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IBC and CFIDS (CFS) +/- Fibromyalgia?

explorer1223
explorer1223 CSN Member Posts: 4
edited March 2014 in Breast Cancer #1
I am very new at this. Does anyone know a person who has been diagnosed with Inflammatory Breast Cancer and Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS or CFS) and/or Fibromyalgia? Please contact them and ask them to email me as soon as possible. Thank you.
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  • tonigary
    tonigary CSN Member Posts: 8
    #2
    i was diagnosed and treated for ibc almost 7 years ago at m.d.anderson in houston...prior to that i was diagnosed with fibromyalgia....since treatment i have had several long term side effects and late effects, including problems with my immune system....worsening migraine and cluster...and now atypical migraine headaches (i see another neurologist in jan)...also diagnosed with chronic myofascial pain syndrome....and am also supposed to see dr. in dec about "chemobrain"
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  • jeanette7
    jeanette7 CSN Member Posts: 18
    #3
    tonigary said:

    i was diagnosed and treated for ibc almost 7 years ago at m.d.anderson in houston...prior to that i was diagnosed with fibromyalgia....since treatment i have had several long term side effects and late effects, including problems with my immune system....worsening migraine and cluster...and now atypical migraine headaches (i see another neurologist in jan)...also diagnosed with chronic myofascial pain syndrome....and am also supposed to see dr. in dec about "chemobrain"

    watch out for migraine headaches, it lead to al-timerers, be very carefull
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  • AuthorUnknown
    AuthorUnknown CSN Member Posts: 1,537 Member
    #4
    jeanette7 said:

    watch out for migraine headaches, it lead to al-timerers, be very carefull

    Hello,

    For more information on the risks of migraine headaches, I encourage you to contact the National Cancer Information Center. Cancer Information Specialists are available 24 hours a day and can direct you to resources that will assist you.

    Take care and be well,

    Dana
    CSN Dana
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