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Huge doubt abput recurrance...

lizper
lizper CSN Member Posts: 199
edited March 2014 in Ovarian Cancer #1
Once you have a 1st recurrance.... does this mean you will always be having recurrances????? Or is there any cases that after being treated for 1st recurrance you can be in a long term remission like 2,3 or 4 years. Is this even possible???? Liz
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Comments

  • floridajo
    floridajo CSN Member Posts: 480
    #2
    Lizper,
    I,myself can't say from personal experience, but I kow I have read quite a few cases, where there was a recurrence followed by a nice long remission. How's your mom holding up?? I'm sure she's as scared as you. I've been thinking and praying for you both..(((hugz)))..Joanne
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  • lizper
    lizper CSN Member Posts: 199
    #3
    floridajo said:

    Lizper,
    I,myself can't say from personal experience, but I kow I have read quite a few cases, where there was a recurrence followed by a nice long remission. How's your mom holding up?? I'm sure she's as scared as you. I've been thinking and praying for you both..(((hugz)))..Joanne

    Hi Joanne, why were you told cure is off the table 4 you???
    Tks 4 your prayers, we are both sad, scared, worried and wondering what to expect. It was such a disfortune 4 her not to have surgery plus IP chemo, this would have had control of the disease...but we were scared off the risk after what she went through. Now I don't know what is going to happen. I hope we made a good choice.
    Are you taking Gemzar alone? My Mom is having Gemzar plus Carboplat on 1 day then after a week they reinforce Gemzar then she will rest 2 weeks. She has had nausea, very very tired and today she had strong abdominal pain and had to take a pill. Could this be because of chemo?
    How are you doing? Prayers going your way to. LIZ
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  • floridajo
    floridajo CSN Member Posts: 480
    #4
    lizper said:

    Hi Joanne, why were you told cure is off the table 4 you???
    Tks 4 your prayers, we are both sad, scared, worried and wondering what to expect. It was such a disfortune 4 her not to have surgery plus IP chemo, this would have had control of the disease...but we were scared off the risk after what she went through. Now I don't know what is going to happen. I hope we made a good choice.
    Are you taking Gemzar alone? My Mom is having Gemzar plus Carboplat on 1 day then after a week they reinforce Gemzar then she will rest 2 weeks. She has had nausea, very very tired and today she had strong abdominal pain and had to take a pill. Could this be because of chemo?
    How are you doing? Prayers going your way to. LIZ

    Hello Liz,
    I was told cure was off the table because of the recurrence within months of the original tx. I am on Gemzar only at this time, I receive it weekly for 3 weeks then am off for one week. I was having bad pains also in the abd. at first as well, and my Onc put me on Miriacle Lax....Gemzar is very constipating...he said I was f.o.s. which means full of shi**!!! He was right..and now I feel much better. I did try colace (a stool softner) but it did not work...the other stuff I mentioned is great!!! I would definely call the Dr. and see what he has to say....good luck---sending big cyber ((((hugz)))..Joanne
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  • groundeffect
    groundeffect CSN Member Posts: 639 Member
    #5
    Liz, I don't know if it helps you, but I know that cancer is considered a chronic disease, and that no one is guaranteed a cure. I've seen time and again in magazine articles and other place of folks who are "cured" of different types of cancer, but the best I've been offered is that I "may" have a cure. There are many women who have long episodes of remission, and I'm sure a good many who are actually cured.
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  • lizper
    lizper CSN Member Posts: 199
    #6
    groundeffect said:

    Liz, I don't know if it helps you, but I know that cancer is considered a chronic disease, and that no one is guaranteed a cure. I've seen time and again in magazine articles and other place of folks who are "cured" of different types of cancer, but the best I've been offered is that I "may" have a cure. There are many women who have long episodes of remission, and I'm sure a good many who are actually cured.

    Tks for your resonponse,,, what I would like to know is the long episodes you mention...are they also for those who have recurrences??? Do you know of any cases? LIZ
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  • frankelyro
    frankelyro CSN Member Posts: 25
    #7
    My experience had been about an 18 month remission after the initial surgery/chemo ttmt. The first recurrance was after that. Remission time can become shorter and shorter between treatments. I've had two additional surgeries and after the 3rd one, I didn't seem to have any remission time and have been on various chemos for almost a year. I'm no longer expecting remission from treatments but stability of the disease. Keep it in control. Everyone is different and staying positive is essential to your well being. Angels surround you, Roann
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  • lizper
    lizper CSN Member Posts: 199
    #8
    frankelyro said:

    My experience had been about an 18 month remission after the initial surgery/chemo ttmt. The first recurrance was after that. Remission time can become shorter and shorter between treatments. I've had two additional surgeries and after the 3rd one, I didn't seem to have any remission time and have been on various chemos for almost a year. I'm no longer expecting remission from treatments but stability of the disease. Keep it in control. Everyone is different and staying positive is essential to your well being. Angels surround you, Roann

    I'm sorry to hear that but keeping it stable is great... that means your still here giving a fight. How long ago were you 1st dx?
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