this year, he is not on any meds & is doing great! There is hope!
Hugs to you,
Carol0 -
What is CCNU?cnall said:Hi Christina,
There is hope. My husband was diagnosed with a GBM in December of 2004. He had surgery, chemo, radiation & then we went to Duke. (They are the most wonderful, caring people in the world.) He did a full year of CPT-11, CCNU & Temodar. The next year, he did Tamoxifin. As of April of this year, he is not on any meds & is doing great! There is hope!
Hugs to you,
Carol0 -
dear christina, my wife is dying from gbm 4 and I totally understand what you are going through and what i say may not sit well with you right away. You should think not only about adding a little time here or there but also about how you can help make her remaining time as good as possible. its diferent for everyone. My wife got to a point where she decided not to continue treatment so that she could have some peace and controll in her life. She has taught me such amaing things about courage and strength and how to live each day. I totally relate to the crusing feeling you talk about and i advise to to keep reaching out to people hun and dont try to go it alone. I pray for you also and I think God recognizes your compassion. That for me now is my greatest wish also that my wife will not suffer. Good luck Hun and God bless you, ? is she still able to express her wishes and if so what are they? , sincerely with empathy Tommy0
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CCNU is another chemo...My mom was on it also for 6 weeks, also the waffers they can insert during surgery are a form of CCNU.StillwaterMan said:What is CCNU?
Good Luck, Janine0
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